Mirabai Nicholson-McKellar

Filmmaker / Beekeeper / Sun Child / Traveler / Macro photographer & videographer / Digital Content Producer @flowhive

[Dee Sunyata @deesantoshi]

Australians with #LongCovid #postcovid persistent symptoms after Covid are welcome to join us in this Group for Aussies.

[Dee Sunyata @deesantoshi]

Australians with PACS are welcome to join this facebook support group #CountLongCovid

[District Leader Anthony Beckford @AnthonyBNYC]

ENOUGH IS ENOUGH!

A gang of @NYPDnews officers swarmed onto a train, jumped on and tased a young Black Man. They accused him of fare evasion and many witnesses on the train, tried to explain to the cops that he did pay his fare.

[Prof Nisreen Alwan 🌻 @Dr2NisreenAlwan]

People with LC can feel well some of the time. It doesn’t mean they’re cured. There needs to be better awareness of this by:
-family & friends
-doctors, nurses, physios & other HCP
-employers
-researchers (assessing LC at one point in time is limited, need longitudinal data).3/3

[Prof Nisreen Alwan 🌻 @Dr2NisreenAlwan]

Sometimes the trigger for the relapse in known (like physical or mental exertion or sleep disturbance) and sometimes it’s not. This relapsing and often unpredictable nature makes it hard to plan life and work effectively. Patience & understanding is needed. 2/3

[Prof Nisreen Alwan 🌻 @Dr2NisreenAlwan]

#LongCovid is a condition that doesn’t remain constant all the time in most who have it. The symptoms come and go (relapsing-remitting) or fluctuate in severity. There are periods when someone with LC can function almost normally but then dip into a relapse that disables them.1/3

[Prof. Akiko Iwasaki @VirusesImmunity]

After many months of planning and hard work by so many (incl. @hmkyale @Dianaberrent @wade_schulz @CharleszYaleMed @Aaronmring @DaisySMassey @JeffGehlhausen), today, we are launching our research study to understand how vaccination may help improve #longcovid. 🧵 (1/n)

Pls RT🙏🏼

[Mirabai Nicholson-McKellar @mirafilm]

Just posted a video @ Byron Bay, New South Wales https://t.co/XDIlc3BfbU

[Mirabai Nicholson-McKellar @mirafilm]

@netostefano Sorry I forget to check Twitter! Unfortunately I still have it. But it is very slowly becoming less intense.

[Mirabai Nicholson-McKellar @mirafilm]

'It feels endless': four women struggling to recover from Covid-19 https://t.co/Plry3HImgk

[Eric Topol @EricTopol]

How long is #LongCovid?
The most extensive symptom assessment and longest duration (7 months) of nearly 3,800 individuals shows how debilitating this is in young, predominantly women, w/ most unable to return to full prior work
https://t.co/o0YUNse1EA @ahandvanish @AthenaAkrami

[Athena Akrami @AthenaAkrami]

AND most importantly, 45.2% of respondents reported requiring a reduced work schedule compared to pre-illness. 22.3% were not working due to their health conditions. Unrecovered ones were impacted stronger (68.9% reported reduced work hrs or not working at all). This is HUGE

23/

[Athena Akrami @AthenaAkrami]

Going back to symptoms, 89.1% of participants reported experiencing either physical or mental Post-Exertional Malaise: "worsening or relapse of symptoms after physical or mental activity" one of the most demoralising features of #LongCOVID

/15

[Athena Akrami @AthenaAkrami]

Did all respondents test + for COVI19? No.
1730 tested negative & 600 tested positive (RT-PCR). Difference? The median number of days between first experiencing symptoms & being tested was 6 days for those who tested + and 43 days for those who tested -.
12/

[Athena Akrami @AthenaAkrami]

88.0% of the total respondents (3310) experienced either cognitive dysfunction or memory loss, with substantial impact on daily life, particularly Work.

These symptoms had similar impacts across all age groups. 6/

[Athena Akrami @AthenaAkrami]

and prevalence estimates for neuropsychiatric symptoms in 9 groups:

-Cognitive Functioning (>85%)
-Memory (>70%)
-Speech and Language (~50%)
-Sensorimotor symptoms (>90%)
-Sleep (~80%)
-Headaches (~80%)
-Emotion and Mood (~90%)
-Taste and Smell (~60%)
-Hallucinations (>15%)

5/

[Athena Akrami @AthenaAkrami]

Prevalence of 205 symptoms in 10 organ systems was estimated, with 66 symptoms traced over seven months. We had special focus on neurological/psychiatric symptoms (calling them neuropsychiatric)

Here's symptom prevalence estimates for non-neuropsychiatric symptoms. 4/

[Athena Akrami @AthenaAkrami]

And here is the preprint: "Characterizing Long COVID in an International Cohort: 7 Months of Symptoms and Their Impact"

Special thanks to thousands of you who participated in our study on #LongCovid.

a thread 🧵 0/

https://t.co/uPmvuBBFRg

[Paul Garner @PaulGarnerWoof]

BBC News report covid illness>100 days and fatigue #longcovid #covid-19 #lstm

[Paul Garner @PaulGarnerWoof]

We need stuff now! #covidlong some #COVIDー19 long haulers find cfs/ME pacing methods prevent relapse https://t.co/urqzJKsCca @LSTMnews