Dee Sunyata

Former solicitor, psychologist and federal parliamentary adviser; now disability pensioner with Myalgic Encephalomyelitis.

[Dee Sunyata @deesantoshi]

@DougMichaelides @PutrinoLab @StacieBOttawa Like anything, PEM can be mild, moderate or severe. Mild is very inconvenient. Moderate is very disabling. Severe is a torturous hell, and can be life threatening (ie when you're unable to move or speak for hours or days).

#MECFS

[Dee Sunyata @deesantoshi]

@PutrinoLab Putting heart - along with intellectual rigour and personal integrity - back into medical science. Thank you.

[Dee Sunyata @deesantoshi]

When @PutrinoLab and @davidtuller1 collaborate... we can have hope that eventually intellectual rigour will win out over the small minded self-interest of lesser minds.

[davidtuller @davidtuller1]

Some thoughts on this issue of citing PACE favorably: https://t.co/pRqkiacokC

[Dee Sunyata @deesantoshi]

@MMissingAus @PutrinoLab @RACGP @RACGPPresident @amapresident @healthgovau @Mark_Butler_MP In fact, he has stated " Prescribing GET should be seen as malpractice".

As a former lawyer, I say: sue, sue, sue. Bring on the Class Actions against those who still promote and condone GET.

@RACGP
@RACGPPresident
@drkerrynphelps
#MECFS

[Dee Sunyata @deesantoshi]

@DougMichaelides @PutrinoLab @StacieBOttawa PEM is exaccerbation of symptoms and disability after exertion. A good resource is the website ME-pedia.

[Dee Sunyata @deesantoshi]

@JustineGSwaab @PutrinoLab ND ppl have long been recognised* as over-represented among those with chronic post-infectious syndromes. Long Covid is nothing special... just the latest form of ME/CFS and POTS (in most cases).

*by those of us who pay attention

[Dee Sunyata @deesantoshi]

"Prescribing GET must be seen as malpractice"

As I've been saying for years.

#MECFS
@RACGPPresident
#LongCovid

[Putrino Lab @PutrinoLab]

Exercise harms people with PEM. Prescribing must be viewed as malpractice. To all the doctors who come at me because they’ve mindlessly prescribe exercise as “the best medicine” for everyone, or the allied health bros (/lady bros) who have worked with a sport team or a famous 16/

[Dee Sunyata @deesantoshi]

Best. Post. Ever.

@PutrinoLab makes me proud to be Australian.

[Putrino Lab @PutrinoLab]

I’ve been quiet on this platform this week as I had the privilege and singular honor to be invited to a very remote location in Kenya, working with the Maasai people to better understand their physiology. Why am I telling you this?
1. Because it is objectively awesome
1/

[Dee Sunyata @deesantoshi]

@PutrinoLab You make me proud to be Australian.

The quality of life of millions of people will benefit from your courage in calling out the arrogant ignorance and intellectual laziness of most of the world's medical practitioners.

Thank you

[Dee Sunyata @deesantoshi]

Yep. PEM (ie #MECFS ) is a clear contraindication for GET.
Hello Cochrane Review?
@RACGPPresident
@RACGP
#LongCovid

[Long COVID Physio @LongCOVIDPhysio]

Graded exercise therapy should not be recommended for patients with post-exertional malaise #PEM / post exertional symptom exacerbation #PESE @NatRevCardiol

#ME #MECFS #LongCOVID @FvRhijn

https://t.co/BfB3twWOsG

[Dee Sunyata @deesantoshi]

@lion_peacock Done ✔️

[Dee Sunyata @deesantoshi]

This is the best thing we've seen on post-infectious syndromes from @abcnews When will they require Norman Swan to acknowledge he's been *scientifically wrong* for years & ME/CFS is the real & serious illness it's been recognised as *years ago* in the US & UK?

#MECFS #LongCovid

[Hayley Gleeson @Hayley_Gleeson]

we might be starting to talk more about how long covid is decimating people’s health, ability to work and exercise etc. but there’s almost no discussion in mainstream media about how it’s affecting relationships.
tldr: it’s ripping them apart
https://t.co/TenJ4iAhre

[Dee Sunyata @deesantoshi]

@PutrinoLab @julierehmeyer Yep a classic - essential reading re medical misogyny and the men who's arrogance and ignorance so vastly exceeds their intellectual integrity.

Thank you for all you do @PutrinoLab

[PoTS UK @UKPoTS]

Today is ⭐️#PoTSAwarenessDay⭐️

Please share our ‘10 facts about #PoTS’

Thank you to everyone who has joined us today in helping to raise awareness 💜

Please find the PDF for this information sheet here: https://t.co/4SLRjpPiyq

#MedTwitter #NurseTwitter #TeamGP #MedEd #MECFS #LongCovid @DrNighatArif @DrNeenaJha @nursekelsey @Richard_GP

[Dee Sunyata @deesantoshi]

My friend Andy in England, a pwME, has made a few recordings of guided meditations for pwME. The imagery is designed to invite better regulation of our bodily systems. #MECFS

https://t.co/8Nb9es4IU2

[Dee Sunyata @deesantoshi]

@itmePZ Yep, good to document his long standing record of promoting an anti-science position.

[Dee Sunyata @deesantoshi]

@Not_Recovered Welcome to the club.

[Dee Sunyata @deesantoshi]

@EmergeAus What is Emerge doing about Norman Swans campaign of disinformation the ABC? Has Emerge written to the ABC chair? If not why not?

[Dee Sunyata @deesantoshi]

@itmePZ Myalgic Encephalomyelitis is not "chronic fatigue".