@DougMichaelides@PutrinoLab@StacieBOttawa Like anything, PEM can be mild, moderate or severe. Mild is very inconvenient. Moderate is very disabling. Severe is a torturous hell, and can be life threatening (ie when you're unable to move or speak for hours or days).
#MECFS
When @PutrinoLab and @davidtuller1 collaborate... we can have hope that eventually intellectual rigour will win out over the small minded self-interest of lesser minds.
@JustineGSwaab@PutrinoLab ND ppl have long been recognised* as over-represented among those with chronic post-infectious syndromes. Long Covid is nothing special... just the latest form of ME/CFS and POTS (in most cases).
*by those of us who pay attention
Exercise harms people with PEM. Prescribing must be viewed as malpractice. To all the doctors who come at me because they’ve mindlessly prescribe exercise as “the best medicine” for everyone, or the allied health bros (/lady bros) who have worked with a sport team or a famous 16/
I’ve been quiet on this platform this week as I had the privilege and singular honor to be invited to a very remote location in Kenya, working with the Maasai people to better understand their physiology. Why am I telling you this?
1. Because it is objectively awesome
1/
@PutrinoLab You make me proud to be Australian.
The quality of life of millions of people will benefit from your courage in calling out the arrogant ignorance and intellectual laziness of most of the world's medical practitioners.
Thank you
Graded exercise therapy should not be recommended for patients with post-exertional malaise #PEM / post exertional symptom exacerbation #PESE@NatRevCardiol#ME#MECFS#LongCOVID@FvRhijn
https://t.co/BfB3twWOsG
This is the best thing we've seen on post-infectious syndromes from @abcnews When will they require Norman Swan to acknowledge he's been *scientifically wrong* for years & ME/CFS is the real & serious illness it's been recognised as *years ago* in the US & UK?
#MECFS#LongCovid
we might be starting to talk more about how long covid is decimating people’s health, ability to work and exercise etc. but there’s almost no discussion in mainstream media about how it’s affecting relationships.
tldr: it’s ripping them apart
https://t.co/TenJ4iAhre
@PutrinoLab@julierehmeyer Yep a classic - essential reading re medical misogyny and the men who's arrogance and ignorance so vastly exceeds their intellectual integrity.
Thank you for all you do @PutrinoLab
My friend Andy in England, a pwME, has made a few recordings of guided meditations for pwME. The imagery is designed to invite better regulation of our bodily systems. #MECFS
https://t.co/8Nb9es4IU2