@tvlicensing https://t.co/molmGaxsdk has been down for weeks. My 41yo husband died 2mths ago & I need to reduce outgoings so I can continue caring for our children. I have no reason for a tv licence as I use no live services or iplayer. I need you to stop sending threatening letters.
Glioblastoma kills 9 out of 10 people within 2 years. Survival rates have not improved meaningfully in 20+ years.
My husband lays dying now. We worked our ass’s off for the last 12mths to find anything to help. People deserve better.
@wesstreeting@Jeremy_Hunt@SteveBarclay
My partner has #Glioblastoma
Surgery is the only thing that’s changed outcomes in decades. Outside of that, the UK offers the same ineffective treatments.
He is dying NOW. He deserves the Right to Try new options.
#GBM#BrainCancer@SteveBarclay@DHSCgovuk
If you are a doctor, researcher, survivor, or know of anyone who has beaten the odds — PLEASE reach out. If you have influence, please share. Our children need their dad. #GBM#BrainCancerAwareness
My partner has #Glioblastoma (Grade 4, IDH wildtype, MGMT unmethylated) — we’ve done surgery, chemo, hyperthermia. He’s now declining. We cannot give up here. @MakisMD what else can we try? Who can help us NOW? Please RT. Time is life. #GBM#BrainCancer#Help
We’ve pursued every treatment offered + researched alternatives ourselves. We are willing to try innovative approaches — targeted therapy, repurposed drugs, trials, off-label protocols — but we need urgent guidance before it’s too late.
He’s 6 weeks post-op from 2nd surgery. Chemo + escalating hyperthermia completed. Speech continued to worsen. Weakness, shaking, fatigue & eventually severe pain & seizures. Medical team says “he’s recovering” — but they cannot help him anymore
@MakisMD my partner has GBM. X2 surgeries within 7mths & not stopping. No more chemo is offered or working. Left temporal lobe, causing seizures & pain currently under control. I have ivermectin & mebend - do we go hard??? Similar case studies??? Please help🙏🙏🙏
@CaseyVallett@Siobhain_Mc Thank you! I am working so hard to try and move the needle even a tiny amount so that he might have more time with our children. I hope you are not affected by this but if you are I am sending prayers your way too. We are doing combination therapy at the moment. 🙏
@RDEmandG @elonmusk Thanks for this. We have looked into this but his type of tumour has a very low expected response to DCVax. It is such a large amount of money with a poor expected result. We hope to find something more suitable but there is not much out there.
Hi @elonmusk this is a long shot, but I’ve heard you’re a good problem solver & I have a hard fuckin’ problem. Have you heard of glioblastoma? I truly hope you are never affected but of you can land a rocket back on earth I reckon you can sort this.
@MakisMD@MakisMD can you tell me what your recommendation would be for someone diagnosed with the most aggressive version of glioblastoma? We want to work quick and smart. Need all the help we can get. 🙏
@MakisMD@MakisMD are you able to contact me directly. I would very much appreciate your guidance for my fiance who has glioblastoma. He has a very poor prognosis and we are fighting very hard to move the needle for him so he has more time with his children 🙏
@WhiteHouse@POTUS Seeing brain cancer trending makes sufferers feel less alone and lost. More needs to be done. I am not sure if @POTUS@elonmusk@RFK_JR_ have cut US cancer spending but surely with @elonmusk on board these are solvable problems. For all the charity and research cancer is winning
@ljamaral1 Love this. My fiance is fighting GBM right now and is working hard on keto diet. Unfortunately in the UK it is not an accepted treatment and rather we are encouraged to ‘eat what you want’. If you can offer any guidance on diet we would be so grateful 🙏
Thank you @ProfRAScolyer for being such a huge inspiration for everyone fighting for a cure for Glioblastoma Brain Tumours! Your treatment is such a force for progress. Trials @ucl@uclh under Dr Paul Mulholland open in May in memory of my late sister Margaret!