The data governance model of #IDEA4RC is based on
1⃣ ethical and legal requirements for the secondary use of #HealthData within the #EU
2️⃣main barriers and incentives IDEA4RC stakeholders could face in joining the platform
@europrivacy#RareCancers#EHDS
👉https://t.co/4kHTVjT75l
#IDEA4RC will focus on two families of #RareCancers: head and neck cancers and sarcomas. If you want to know more about what kind of questions the #data ecosystem will try to answer, have a look at our deliverable on the selection pilot projects #EHDS
👉 https://t.co/zVKMfUk5m5
#IDEA4RC welcomes the news that the Council of the EU and the European Parliament reached an agreement on the #EHDS.
We're glad to help explore new ways to re-use #health#data to enhance our knowledge on #RareCancers and improve the quality of care for #patients.
#IDEA4RC stakeholders have diverse and evolving values. Following them is crucial to make this #RareCancers#Data ecosystem impactful.
@ClaudiaEgher and @susanvanhees @UniUtrecht set out to follow these values and traced three implementation scenarios.
👉https://t.co/mDum81nn6g
In the 3rd scenario, #IDEA4RC users could include also #patients, public health agencies and regulatory bodies. Participants points out that the interface for patients’ access to the ecosystem should be different from that of clinicians and researchers and very carefully designed
Participants also highlighted the importance of building reliable quality indicators for data generated by #NLP models within #IDEA4RC ecosystem in order to generate #trust among #researchers and #clinicians
#IDEA4RC members are participating to the second co-creation workshop organised by @UniUtrecht group and conducted by @ClaudiaEgher. They are discussing the three implementation scenarios identified for the #rarecancers#data ecosystem
Nonostante l'allineamento ai valori raccomandati da @WHO sia stato spostato al 2035 il risultato della votazione odierna, non scontato, è un’ottima notizia per il diritto dei cittadini europei a respirare aria pulita!
Ottime notizie da Strasburgo!
@Europarl_EN ha appena approvato la seconda miglior opzione per #AAQD (Ambient Air Quality Directive) tra quelle discusse!
10 µg/m3 per PM2.5
20 µg/m3 per NO2
entro il 2030
5 µg/m3 per PM2.5
10 µg/m3 per NO2
entro il 2035
(1/2)
In Turchia la battaglia ambientalista per salvare la foresta di Akbelen, che il governo vorrebbe abbattere per far posto a una miniera di carbone. Lacrimogeni e idranti contro la popolazione.
Yesterday we started the second plenary #meeting of #IDEA4RC in Venice to share updates on the work done in the first months. The meeting is organised within the second @PrivSymposium. Here is the agenda of our meeting https://t.co/QiRaPHaG9E
Prevenzione dei conflitti armati e promozione della pace e del disarmo: un nostro dovere professionale | Epidemiologia&Prevenzione https://t.co/BfH9Gbw5Ri
"La guerra ha svelato che il fattore più critico è l’assenza di un’ipotesi forte, alternativa, motivata, documentata di pace. " » https://t.co/FEGtZBkl0A