themnddiaryproject

Listening to stories of people living with Motor Neurone Disease to help improve future healthcare. Monitored 8-4 weekdays.

[Prof Jenna Gregory @jennagregory488]

🔥🚨PhD position available🚨🔥
Interested in the gut-brain-axis? Want to contribute to #MND #ALS research? Want to come and join our team? Get in touch - informal enquiries welcome 🤗🤓

Supervisors:
@jennagregory488, @NEAnatomist, @MathewHHorrocks
https://t.co/dk4UyORRQs

[OfficialCAHPR @OfficialCAHPR]

We are recruiting more CAHPR/@NIHRresearch Champions!

Are you an AHP interested in Research and Innovation?

We are recruiting to fill roles in several Clinical Research Network (CRN) areas.

Role description: https://t.co/TrMBfF1ep1

[Jennie Starkey @StarkeyJennie]

PATIENT FELLOW https://t.co/ndatNgxsry

[MND Association | Northern Ireland @mndassocNI]

In January, we'll be holding at event aimed at improving care for people living with #MND in #NorthernIreland.

If you want your MLAs to be there - please invite them today!

Using this tool it just takes a few clicks ⬇️
https://t.co/sJkrxTV4j2

[themnddiaryproject @mnddiaryproject]

@mndresearch Apologies if it's been done already and I've missed it but I'd love to read a blog post from the people living with MND/ALS who attended the symposium

[themnddiaryproject @mnddiaryproject]

Bit chilly on the walk into work today @StirUni

[themnddiaryproject @mnddiaryproject]

@preston_jenny thank you.

[themnddiaryproject @mnddiaryproject]

Morning everyone, I'm looking for healthcare professionals based in the UK who care for people living with #MND to take part in an online focus group as part of the project. Please RT, DM for info or contact me via the blog https://t.co/AnCSVnoyyJ
@mndresearch @MNDScotland

[themnddiaryproject @mnddiaryproject]

Morning everyone, I'm looking for healthcare professionals based in the UK who care for people living with #MND to take part in an online focus group as part of the project. Please RT, DM for info or contact me via the blog https://t.co/AnCSVnoyyJ
@mndresearch @MNDScotland

[Centre for Healthcare and Community Research @CH_e_CR]

Catch up on our latest news:
Investigating ‘coping’ among people living with #MND @nicola_glennie Life with an indwelling #catheter @suzhagen PhD success on #antidepressant prescribing https://t.co/henhscqD0H

[themnddiaryproject @mnddiaryproject]

I'm looking for family/caregivers of people living with #MND in the UK, who would be willing to share their experiences of coping with the challenges MND has brought into their lives. Either in an online group or an individual interview with me. DM for info. Please share.

[themnddiaryproject @mnddiaryproject]

@_bethburgess @AcademicChatter Hi Beth, I've been thinking about this in my work. Sorry can't think of any papers right now. I think these terms are misleading. Perhaps what we should be doing as researchers is shifting the ways we communicate with people to better meet their normal ways of communicating

[Eat Your Catfish | documentary @EatYourCatfish]

Happy to announce we'll be at the @leedsfilmfest Nov 10 & 11, as part of the Disability Futures section with a panel discussion following the first screening.

[themnddiaryproject @mnddiaryproject]

Thanks @mndresearch for the opportunity to tell people about our research. @Emma___France @FionaHarris6 @StirUni @UniWestScotland

[MND Research @PremiumXRemark]

Over on the blog today @nicola_glennie talks about her research into the experiences of people living with #MND and factors which may contribute to them feeling a lack of control. She also discusses how her work could improve future care.

Read more ⬇

https://t.co/uN3RGUtf8k

[themnddiaryproject @mnddiaryproject]

https://t.co/jcYzOeLqfp
For those near Stirling @EatYourCatfish showing at @Macrobert at @StirUni on 5th Nov. It's good to see people living with #MND #ALS telling their stories in their own words. I've not seen the film but I imagine it will be emotional viewing. @MNDScotland

[The Neurological Alliance @NeuroAlliance]

Can you help us reach 11 new people today? 11 friends? Pls share this petition link & encourage others to sign as we continue to call on UK governments to create a Neuro Taskforce & improve services for everyone with a neuro condition #BackThe1in6 https://t.co/bvI1EUj5Qx

[MND Scotland @MNDScotland]

📢 Today we have launched our MND: What Matters survey across Scotland.

We want to hear your #MND experiences to help shape our work and how we develop as a charity.

https://t.co/HHN7SlwHtH

[MND Campaigns @mndcampaigns]

Our friends at @EuansGuide are running their 2022 Access Survey.

The survey asks disabled people what's good and not so good about access at places they visit & raise awareness of access needs.

If you are living with #MND, please consider taking part ⬇️
https://t.co/LpRiGX7g7R

[themnddiaryproject @mnddiaryproject]

I'm looking for people who care for someone living with #MND who may be interested in taking part in research. Either in a group session or an individual interview to tell me about their experiences of coping with the challenges MND brings to life. Message for more info.

[MND Campaigns @mndcampaigns]

Do you live in #Wales or know somebody who does? 🏴󠁧󠁢󠁷󠁬󠁳󠁿

Invite your Senedd Members to our event where they will hear first-hand from people living with #MND and why access to timely home adaptations is so important.

Act now ⬇️
https://t.co/OxiMAzEK2g @mndassocWALES

[themnddiaryproject @mnddiaryproject]

@mndresearch Thank you for sharing. I'm also looking for family/carers of people living with MND share their experiences on coping with the challenges MND has also brought to their lives. This can be either in a group session or as an individual interview with me. DM @mnddiaryproject for info