@Rachel_deSouza I applied for an EHPC for my son to help with his transition to high school. This was 2 years ago.
Children need the right adjustments and support to thrive.
@Rachel_deSouza What would also help is a reduction in the EHPC backlog. I won at tribunal, the Court order my LA to assess in 2 weeks it took them 4 month. They assessed in June 2024. Still waiting on the draft EHPC for my son who is ADHD, dyslexic, EDS.
@BendyBrain@mrc@MQmentalhealth @VersusArthritis @BSMSMedSchool Anyway without a life story I think that the hypermobility could be impacting the PCS, or rather my neuro differences ADHD dyslexia - would a diagnosis help?
@BendyBrain@mrc@MQmentalhealth @VersusArthritis @BSMSMedSchool Thank you, for this research. I donโt have a diagnosis of hypermobility just have been told by pilates teacher I am and when I contacted EDS I think I could definitely be. Currently off work with Post concussion- am reading lots. Have always suffered with my balance
@jvsimmonds01@BendyBrain@TheEDSociety Thank you, from a hypermobile individual struggling to recover from a head injury. I have been thinking a lot about this and how my nervous system feels as though itโs shut down.
@BethRigby So helpful in a cost of living crisis. It totally beggars belief, for individuals such as myself with a variety of conditions ADHD, ASC, hypermobility, hearing impairment etc - each requiring a differing medical practitioner- how??? Insurers may offer cover excluding conditions
@Ste_Ward@Podfoliouk Plus my son plays rugby for Roundheigans his best mate had 2 head injuries in quick succession like you. With concussion. Thank you I m going to send him your videos. As a Leeds lass I do really appreciate what you are doing. Very proud ๐
@Ste_Ward@Podfoliouk Bone not bond, I m sure you have and I m also sorry as I hAvent listened to pod as really suffering with concentration tinnitus, dizziness nauseous
@YoungMindsUK Get outside it helps releasing good chemicals in your brain - try sitting in the garden or just on the steps of your house, flat. Try a little further each day. Find one thing whilst you are out which you are grateful for, the sun, birds, the wind rain just one!
@KarynRN4@jdibon @DrRagsToRxs Yep I know about medication I was put off when the psychiatrist who diagnosed me said โwhy would you try medication? Donโt you want to be normal?โ Answer was NO I like being me!!!! Anyway lost the opportunity and now waiting times massiveโฆ
@KarynRN4@jdibon @DrRagsToRxs Guessing you arenโt UK based as speaking to GP (if you can actually get through and get an appointed) = 3 year waiting list ๐คช (please note I ๐ฏ % love the NHS and the heroโs working in it. Itโs just broken ๐).
@KarynRN4@jdibon @DrRagsToRxs How do you control ADHD? Interested in this as just accepted it was part of me I manage through running and Pilates for hyper mobility problems etc