maryrose tarpey

Tweets mainly related to work as a @LindAlliance Adviser and public involvement in other health projects

[IIH UK @IIHUK]

We’ve added an important message to the latest news section on our website today regarding the IIH Intervention trial.
https://t.co/qQZ3o3XIZ2

[Financial Times @FT]

The ‘gender health gap’ shortens lives and costs billions https://t.co/XEdwtfNlKO | opinion

[Laura O'Connor @Laura_OConn]

Great to present our recent @pmrycaretrials1 priority setting work with the @LindAlliance at #UKSBM2024 today in Glasgow - if you're looking for our top research priorities for managing chronic conditions in primary care, visit https://t.co/P0I8zHP5DL

[Cambridge Econometrics @CambridgeEcon]

Funded by Balvi, our macroeconomic modelling experts have partnered with Professor @ruairidhm to draw on the latest evidence unpacking trends in prevalence, effects on the ability to work and the costs of #LongCovid treatment in the UK by 2030. 3/4

[DrDr (😊)Wendy Mitchell @WendyPMitchell]

This is Sarah and Gemma, Wendy’s daughters. Our mum died peacefully early this morning. She wrote a blog post before she died so you can read about it from her perspective.
Sarah and Gemma

https://t.co/PgQCUFKK6H

[Ror Preston @RorPreston]

Wanna know who's doing what in the world of #LongCovid & #MECFS? 🧐

Here are our databases, currently maintained my myself & @Michaeltikus 👇

Have an area you particularly care about? Please drop me a message & contribute! 🙏

https://t.co/WwXOjQ93yz

[Alan Simpson 💙 @cityalan]

Latest new research paper from @MentalHealthPRU led by @KSaundersKCL on trauma-informed care https://t.co/fIE8p0MXRX

[Stephen Griffin @SGriffin_Lab]

Couldn't clip the whole thing, but anyone doubting the impact of #LongCovidKids just needs to listen to how brave Freya is, but also how sad 💔
Heartbreaking. We need to do so much more.
Thanks @jamiecoulsontv and @BBCLookNorth for highlighting this incredibly important issue 🙏

[FT Work & Careers @ftworkcareers]

Opinion: I now have a side hustle, writes the FT's @greenmiranda. But it turns out it’s a job nobody wants - dealing with the admin that follows a bereavement https://t.co/L4DsGJD84i

[HRB PrimaryCare CTNI @pmrycaretrials1]

Thanks @galwayad for covering our priority setting partnership! We're excited to hear what questions the people of Galway have for future research into managing chronic health conditions - visit the link at the end of the article to add your thoughts

https://t.co/JVMRkDtwIj

[Dr. Alice Sibelli @AliceSibelli]

The Top 10 Research Priorities for #ibs have been identified by listening to the voices of patients, families and HCPs. I have no doubt this important work will impact the future of IBS research and, in turn, improve the quality of life of people with IBS @GutsCharityUK

[HRB PrimaryCare CTNI @pmrycaretrials1]

Does you or someone your care for manage chronic health condition(s)?
Please complete and share our @LindAlliance priority setting partnership survey at https://t.co/I6erjthi5F

[HRB PrimaryCare CTNI @pmrycaretrials1]

Now live - our first @LindAlliance survey!

Help us discover and rank the top priorities for research in primary care management of chronic conditions that really reflect the needs of those most affected - full info and our 2 min survey can be found at https://t.co/I6erjthi5F

[Rob Brierley @Rob__Brierley]

The top 10 research priorities for #IBS include questions around how the classification of IBS (beyond change in stool form/frequency) should be approached in clinical trials + the best treatment(s) for symptoms such as faecal urgency, abdominal pain & gut sensitivity

#gitwitter

[The Lancet Gastroenterology & Hepatology @LancetGastroHep]

New Comment - Black et al - Top 10 research priorities for #irritablebowelsyndrome: results of a James Lind Alliance priority setting partnership

https://t.co/rtNtn7IOrk

#IBS #GITwitter @GutsCharityUK @BritSocGastro @DrCJBlack @alex_ford12399 @LindAlliance

[Alexander Ford @alex_ford12399]

After a rigorous 18 month process the results of the @GutsCharityUK and @LindAlliance priority setting partnership into the future of #IBS research are now available here https://t.co/n9BqQ3N6aA

[Tess Harris ((in need of another kidney sadly)) @Elektra]

@mellojonny Chronic pain is complex. The Advanced Pain Discovery Hub aims to understand more about chronic pain, collecting pain data into a data hub resource for research. @Alleviate_Data @painadvantage @CRIISPAPDP

[Dr Jonathon Tomlinson @mellojonny]

Maybe it isn't that chronic pain is hard to talk about so much as it is hard to listen to? How doctors respond to patients with chronic pain https://t.co/kpXkGXMBkW…

[Hope For The Community CIC @HOPE4TC]

Living with #IdiopathicIntracranialHypertension? or care for someone who is? Working with @IIHUK we researched the biggest challenges for people living with IIH are & developed a #HopeProgramme for this condition. Free spaces available - book here: https://t.co/OV3akvSGHl #IIH