Erin Ward

[Erin Ward @mtmwarriormom]

Excited to be a part of #WMS2023 this year as a patient organization representative rep with @MTMCNMFamily & poster presenter with the MTM-CNM Liver Collaborative Working Group. If you are attending, please come stop by our table in the Exhibit Hall and say Hi!

[Erin Ward @mtmwarriormom]

Join the FDA CBER fall RegenMedEd today at 11 am ET. I’m delighted to be joining the speaker panel sharing stories of advocacy from families of individuals with rare disease. Register now: https://t.co/wPte9YFhyb #mtmcnmfamily

[Erin Ward @mtmwarriormom]

Join the upcoming @FDACBER's #RegenMedEd webinar "Warrior Families: Advancing Regenerative Medicine Through Science" Oct 5th 11 am ET

[MTM-CNM Connection @MTMCNMFamily]

Join the @FDACBER's fall #RegenMedEd webinar on Oct. 5 at 11 am ET. Hear inspiring stories of advocacy from families of individuals with rare disease. Register now: https://t.co/bYE6F0RLXc

[Erin Ward @mtmwarriormom]

#WalkforBCH 2023! Grateful for family & friends continuing on in Will’s memory. Will’s Team for the Beggs Lab #StrongWill #Forevah Boston Strong and Research On! 🥰 @Mark_D_Ward

[Erin Ward @mtmwarriormom]

Thanks @downtownkennedy for all your support of BCH being at #WalkforBCH today & interviewing Will’s Team for the Beggs Lab in memory of our son #StrongWill #Forevah @Mark_D_Ward

[Red Sox @RedSox]

Garrett Whitlock would like to welcome you to Deaf and Hard of Hearing Night at Fenway!

[Erin Ward @mtmwarriormom]

Important webinar for the #mtm and #cnm #raredisease community! Come hear about initiatives to better understand liver issues and how you can help accelerate research. April 22nd 10 am ET!

[Erin Ward @mtmwarriormom]

Join @MTMCNMFamily for webinar with @AstellasGeneTx to hear a patient update on AT132 #genetherapy for #XLMTM #MyotubularMyopathy

[MTM-CNM Connection @MTMCNMFamily]

Please join us for this upcoming webinar: https://t.co/JpLdf43exC #mtmcnmfamily

[Erin Ward @mtmwarriormom]

Thank you #TNMD2022 for a wonderful conference!

[MTM-CNM Connection @MTMCNMFamily]

Excited for MTM-CNM Family Connection to be participating in @TREAT_NMD 7th International Conference, bringing together researchers, medical professionals, industry, advocacy leaders, patients & families to accelerate therapies neuromuscular conditions. #tnmd2022 #mtmcnmfamily

[Erin Ward @mtmwarriormom]

Please see grant call for research investigating liver abnormalities for MTM. Thank you @myotubulartrust

[MTM-CNM Connection @MTMCNMFamily]

Join @US_FDA #RegenMedEd virtual webinar on Oct. 27 to learn how to organize, execute, and participate in #NaturalHistoryStudies. Hear first-hand experiences from researchers, patients, and advocates. Free & open to the public. #CBER #OTAT Register: https://t.co/12JK2G1UXL

[Erin Ward @mtmwarriormom]

Grateful for the opportunity to contribute a patient-family commentary for Gene Therapy Special Issue of Clinical Therapeutics. https://t.co/ywAXpTMsG9
#patientfocused #drugdevelopment #PatientFamilyVoice #raredisease #genetherapy #Fda #myotubularmyopathy #mtmcnmfamily

[Erin Ward @mtmwarriormom]

Excited to be invited by @ASGCTherapy to present Centering the Patient Voice #PolicySummit-leading event for regulatory policies impacting #genetherapy & #celltherapy Attend in person or virtually! https://t.co/0m3DLkZwvA #patientengagement #RareAdvocacy @MTMCNMFamily

[MTM-CNM Connection @MTMCNMFamily]

Happening tomorrow-Aug 3rd! Come hear incredible individual & family stories helping to put the patient voice front & center in drug & therapy development!

[Erin Ward @mtmwarriormom]

#XLMTM #XLinkedCarriers #mtmcnmfamily #notjustcarriers @MTMCNMFamily @remember_girls

[Erin Ward @mtmwarriormom]

Will’s Team for the #BeggsLab doing the 2021 #WalkForBCH 16 years Strong #BostonStrong #ResearchOn #StrongWill #Myotubular #Myopathy #XLMTM

[Erin Ward @mtmwarriormom]

We #WalkForBCH #StrongWill Team for #BeggsLab #BostonStrong #ResearchOn #MyotubularMyopathy #XLMTM @MTMCNMFamily @Mark_D_Ward

[WillCure @willcuremtm]

Register Today! @MTMCNMFamily @willcuremtm
https://t.co/u10g2wQKVG
#myotubularmyopathy #mtmcnmfamily #willcuremtm
#accesstotreatment4all

[Erin Ward @mtmwarriormom]

Thank you @MPS_MethuenHigh for supporting Will #StrongWill and his advocacy efforts for #RareDiseaseDay2021

[Methuen High School @MPS_MethuenHigh]

We are so proud of our student Will Ward for his efforts to spread awareness about Myotubular Myopathy and Rare Disease Day, Sunday, February 28, 2021.

Way to go, Will!

#RareDiseaseDay2021

https://t.co/fD6ohfBE7U

[Erin Ward @mtmwarriormom]

So proud of my #StrongWill #mtmwarrior #RareDiseaseDay #RDD2021 #FDA #PatientAdvocate #mtmcnmfamily #CareAboutRare #MyotubularMyopathy #RareDiseaseStories

[U.S. FDA @US_FDA]

Will Ward has a rare disease called X-linked Myotubular Myopathy, or MTM. Watch this video to hear Will's story, and register to attend FDA's Rare Disease Day 2021 virtual public meeting to learn more about rare diseases: https://t.co/Hnn14a3HL4 #RareDiseaseStories