scientist and MD, aiming to bring novel strategies to fight kidney disease from basic research to the clinic with a focus on dietary and metabolic interventions
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🚨 Big news from our Genes&Kidney Working Group at the @ERAkidney
We just released a consensus statement in Nephrology Dialysis Transplantation aiming to bring us closer to precision medicine in CKD. 🧬🩺
🧵 THREAD 👇
A recent survey study performed by the @ERAkidney WG Genes&Kidney addresses this question and highlights how current recommendations are implemented in real-world care.
https://t.co/P71cFBzmzi
The fact that primary hyperoxaluria is the first kidney disease for which an RNA therapeutic has become available is a milestone for the field.
How does this change the treatment landscape? 🧵
🧵🧪 STOP-PKD study | Expanding recruitment across Europe : https://t.co/OntDB0Jp8z
The STOP-PKD study continues to expand, marking an important step forward for ADPKD research in Europe.
I usually think twice before posting preprints. But this time it’s different.
MEDA-PKD is the essence of our work over more than a decade — and, to me, one of the most meaningful contributions I’ve been able to make to biomedical research.
🧵
Huge thanks to all collaborators, clinicians, study nurses, researchers, data scientists — and especially the patients contributing to this effort.
@UKKoeln@UniCologne@CECAD_@PKD_Int
More broadly, MEDA points toward:
➡️continuously learning health systems
➡️real-time translational research
➡️scalable precision medicine infrastructures
📄Preprint:
https://t.co/HBRvDzhSDD
🖥️ Live dashboard:
https://t.co/Edesmi4tLI
First results of the growing interaction between the Nephrology Research Units at Uniklinik Köln and Universitätsklinikum Düsseldorf.
Urine Proteomics as a Source of Biological Information and Outcome Pre... https://t.co/t8XMAajDKC
🧵 We are pleased to announce that the UMCG Universitair Medisch Centrum Groningen in the Netherlands is now officially accredited as a trial site for the STOP-PKD Study.
🧵 4/4 Help shape the future of #ADPKD research in Europe 🔬 - make your voice count!
📲 Take part now:
https://t.co/aHBWz9PgNc
🗣️ Every response strengthens the patient voice. Thank you! 💛
@FLAVIAZH@MuellerRom@UKKoeln
@ArevaloGoJairo@UKKoeln@UniCologne Essentially we do not know yet if carb restriction works. The ketogenic diet-adpkd study was promising… but we lack a large phase 3 like trial and are currently trying to obtain funding for this
🧵🧪 Important recruitment update on the STOP-PKD study (1/6)
We are very pleased to share a significant update on the #STOP-PKD study, an important European research initiative for people living with #ADPKD.
🚀 STOP-PKD-News!
Das zweite Prüfzentrum in Mainz ist nun offiziell freigegeben. Weitere folgen (DE, NL, ES, AT).
Kann SGLT2-Inhibition das Fortschreiten von Zystennieren positiv beeinflussen?
Infos und Kontakte: https://t.co/6KKGuAQBXp
#STOPPKD#ADPKD@PKD_Int
Inflammation is a driver of disease progression in ADPKD and a potential therapeutic target. In this systematic review, we summarise current knowledge on the role of immune cells.
The Role of Immune Cells as Modulators of Progression in... : Kidney360 https://t.co/xIYu5Yb2PO