A much overdue great day for people with #sicklecelldisease. Now we need to implement these treatments. Safely. Efficiently. Ethically. Equally.
@nascc_org will be here to help!
https://t.co/ZseZkLrQBV
Ahead of #WorldSickleCellDay#WSCD23 we are publishing the first detailed global estimates on the burden of #sicklecell disease
Read it #openaccess https://t.co/pVlWZ6s1G4
The authors show that mortality linked to #sicklecell disease is higher than previously described🧵
This morning, I convened federal partners, agencies, and leaders outside of government for a conversation about Sickle Cell Disease.
By focusing on data quality and collaboration, we can truly make a difference in tackling this complex disease.
Sickle cell trait didn't kill Mr. Miller. Racism did.
As healthcare providers, we have a responsibility to interpret tests in an objective and unbiased manner. Sickle cell trait cannot cause a "sickle cell crisis". Full stop.
@Lachelle_Dawn@ASH_hematology
When there is pain, there is pain.
“Patient has 10/10 pain BUT (vitals,
labs, facial expressions, texting) stops before the BUT.
Listen to the patient, believe the patient, treat the pain
A @UCSFChildrens psychologist, Marsha Treadwell is a trailblazer in research on sickle cell disease. She has led vital studies worldwide that improve quality of life and care for children and adults with the disease. #WomensHistoryMonth
The NCSCC is a historic state-funded initiative that is transforming #sicklecell care. See the clinics and community-based centers that make up the first and only network of adult specialized sickle cell disease clinics here. https://t.co/moXWvmtlBY #SCD
I am an inpatient #hospice doctor providing what is often more intensive comfort-focused care than what is afforded to people in the hospital (that's why my job exists at all). Hospice IS medical intervention, full stop. #hapc
Each year, about 300K babies will be born with #SickleCellDisease worldwide. In the #BayArea, UCSF treats the illness through culturally responsive health care that improves quality-of-life for patients like Christelle. https://t.co/d5Vm8j5jpX
Attention Bay Area #SickleCellWarriors! If you or a loved one are in need of comprehensive sickle cell care, @ZSFGCare, a NCSCC’s participating clinic, is here for YOU. ❤️🏥
@priyaparikhmd I personally prefer non-malignant...classical sort of seems to ignore all the brand new innovative stuff happening! It does make us sound pretty sophistocated though :)
At the forefront of culturally responsive care & innovative research for sickle cell disease is Marsha Treadwell & the @UCSF Sickle Cell Center of Excellence. Read how they’re leading the way to mitigate health inequities related to this pervasive disease: https://t.co/kAnY9GkBQX