National Alliance of Sickle Cell Centers

Official Twitter account of the National Alliance for Sickle Cell Centers. Providing support to centers around the nation in the pursuit of equitable treatment.

[National Alliance of Sickle Cell Centers @nascc_org]

I cannot say enough about the amazing time we spent with @ololhealth last week in a #SCDWorkshop to improve outcomes and management for people living with #sicklecelldisease #SCD The BEST attendance and engagement of anywhere in 2026 (so far)!

[NIH @NIH]

NIH is leading the way in advancing research for sickle cell disease.

Dr. Griffin P. Rodgers’ pioneering research helped establish hydroxyurea as the first FDA-approved treatment for sickle cell disease, reducing pain crises, hospitalizations, and mortality worldwide.

An innovative stem cell transplant regiment, developed by Dr. Rodgers and collaborators at NIH, has reversed sickle cell disease in many patients. Meanwhile, his colleagues’ innovative work in gene therapy is advancing a possible cure for the disease.

We’re proud to celebrate Dr. Rodger’s receipt of the John Phillips Memorial Award for Outstanding Work in Clinical Medicine. https://t.co/uTAOITIVA5

[National Alliance of Sickle Cell Centers @nascc_org]

AUNT study of people living with #sicklecelltrait #SCT making waves at #ASH25. NASCC thanks @BeamTx for funding support.

[National Alliance of Sickle Cell Centers @nascc_org]

#ASH25 great work from the collaboration of @nascc_org and @ASH_hematology with the @UABSickleCell

[IU Department of Pediatrics @IUDeptPeds]

@seethal_jacobmd was featured on Cheat Codes: A Sickle Cell Podcast during a live panel at the @nascc_org along with @PayalDesaiMD @PTMcGann @Andy_Ellner

Listen to the episode, here: https://t.co/yIEZP4i6Ik

[Hemostasis Today @HemostasisToday]

Courtney Lawrence (@CLawrenceMD): Honored to Team Up with BET on Blood at @AABB 2025

@RedCross |@BCAbloodcenters | @nascc_org | @terumobct

https://t.co/jphVesEX77

#AABB2025 #BleedingDisorders #Blood #Health #Hematology #Hemostasis #HemostasisToday #Medicine #Thrombosis #MedEd #MedX

[National Alliance of Sickle Cell Centers @nascc_org]

https://t.co/6JCGS5qdTj

[National Alliance of Sickle Cell Centers @nascc_org]

Excited to be with Dr. Jenkins @SCDAAorg discussing the national recommendations for management of acute pain in #sicklecelldisease
#sicklecellmatters #individualizedcareplans

[National Alliance of Sickle Cell Centers @nascc_org]

We must TREAT pain in #sicklecelldisease quickly and aggressively. We must STOP measuring pain. We need to measure causes of pain (inflammation, hemolysis, adhesion) to measure the effect of new tx. @US_FDA it’s time to use a new endpoint. #TogetherWeCan
https://t.co/jf42SQ4xC5

[Julie Kanter @jkw4444]

@nascc_org and so excited to see a full room of amazing people working to improve outcomes and care for #sicklecell because #sicklecellmatters

[National Alliance of Sickle Cell Centers @nascc_org]

#scklecellcenters2025 #sicklecellmatters

[National Alliance of Sickle Cell Centers @nascc_org]

So excited to see the rooms full of people from #sicklecellcenters working to improve outcomes in #sicklecell. #Nascc2025 #sicklecellmatters

[ISCC @INSickleCell]

The room is full here at the @nascc_org meeting in Stowe, Vermont. Over 300 people in attendance to discuss topics related to Sickle Cell Disease. Looking forward to an exciting week ahead. #NASCC2025 #sicklecellmatters #sicklecellcenters2025

[National Alliance of Sickle Cell Centers @nascc_org]

We are excited about our partnership w/ #Quilthealth. They share our commitment to reimagining how people access healthcare. Our missions align in putting people first, removing barriers, & using technology to drive real change. #peoplefirst #sicklecell #accesstocare

[MaC Venture Capital @MaCVentureCap]

Big news from @QuiltHealth: We raised $6 M in seed funding (led by @MaCVentureCapital) & partnering with @nascc_org to launch a platform that:
🧪 Expands trial access
📈 Boosts patient/provider insights
🧩 Tackles care disparities
Read more: https://t.co/Y2fsWWwI0t

[National Alliance of Sickle Cell Centers @nascc_org]

#EHA2025
Multidisciplinary care is key to improving outcomes in #sicklecelldisease @pfizer symposium
#SCD #HealthCareAccess and #sicklecellcenters are key

[National Alliance of Sickle Cell Centers @nascc_org]

We have to improve #accesstocare by increasing #sicklecellcenters so people living with #sicklecelldisease have #healthcare and #healthopportunies for better #healthoutcomes

[National Alliance of Sickle Cell Centers @nascc_org]

@Kiki_Titer @jkw4444 Not wide enough. We have work to do! #sicklecellmatters

[Hemex Health @HemexHealth]

#RareDiseaseDay2025 highlights unseen struggles of the survivors. #SickleCellDisease, a life-threatening rare genetic disorder, remains underrepresented in research & care.
HemexDx is committed to #earlydiagnosis of SCA. Let’s raise #awareness & drive innovation!

[National Alliance of Sickle Cell Centers @nascc_org]

@lifewithdrbria @cececalhounMD Congratulations @cececalhounMD