MLDA

Malaysia Lysosomal Diseases Association is a non profit organisation advocating for the treatment right and welfare of all Lysosomal Storage Diseases patients.

[MLDA @My_MLDA]

On 2015, 7 LSD children able to start their Enzyme Replacement Therapy (ERT) from the Ministry of Health funds. We also received donations from the organization and public to... https://t.co/XWeJre0v5h

[MLDA @My_MLDA]

Individual with disabilities and rare disorders should claim an equal rights which has been forgotten long time ago. "In budget 2018, RM10million was allocated to patients with rare... https://t.co/0eowGa3UY8

[MLDA @My_MLDA]

We would like to share the latest publication based on the data generated through the IPA/ Erasmus MC Pompe survey.
Together with the International Pompe Association (IPA), the Erasmus University Medical Center (Erasmus MC) based... https://t.co/j5Mhd8yJVk

[MLDA @My_MLDA]

"I'm totally blank and speechless the moment I heard about the result and the doctor explanation. It takes few days for me to realize the realitiness of... https://t.co/lEzL2qfny3

[MLDA @My_MLDA]

Teacher.....a role model who inspires and encaurages us, you shows us your kindness and make me feel loved and cared for..we love you❤❤
Happy Teacher's Day

[MLDA @My_MLDA]

Happy MPS Day to all MPS families!! Never ever feel like your are alone as we are like branches on a tree we grow at different directions yet our roots remains as one. #MPSInternationalDay https://t.co/SKVYSRlr8Z

[MLDA @My_MLDA]

Thanks to KEMENTERIAN KESIHATAN MALAYSIA as with their funding, one of our patient able to get his first Enzyme Replacement Treatment at Hospital Kuala Lumpur. Rayyan, a two years old boy... https://t.co/8uYEJe56SE

[MLDA @My_MLDA]

7 years we fight for our children rights and life, we never stop believing and hoping that one day our children life will change. Now, with the government, organization, and communities help, we able to save another 13 patients. This video shows... https://t.co/xbvgiHnSEP

[MLDA @My_MLDA]

#ijmhighwaychallenge #saveLSDchildren

Thanks to IJM Highway for this event, to the parents that volunteer to create awareness, friends and others. It is an amazing event where we connect with more people. #togetherwearestronger #showyoucare — at... https://t.co/4m61XeTrnU

[MLDA @My_MLDA]

Hi good morning bro’s and Sisters..

After rain there’s a rainbow，
After a storm there’s calm,
After the night there’s a morning,
and after an ending there’s a New Beginning..
Join us at Duo Run today!

Have a nice Sunday 😘😘😘

[MLDA @My_MLDA]

#saveLSDchildren #IJMHighwayChallenge
Hi runners! Please take a look at this itinerary and don't forget to be there early to avoid congestion. You also will meet us at our booth and you can buy our rare disease sticker for RM5 to #showyoucare https://t.co/H0W3vck2Or

[MLDA @My_MLDA]

Today mark another milestone in Rare Disease journey in Malaysia. More than 10 Affiliated NGOs gets together to listen to the formation of Rare Diseases Foundation Alliance of... https://t.co/Z9qxdnA3Ab

[MLDA @My_MLDA]

#IJMHighwayRun #raredisease #saveLSDchildren
Hi runners! Do meet us at Sunway Velocity Mall after you collect your race pack and get our rare disease sticker tattoo to show your support!

[MLDA @My_MLDA]

#saveLSDchildren #raredisease https://t.co/pZuQu3weCx

[MLDA @My_MLDA]

Ardi pesakit tunggal sindrom Sly di Malaysia | Harian Metro https://t.co/SpjNtgxZrp

[MLDA @My_MLDA]

#IJMHighwayRun #saveLSDchildren #racepackcollection Hi Runners! See you there this weekend and dont forget to snap a pic with us. Our angel will also be there to show his support. https://t.co/h0SNzJr8Tk

[MLDA @My_MLDA]

#pompeday #raredisease #saveLSDchildren

Today is the celebration of Pompe's Day! Get to know about Pompe disease and how it affect the patients.

[MLDA @My_MLDA]

https://t.co/8E8SIbCiBl

[MLDA @My_MLDA]

#Seremban2 #saveLSDchildren

The annual IJM Land Run is back! Enjoy early bird fee before 12 August 2018. You will also found a new category of 5km. #runtogetherbondstronger

Date: 12 August... https://t.co/2a46ibVeWY

[MLDA @My_MLDA]

#Seremban2 #saveLSDchildren

The annual IJM Land Run is back! Enjoy early bird fee before 12 August 2018. You will also found a new category of 5km. #runtogetherbondstronger

Date: 12... https://t.co/uDRbuGzEbT