M.E. Australia

Championing change: advocacy, news and collaboration for people with Myalgic Encephalomyelitis and chronic fatigue syndrome #pwME #MyalgicE

[M.E. Australia @MyalgicE]

ME Australia is a collaborative network of people across all states and Canberra, including people with ME, families and others with a close connection to someone with ME. #PWME #MyalgicE #MyalgicEncephalomyelitis #MEAwarenessHour
https://t.co/Y9RtbfiPun

[Eileen 🔊 @TurnItUp4ME]

For International ME Awareness Month, I wish to shine a spotlight on M.E. Australia & Sasha @sashanimmo for their efforts in promoting the ME-IC Primer which educates medical professionals about expert diagnosis (ICC).🧑‍🔬 🩺🌡️🛌🌏📢

[Gabby Klein @GabbyKlein1]

@TurnItUp4ME @sashanimmo Thank you @sashanimmo & @MyalgicE for advocating for #pwME and the ICC criteria. #meawarenessmonth

[M.E. Australia @MyalgicE]

“Graded exercise programs have been shown to be beneficial”. Not true.

“Unwarranted concerns that any physical activity could be harmful may lead you maladaptive attitudes that increase disability”.

These are guidelines used today in Australia.

#pwme #MyalgicEncephalomyelitis

[M.E. Australia @MyalgicE]

@FairlieHall @ElizaCharley Thanks Susan

[M.E. Australia @MyalgicE]

Good to see Australia’s dangerous medical guidelines getting media attention, thanks @alice__rumble & @NataliaHodgins

Here’s what I wrote about the guidelines a few years back.
@EmergeAus @nhmrc @TheRACP @australia_call
#pwME #MyalgicEncephalomyelitis

https://t.co/bQJeVJBcMX

[M.E. Australia @MyalgicE]

The @australia_call petition is extended - please read and consider signing.
#pwme #MyalgicEncephalomyelitis
#MEAwarenessMonth #auspol

[M.E. Australia @MyalgicE]

Here’s the petition anyone around the world can sign.

Please do! Last day today!

Thanks Andrew for all your hard work, and @ElizaCharley
#pwme #MyalgicEncephalomyelitis

https://t.co/tXzeBF1E7j

[Nadine Morton @nadine_morton]

Ella is only 20 years old, but it's been almost four years since her feet have touched the ground. She is unable to lift her head, to sit upright and she's often unable to talk or communicate.
#myalgicencephalomyelitis #northernbeaches
https://t.co/be2MgVVkr1

[M.E. Australia @MyalgicE]

12th May is #MEAwarenessDay all across the globe.

For decades #pwME have been neglected & suffered gaslighting by many doctors & others in the medical field, the community at large, friends & even family.

These are the ‘Facts about #ME in Australia’.👇

https://t.co/Gg1KnczF61

[M.E. Australia @MyalgicE]

The International Consensus Primer for Medical Practitioners is the gold standard for diagnosing #MyalgicEncephalomyelitis. A broad panel of tests (page 11) provides a more robust basis to identify symptom patterns, abnormalities & orient treatment.👇#ME

https://t.co/NplqJI18Ba

[PZ *ME Lobbyist* @pzneedsrest]

@MyalgicE @TheRACP @ceo_nhmrc @nhmrc 🇦🇺 needs new clinical guidelines yesterday. In the interim, please release a formal statement to stop the recommendation of graded exercise and cognitive behavioral therapy as treatments. #pwME deserve better. #MEcfs #MEAwarenessDay #MyalgicEncephalomyelitis

[Jacqz🇦🇺🇬🇧🇨🇾🇬🇷mewarriorau.bsky.social @MEwarrior_au]

#MEAwarenessDay is today, 12th May. For decades, this below has been the plight of people with #MyalgicEncephalomyelitis. It’s beyond time for change, especially with so much biomedical research showing many physiological abnormalities in #pwME. We need far more research funding!

[M.E. Australia @MyalgicE]

On #MEAwarenessDay, let’s highlight the work of advocates who are both very sick and working hard for us. Thanks @australia_call for your petition and submission to the #DisabilityRoyalCommission #pwme #Disability

[Call For Change Australia @australia_call]

Link to the petition: https://t.co/OVlxj2ag5D

[Jacqz🇦🇺🇬🇧🇨🇾🇬🇷mewarriorau.bsky.social @MEwarrior_au]

2022, & this is still the situation in Australia. When will #pwME receive proper medical guidelines, care & treatment, especially from medical professionals?

@TheRACP @RACGP @RACGPPresident @nhmrc @GregHuntMP

[ME Group Australia (Rachel) @MEGroupAust]

Victims of this ignorance are patients, clinicians, #HealthcareSystem, social security, and more. We advocate ME International Consensus Primer for Medical Practitioners (ICP).
#Healthcare #MEcfs #CFSfukuda #MEicc

[M.E. Australia @MyalgicE]

@georgieclairep It means a lot to have family and friends speak up about it, thank you @georgieclairep #MEAwarenessDay #pwme

[ME Foggy Dog @MEFoggyDog]

#May12 #MEAwarenessDay

[M.E. Australia @MyalgicE]

12th May is International #ME Awareness Day. 👇

#MyalgicEncephalomyelitis is a disease that places a huge burden on up to 250,000 Australians & their families. There’s a dearth of meaningful biomedical research funding, & currently no treatment or cure.

https://t.co/k77mxcH26n

[M.E. Australia @MyalgicE]

12th May - #MEAwarenessDay

@TheRACP #ME (#CFS) Medical Guidelines of 2002 are outdated. Recommended #GET is potentially harmful to #pwME, according to biomedical research,& the UK NICE Guidelines.

Expectations for new clinical guidelines in Australia👇

https://t.co/rOdhdlsn29

[M.E. Australia @MyalgicE]

12th May - #MEAwarenessDay

@TheRACP #ME (#CFS) Medical Guidelines of 2002 are outdated. Recommended #GET is potentially harmful to #pwME, according to biomedical research,& the UK NICE Guidelines.

Expectations for new clinical guidelines in Australia👇

https://t.co/rOdhdlsn29

[M.E. Australia @MyalgicE]

12th May is #MEAwarenessDay all across the globe.

For decades #pwME have been neglected & suffered gaslighting by many doctors & others in the medical field, the community at large, friends & even family.

These are the ‘Facts about #ME in Australia’.👇

https://t.co/Gg1KnczF61