One year since ME Australia met with Health Minister @greghuntMP, asking for biomedical research funding & new clinical guidelines.
@MyalgicE invited Alison Hunter Memorial Fdn, Hummingbird Fdn for ME, @emergeaus and Prof Paul Fisher @latrobe. #pwME
https://t.co/yDSsKUJtbh
@ezchili Thanks for the reminder. This is why asking is so valuable! I have vials and needles but have to wait until I can get back into my house. Will swig sublingual until then.
@libbyboone Glutathione IV didnโt seem to help my brain much and unfortunately Iโm now sensitive to it (burning in my veins). Arghhh!
Perhaps I should revisit antivirals.
@itmePZ Thanks for the reminder to get that off the shelf and actually take it.
LDN is great.
Iโve had to move places three times in the last three weeks and Iโm sure thatโs not helping.
@KCSteckel Thanks Colleen, good advice. Vit D is probably what Iโm lackingโฆand acceptance!
Two litres of IV fluids pumped into me a few days ago ๐
@TraceySpicer I wonder if @GregHuntMP thinks of 2019 and hearing me explain my post-viral disease, scientists explain the urgent need for research funding for ME, shaking my hand and assuring me of $9m funding, then only giving $3m.
Instead more and more suffer. #pwME
@madeleinedaisyr This is appalling and yet unsurprising. I hope treatment goes well and you recover quickly and completely. Such a stressful time to be negotiating treatment, hope you have a good support network. Sending you best wishes.