My ALS World

I was diagnosed with ALS / MND in May 2019. I'm 44. he/him. Now part time Software Developer due to #ALS #MND

[My ALS World @myalsworld]

Accurate, very very accurate.

[☔ @Whotfismick]

Me: *search my symptoms on google*

Google:

[My ALS World @myalsworld]

@ScottsFight What is your ALSFRS?

[My ALS World @myalsworld]

Time for a #PoopBucketChallenge

[John Damianos, M.D. @john_damianosMD]

Fecal microbiota transplantation improved respiratory function in two patients with #ALS, allowing for weaning off mechanical ventilation.

#MedTwitter #neurology #microbiome #FMT

https://t.co/RFXMQb0o6C

[My ALS World @myalsworld]

@Whotfismick T2

[Jackson @lifewithALS]

I have started a blog about life with ALS in poetry, please read and share
BRUTAL https://t.co/kCk7du1iPN

[My ALS World @myalsworld]

The ALS problem has been solved ……

…. in mice. 🐁 *sigh*

[My ALS World @myalsworld]

@SteveGMedia 🐁

[Farmstrong @farmstronginfo]

"Of all the neurological diseases that we know of today, #ALS is likely the cruelest & the area in which we have witnessed the least progress in a century of science."
- Dr. Robert Neel, MD, Director, ALS Clinic at the Cincinnati Gardner Neuroscience Institute
#ALSAwarenessMonth

[My ALS World @myalsworld]

@ScottsFight I‘d like to use my XBox Controller 🎮

[My ALS World @myalsworld]

@BrielmaierL 😳

[My ALS World @myalsworld]

Today I have 8 different people coming to my apartment because of my #ALS

What the fuck.

[My ALS World @myalsworld]

@ScottsFight we need this

[My ALS World @myalsworld]

@MartinJ_MND JFC 😳

[My ALS World @myalsworld]

@DaniBeckman @bryan_johnson

[Danielle Beckman @DaniBeckman]

@bryan_johnson Bryan, I challenge you to take a biopsy procedure and give me a tiny piece of your brain. I will look in the microscopy and tell you how old you really are.

[EUpALS @EUpALS]

Top line results of the TUDCA-ALS trial are announced at https://t.co/cAWUyKHqOH.
The study did not meet the primary endpoint and there were also no significant differences observed across secondary endpoints at 18 months. Full results will likely be presented at ENCALS 2024.

[Andrea Pauls Backman (she/her) @AndreaBackman05]

This article beautifully explained what we’ve known for years - #ALS is not one disease. Many drug trials “fail” because of the bluntness of the tools used to measure efficacy. New clinical outcome assessments are underway & have to be validated quickly. https://t.co/YjScM9Emqr

[My ALS World @myalsworld]

@SteveGMedia So how do you get rid of the mucus?

[My ALS World @myalsworld]

@limpbroozkit @salesforce @Benioff @MJSulli @amy_e_weaver I also still work 5 years into disease. It keeps me sane.