In 2022 carers in Scotland saved the public purse £15.9 billion. This is almost equivalent to the Scottish NHS budget (£17.8 billion) in the same year.
It's an astonishing figure, but not one that any of us should be proud of...
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"We should no longer talk about parent/carers of disabled children being "on their knees" or "at breaking point". We should say clearly that 42% have considered suicide as their only way out due to lack of support." Powerful words from academic @Siobhan_ODwyer. @DCPcampaign
🧵1. Adults with learning disabilities are three times more likely to die from missed cancer diagnoses than people without #learningdisabilities. New paper from @lauramckward @deborah_kinnear@Katie_Robb_Glas et al in @BMJ_Open https://t.co/bLv9iuSwzP
@BBCBreakfast Caring for a loved one is lonely and isolating for the whole family. A couple of parent carers set up SupERkid (https://t.co/RHIW8TxcJ6) as no family should be as alone as we are
@sallyephillips@BBCBreakfast@oxygenfreejump My non verbal autistic son with sensory issues wasn’t allowed to bounce as he wouldn’t wear the plastic socks. Our children deserve more. A couple of us parents got so upset at the lack of options for our kids we set up our own charity SupERkids. No one cares..
Son’s school requested gastrostomy awareness training from community nurses. School then offered it to any member of staff who was interested. Son was blown away by how many teachers attended. “They must really care about me if they are interested in my gastrostomy.”
Being a parent to a healthy, typically developed child is NOT the same thing as being an unpaid family carer to a disabled child so do NOT conflate the two & call both of them "caring work." And yes, this is a hill I'm willing to die on, as they say.
#disability#carers#VoteNo
This is Adva. Adva’s family has been through the unthinkable. Today I met her at the hostages forum. She cuts a small figure but has a mighty resolve. Her grandmother Yaffa Adar, pictured on the sweater Adva gifted me, spent 49 days in Hamas captivity, and is alive and back in Israel now. Her cousin Tamir, however, did not make it out of Gaza. The family are desperate to have his body back in Israel, in the country he loved. Tamir was injured before being taken to Gaza while defending his own community in kibbutz Nir Oz. This family has been through an unreal rollercoaster of emotions; waiting, praying, hoping, grieving. Tamir leaves behind a wife and two children. Yaffa is trying to make each day count; to choose light again. As for Adva, she continues to tell the stories of her own family to help all the other families of hostages in their pleas to bring their loved ones home. Spread their stories. Help them scream louder. Bring them home. I can’t wait to share with you more of their story🎗️🙏🏻
Mothers of disabled children are often ignored by policy makers. Some great calls to action by @alisonpearsonSW on why we need specific and targeted support to help mothers of disabled children with their own health and wellbeing, and employment opportunities.