hellomynameis 💙💙 nneka agbasi💙💙

A diabetes specialist nurse lead passionate about quality in diabetes care and frailty.
💕Mantra: Believe and pursue your dreams until it becomes a reality 💕

[hellomynameis 💙💙 nneka agbasi💙💙 @neka400]

@parthaskar Thinking of you and yours in this sad time of loss. Xx

[Partha S Kar 🇮🇳🇬🇧🏏🎥 @parthaskar]

Don’t miss the signs of #T1Diabetes

The 4 Ts

And no, they don’t have to be altogether as a presentation

Keep this in your mind as a possible diagnosis

Even one life saved?
Is worth all the “cost”

Better safe than sorry

#T1Diabetes 💙

[hellomynameis 💙💙 nneka agbasi💙💙 @neka400]

@eileendoyle2 @ravdos @jolaujo1989 Huge congratulations @ravdos and to you all. I can see some Inspiring work here.

[hellomynameis 💙💙 nneka agbasi💙💙 @neka400]

@parthaskar Happy birthday @parthaskar

[DAFNE @DAFNEUK]

Christmas isn’t always stress-free — especially when managing diabetes.

Here are a few things to be aware of during the festive season 👇

[NHS @NHSuk]

☀️ It's a hot one across much of the UK this week.

While many of us enjoy the sunshine, it’s important to stay safe in the heat to avoid heat exhaustion or heatstroke.

Here are 5 top tips to help you beat the heat☀️ It's a hot one across much of the UK this week.

While many of us enjoy the sunshine, it’s important to stay safe in the heat to avoid heat exhaustion or heatstroke.

Here are 5 top tips to help you beat the heat☀️ It's a hot one across much of the UK this week.

While many of us enjoy the sunshine, it’s important to stay safe in the heat to avoid heat exhaustion or heatstroke.

Here are 5 top tips to help you beat the heat☀️ It's a hot one across much of the UK this week.

While many of us enjoy the sunshine, it’s important to stay safe in the heat to avoid heat exhaustion or heatstroke.

Here are 5 top tips to help you beat the heat☀️ It's a hot one across much of the UK this week.

While many of us enjoy the sunshine, it’s important to stay safe in the heat to avoid heat exhaustion or heatstroke.

Here are 5 top tips to help you beat the heat☀️ It's a hot one across much of the UK this week.

While many of us enjoy the sunshine, it’s important to stay safe in the heat to avoid heat exhaustion or heatstroke.

Here are 5 top tips to help you beat the heat.

[Lyla's Law @triggersbroom17]

I know this is long, but I urge everyone to read this post in full.

I’m reaching out to you because we urgently call upon your help to urge the Prime Minister and the Health Minister of the United Kingdom to introduce Lyla’s Law — a policy that mandates testing for Type 1 Diabetes in babies, toddlers, children and adolescents as a routine part of medical assessments at the point of care, when displaying any symptoms of the 4 T's (Toileting, Thirst, Tiredness and Thinning).

Why We are Campaigning for Lyla’s Law:

Our daughter, Lyla Story, was just two years old — bright, caring, sharing, full of life, counting into her twenties, bouncing on her trampoline, and dancing every day.

On May 3rd, 2025, she tragically passed away in her sleep — less than 16 hours after being seen by a GP.

The morning before, she had been taken to the doctor by my wife (Lyla’s Mother) and my mother (her grandmother), and they advised the GP of several worrying symptoms:

· More wet nappies.

· Lethargy and extreme tiredness (she fell asleep during the appointment).

· Loss of appetite but drinking lots of fluids and she was even asking for water.

· Vomiting multiple times (including at the surgery and my mother pointing out that it was the third time that morning), which was uncharacteristic for Lyla.

· A large bowel movement 3 nights before her appointment and none since.

· Uncharacteristic quietness (she stopped talking) and lack of energy.

· Weight loss overnight.

Despite these concerning signs, the GP diagnosed her with Tonsillitis, prescribing antibiotics, and to keep giving Lyla Children’s Paracetamol. The GP advised my wife to monitor her and seek further care only if she did not improve in 24 hours.

Lyla passed away within 16 hours in her sleep next to my wife.

The cause of death was undiagnosed Type 1 Diabetes, which led to Acute Diabetic Ketoacidosis (DKA) and a gastrointestinal bleed. Lyla did not display any signs of Diabetes in the weeks leading up to her death, however, the GP did not detect that Lyla also had COVID 19, which accelerated her Diabetes symptoms rapidly, causing her immune system to break down quicker.

Young children are often unable to express or describe their symptoms. It is therefore crucial that General Practitioners take the time to thoroughly assess all presenting signs and symptoms, leaving no room for assumptions.

Had her symptoms been more thoroughly investigated — even a simple urine test could have revealed dangerously elevated levels of ketones. A timely diagnosis would have resulted in an urgent referral, as required by NICE Guideline NG18, and Lyla would be alive today, managing her condition safely.

When hospital staff performed blood tests while trying to resuscitate her, Lyla’s HbA1c level was 89 — more than double the normal range (42–43). Her ketone level was 6 — double the threshold of medical danger.

Our daughter was failed by a system that too often overlooks the signs of Type 1 Diabetes in very young children.

This is far from an isolated incident. Children are still being misdiagnosed, sent home, and tragically losing their lives, all due to the lack of simple routine diabetes testing during GP visits. Lyla's condition went undetected, even though her symptoms were far more severe than those of tonsillitis. If simple tests like a urine dip and finger prick had been mandatory for any signs of the "Four T’s" (Toileting, Thirst, Tiredness, and Thinning), and if NICE Guidelines NG18 had been properly followed, she and so many others might still be with us. Instead, we find ourselves visiting her grave, trying to stay strong for our four-year-old son.

So far, I have received over 200 emails from brave parents of children diagnosed with Type 1 Diabetes. Only two families have stated that their child was diagnosed at the initial point of contact with their GP, the rest have been admitted to hospital in DKA stage and near death.

Lyla’s Law would ensure:

· Routine Type 1 Diabetes testing (urine and/or blood) in babies, toddlers, children, and adolescents during medical consultations, particularly where symptoms warrant it.

· Greater awareness and adherence to existing NICE guidelines among healthcare providers.

· The protection of vulnerable children who cannot speak for themselves.

We also believe that Type 1 Diabetes information should at least be in the "Red Book" for babies, Health Visitors need to give advice around the four "T's", Education is needed in primary health settings, and testing for antibodies is desperately needed, so the NHS can pick up those at higher risk and have surveillance on them, preventing serious cases like Lyla's from ever occurring again.

Our Local Authority have unanimously passed a motion to write to the Prime Minister and the Health Secretary urging this law to be passed at a Full Council Meeting. They have sent a global email to all staff, fully supporting the campaign with a link to the petition. We please urge you to do the same. This is not about political persuasion. It is about much needed change and education in primary care settings.

Help us make sure no more children are lost due to missed or delayed diagnosis of Type 1 Diabetes. Let Lyla’s name stand for change.

Our daughter deserved better. If her story can save even one life, then her legacy will live on.

A link to the petition to make change, and save the lives of children is here: https://t.co/IhwEYzRQtj

https://t.co/1HQNv6BtwH

[hellomynameis 💙💙 nneka agbasi💙💙 @neka400]

@CNFBelinda Well done @CNFBelinda so proud of you.

[Erica Richardson @EricaRi11822366]

To all my HCP colleagues - don't forget to check out the amazing resources by Trend Diabetes - The live conferences are running now - so link in, book on, let have fun learning together, would be fab to see you 😀 #diabetes @TrendDiabetes @LDC_tweets @DSNforumUK @NHSEngland

[hellomynameis 💙💙 nneka agbasi💙💙 @neka400]

Good luck with everyone running the marathon for one cause or the other. We are proud of you! #marathon

[hellomynameis 💙💙 nneka agbasi💙💙 @neka400]

@ravdos @BJNursing @HywelDdaHB Huge congratulations 🎊 @ravdos so well deserved.

[LesleyR @T1_Lesley]

Just because you can’t see endometriosis does not mean it’s heavy painful periods & tell the patient tough, get on with it.

[Erica Richardson @EricaRi11822366]

Poster is up 😄 #diabetes #DUK2025 @LDC_tweets @drpratikc @HannahForde2 @TomasPGriffin

[hellomynameis 💙💙 nneka agbasi💙💙 @neka400]

Interesting findings.

[Charles Odiase @shapeurthinking]

#dukpc2025

[hellomynameis 💙💙 nneka agbasi💙💙 @neka400]

@InternetH0F A Hero.

[hellomynameis 💙💙 nneka agbasi💙💙 @neka400]

We have lost a rare gem.

[Trend Diabetes @TrendDiabetes]

It is with a heavy heart we say goodbye to our friend and Trend Diabetes Co-Chair June James.

Read the loving tribute to June James here: https://t.co/B8I5gzV728

[hellomynameis 💙💙 nneka agbasi💙💙 @neka400]

@JeniferLewis Such a phenomenal woman.

[hellomynameis 💙💙 nneka agbasi💙💙 @neka400]

@CNFBelinda Happy birthday hun xx

[Royal Free London @RoyalFreeNHS]

Our hospitals remain extremely busy. 🏥

If you, or someone you care for is unwell, consider the right healthcare option for your needs:

✔️ Pharmacy
✔️ https://t.co/BvE8Dys44h
✔️ Contact your GP

👉 More information: https://t.co/wNxDcJYJeY

[Nnenna Osuji @nosuji01]

Delighted others see what we see in the amazing Hazel Manzano - matron, leader, ambassador @NorthMidNHS . We are so proud of you for winning the @NursingTimes nurse manager of the year 2024 award.