Nerdy Zebra

#ActuallyAutistic #ADHD nerd with #EDS/#HSD, #Dysautonomia, #MCAS, etc. | Pls link me related papers to read. 🙏 | She/her. | BLM |
+ @ExecDysfunction

[Nerdy Zebra @nerdymedzebra]

What?! Lolol

https://t.co/HntPophBOq

[Nerdy Zebra @nerdymedzebra]

can anyone explain the term "unloading" to me in the context of, say baroreflex unloading.

I have never had so much trouble finding a definition before. It's used a lot, but never defined?! T_T

[Nerdy Zebra @nerdymedzebra]

I am running out of places to look, anyone know of any papers that addresses iron/ferritin in POTS/othostatic tachycardia?? I have a couple papers on kids but is this really it?? Im doing a write up soon and i cant believe this is really it..

[Nerdy Zebra @nerdymedzebra]

@awakenedbarbie @CNN Trans kids can take hormonal blockers, like kids with other health conditions do to stave off puberty, but you have to be over 18 for hormone replacement therapy as a general rule. Any outlets making you think trans kids take HRT are lying to rile you up.

[Nerdy Zebra @nerdymedzebra]

I really don't know anything about ferritin, i need to change that. It does seem that only having three (3) ferritins is not great, tho 😅

[Nerdy Zebra @nerdymedzebra]

Got my iron panel back just now... good thing ive already been digging into the research. Bc i am so curious! Starting my iron and vit D supplementation today or tomorrow, im interested to see if it helps my enmity with stairs in particular 😅

[Nerdy Zebra @nerdymedzebra]

tbf there were hidden results that i could find when i clicked "See all results" or whatever, but i've NEVER had to do that before in years on scholar. I never even noticed it as an option. So it's still bizaare.

[Nerdy Zebra @nerdymedzebra]

How can there only be one hit for "Postural orthostatic tachycardia syndrome" + anemia in google scholar. My mind is absolutely boggled.

anemia is so common *and* so many symptoms overlap. How is this possible?!

[Nerdy Zebra @nerdymedzebra]

..it then goes on to share a table from a different paper with possible pharmeseutical treatments for POTS, and it includes stimulants on it. Lol.

*pulls out all my hair*

I get that writing a paper in a group will lead to contradictions but like, did no one check for them!?

[Nerdy Zebra @nerdymedzebra]

Every paper i read on POTS mentions how the diagnostic criteria is a raise of HR *WITHOUT* a change in BP. Yet I feel like the majority of of POTSies I know also have BP changes.

But the literature *never* mentions this, even when discussing misdiagnosis & Drs cluelessness.

[Nerdy Zebra @nerdymedzebra]

(This isn't to say that certain meds wont make our POTS worse, and for some ppl that might be stimulants, or certain brands. For me, two forms of H2 blockers make my POTS super worse. But that doesn't mean h2 blockers are bad for POTSies in general.)

[Nerdy Zebra @nerdymedzebra]

@remoteAndie @ZoeRoseBryant Ots weird bc im a homeless mom and there are a lot of resources to get kids free toys. And ive always been able to get my kid a gift or two for holidays. Barbies are less than $10.

[Henry Watt @Charlie_Dimmock]

High levels of Homocysteine might be involved in the pathogenesis of POTS.

Has anyone with #POTS/#hypermobility checked their levels of Homocysteine?

This could be linked to the methylfolate deficiency theory and mutations of the MTHFR gene

https://t.co/aI1gMT8mGl

[Nerdy Zebra @nerdymedzebra]

Does any #EdSer have Keratoglobus but NOT kyphoscoliotic type?

Found out i have keratoglobus today, but lord knows I haven't been able to get an actual #EDS panel done (tho my @AllofUsResearch results showed i don't have Marfan's or vEDS, (which I didn't suspect anyway.)