Neuropathy Action

Neuropathy Action Foundation (NAF) 501(c)(3) dedicated to ensuring patients have the resources, information + tools necessary to improve their quality of life.

[Neuropathy Action @NeuropathyAct]

House Appropriations is calling on @CMSgov to protect patients from harmful copay accumulator programs. CMS must take action and end these damaging practices. Read more: https://t.co/sIH5xrU3p1. @HIVHep #AllCopaysCount

[Neuropathy Action @NeuropathyAct]

#priorauthorization impacts neuropathy patients who need timely treatment access to manage chronic pain, improve function, & maintain quality of life.

@JayObernolte @RepBarragan @RepRaulRuizMD please advocate for insurance reform in tomorrow’s @HouseCommerce hearing.

[Neuropathy Action @NeuropathyAct]

Big news for patients who rely on plasma-derived medicines: #AB2009 passed the California Assembly floor unanimously helping modernize source plasma collection and improve access to life-saving treatments. Thank you @PhillipChenCA and @AsmSolache!

[Neuropathy Action @NeuropathyAct]

With the passage of H.46, #Vermont becomes the 34th state and the last state in New England to establish a Rare Disease Advisory Council! This is big news that will have a lasting impact for the rare community in VT. Read more: https://t.co/d7c0n15gbK

[Neuropathy Action @NeuropathyAct]

We joined patient advocacy organizations across the state, urging state leadership and @CAGovernor to restore Medi-Cal coverage for GLP-1s immediately. https://t.co/HbkpjapCwS

[Neuropathy Action @NeuropathyAct]

Plasma donations do more than save lives—they support local jobs and California’s economy, but only if regulations keep pace. #AB2009 would modernize the state’s framework so centers can operate efficiently and meet patient demand. @BuffyWicks
https://t.co/LsLq4V2ss5

[Neuropathy Action @NeuropathyAct]

With #SB1199, drug company assistance counts toward your insurance cost limits—cutting patient financial burdens. Proud to back this at #AdvocacyInActionDay! #LegDay #AffordableMeds

[Neuropathy Action @NeuropathyAct]

We need #SB363 to make health plan denials more transparent & hold insurers accountable! Supporting this bill at #AdvocacyInActionDay. #PatientRights #LegDay

[Neuropathy Action @NeuropathyAct]

Plasma saves lives, but outdated policies are holding California back. In a @SFBusinessTimes piece, @petermjaworski explains why modernizing plasma policy is about access and patient care, not deregulation. Read here. https://t.co/4g2A3beNIs

[Neuropathy Action @NeuropathyAct]

Patients who rely on plasma-derived medicines
have a powerful perspective, and your voice is
needed to help inform the future of patient care!
SHARE YOUR VOICE:
Global Survey on Plasma-Derived Medicines and Donation
https://t.co/ePllM6uBDD

[Neuropathy Action @NeuropathyAct]

We joined GCOA and nearly 30 other patient advocacy groups in urging @GovernorVA Spanberger to protect access to lifesaving treatments for Virginians and VETO legislation that would import federal MFPs to the Commonwealth

[Neuropathy Action @NeuropathyAct]

We joined GCOA and nearly 30 other patient advocacy groups in urging @GovernorVA Spanberger to protect access to lifesaving treatments for Virginians and VETO legislation that would import federal MFPs to the Commonwealth.

[Neuropathy Action @NeuropathyAct]

We joined GCOA and nearly 30 other patient advocacy groups in urging @GovernorVA Spanberger to protect access to lifesaving treatments for Virginians and VETO legislation that would import federal MFPs to the Commonwealth. https://t.co/xPkzphs46l

[CalPlasma @CalPlasma]

This #MultifocalNeuropathyAwarenessMonth, meet our newest #CalPlasmaAmbassador, Dominick Spatafora.✨

Diagnosed at 30, IVIG halted his MMN progression. After losing access, he now shares his story to raise awareness and ensure patient access to these life-saving medicines.

Read his story here.
https://t.co/Ur5kJkbukP

[Neuropathy Action @NeuropathyAct]

Thank you, @PhillipChenCA and @AsmSolache, for introducing #AB2009 and being champions for Californians who rely on plasma. By modernizing outdated regulations on source plasma collection, AB 2009 helps increase access to plasma-derived medicines. https://t.co/HTSLVZjiNm

[Neuropathy Action @NeuropathyAct]

California is one of only ten states that doesn’t collect enough plasma to meet residents’ needs. With #AB2009, the state is taking meaningful steps to increase access to lifesaving plasma-derived medicines so Californians can thrive. https://t.co/HTSLVZjiNm

[Neuropathy Action @NeuropathyAct]

Thank you @housecommerce @energycommerce @waysandmeansGOP @waysmesnscmte for uncovering the horror stories from insurer-related delays, denials, and excessive admin barriers that override crucial patient/doctor decision-making. #PatientsFirst #PatientsOverProfits

[Neuropathy Action @NeuropathyAct]

As Senate HELP examines remedies to rising healthcare costs, PBM reform must be part of the solution. Patients deserve transparency, fair practices, and lower out-of-pocket costs. We urge @GOPHELP @SenBillCassidy @SenSanders to prioritize PBM reform at this hearing.

[Neuropathy Action @NeuropathyAct]

Ahead of the Senate HELP hearing on healthcare costs, we urge policymakers to look closely at the role PBMs play in driving patient expenses. Reform is essential to ensure access and affordability. Thank you @GOPHELP @SenBillCassidy @SenSanders for examining this issue.

[Neuropathy Action @NeuropathyAct]

Neuropathy Action Foundation Releases White Paper Highlighting Advances in Neuropathy Clinical Trials.
Report Explains Where Research Stands, What’s Changing,
and Why Patient Involvement Matters.
https://t.co/BgYvHClpeJ