you will find some of the best information on endo and related conditions following @theendoinformer , @blog_endo , @Kathleen_M_King , their work is exceptional, evidence based, and leading edge, don't miss it, they are active on Facebook as well as other media
This makes so much sense, my daughter had leg/hip pain and numbness for years and it was dismissed and then told it was just unexplained pain! Endometriosis excised December 2021 and guess what…pain / numbness gone! 💛
Our second Toolkit is now LIVE!!!
The Menstrual Health Toolkit is aimed for those under 18 to provide practical, accurate & easy to read information on all things Menstrual Health. This toolkit is available as a free downloadable.
https://t.co/44tuEEUKC1
@theendoinformer @NHSGGC My daughter had laparoscopy by general gynaecologist- no endo found. Same operation 3yrs later with excision surgeon and endo excised from pelvic wall and pouch of Douglas. Horrendous to think women aren’t able to access excision surgery till stage 4 💔💛
Surely this can’t be true…so we compromise women’s health, life and fertility - for what! A treatment that doesn’t work! I despair, my daughter had excision surgery age 18 it changed her life 💛 #endometriosis#excision
What price pts pain? Medications do not treat or stop progression. Ablation is a failed technique. All but Stage IV are being denied access to excision when we are constantly told Endo care is expanding and pts pain matters. Scottish pts are being betrayed. #endometriosis
I could write a similar story about my 19yr old daughter…symptoms from age 11 endo excised age 18 she was dismissed so many times we need to do better! Endo gaslighting is a journey no teen should have to endure 💛 #endometriosis#BSGE2023#BSGE#excision
Let me tell you a story. My 16yo is now pain free but had stage IV Endometriosis excised 3 mths ago. She was in abject pain from age 14: pelvic, legs, hips, back, chest. Struggled to walk and regularly passed out. Yes teens can have severe disease. #Endometriosis#excision#BSGE
I'm fundraising for South Ayrshire School Clothing Bank. Check out my @JustGiving page and please donate if you can. Thank you! #JustGiving https://t.co/VnzspfySjI
30 MILLION DONATIONS! Congratulations to our member organisation @HeyGirlsUK who are celebrating this huge milestone on their 5th birthday today! 🎉
Find out more about Hey Girls’ biggest milestone yet: https://t.co/11iwLidXSU
#Hey30Million#EndPeriodPoverty#PeriodDignity
@KirsteenCampbel My daughters story was the same, too young, every woman has this pain, take these hormones and get one with it! We fought hard and long and she got her diagnosis but diagnosis & treatment shouldn't be so hard or so long for these young women🎗
This month’s Made in Scotland interview is with Nicola from @co_kindness. Nicola runs an amazing non-profit business that creates wonderful smelling candles, wax melts and hand soaps that benefit a host of deserving charities. https://t.co/NcthSvbaDf
Ohhhh my goodness we’ve been shortlisted in the @SocEntScot “One to Watch” category- can you believe it!
Absolutely delighted but it’s really thanks to you all for believing in me and joining me on this journey! So thank you and cross your fingers 🥰
#ScotEntAwards2022
@JaneyGodley One of those headband earphone things and also this app and I can’t hear my husband snoring - you can choose different sounds etc but it’s been a godsend for me!
Join us for our Newly Diagnosed Scotland: What is Endometriosis, the diagnosis journey, pain management webinar with Professor Andrew Horne, Dr Lucy Whitaker & Priscilla Fernandez from EXPPECT Edinburgh. Sign up here: https://t.co/2LhZaLMZXL