So many today say, " I took the Ice Bucket Challenge, & shockingly I got #ALS years later"
I was in perfect health @ 35 when my ALS nightmare began overnight.
Even after diagnosis, I couldn't imagine how EXTREME the suffering would become.
HEALTHY PUBLIC: ALS IS NOT RARE & the incidence is expected to ⬆️70% by 2040.
If you have military members in your family, there is even more reason to fear #ALS. They have a 2 to 10X greater risk depending on military occupation.
DON'T WAIT FOR ALS TO ENTER YOUR LIFE TO ACT.
#ALS has been marginalized by the FDA. More than anything we need people to contact your members of Congress & tell them to urge the FDA to exercise regulatory flexibility for 100% FATAL ALS.
Tell them to grant safe & effective #NUROWN Accelerated Approval.
Find your Congresspeople's phone number here:
https://t.co/fKgOVTZfkY
Go to the @iamalsorg website to get involved further. 🙏❤️
@RepAnnaEshoo @RepGuthrie@RepMikeQuigley@janschakowsky@lisamurkowski @SenatorBraun @rosadelauro@RepAndyHarrisMD
Minnesota mom Stephanie is spreading joy on TikTok during her battle with breast cancer by dancing through chemotherapy! Sending her even more positive and healing vibes 💗
@JessBallard Icing the injection site for a solid 10 minutes (or until you are completely numb) seems to help. Didn’t even feel the last one! If nothing else, it wards off a hot flash while waiting for the torture… 🥴
These are my race winning gloves from KY. A Veteran bought them in Jr’s auction and today, teary eyed, he gave them back to me as thanks for my #KB100@VetTix program. I was moved beyond words. So, in his honor, I will donate another $1 for every retweet this gets. Go!
One of the last cars to roll through #SnowballDerby tech at @5FlagsSpeedway is Dan Fredrickson.
Watch tonight's Bullring and qualifying draw for FREE here: https://t.co/Zr3vcjOnB6
Purchase the weekend PPV here: https://t.co/InJP0XjWna
#Dixieland250: Dan Fredrickson currently sits on top of the charts in second practice. You can watch him and nearly 40 other Super Late Models duke it out for the Dixieland250 trophy with the @MidwestTour at WIR LIVE tonight on https://t.co/m90WxzMiEr here https://t.co/GaXo0iO9L4
Longtime Bethlehem Academy volleyball coach Franz Boelter, dismissed by school officials, says "It saddens me that this could be my last year of coaching and that it could end like this." https://t.co/6ZiSqnPe70