NOAACF

The mission of the National Organization of African Americans with Cystic Fibrosis is to engage, educate & raise CF awareness in the African American community.

[NOAACF @noaacf]

@SusannaMcColley This is amazing and so are you Dr. @SusannaMcColley!!!!

[Stanley Manne Children's Research Institute @ManneResearch]

@LurieChildrens @NUFeinbergMed @SusannaMcColley @NUCATSInstitute Listen to Dr. McColley, MD, discuss newborn screening and her work promoting equity in early diagnosis and care for #cysticfibrosis on @ManneResearch's In Pursuit podcast. Hosted by Manne Research Institute Prez &CRO @DrPatrickSeed. https://t.co/VF90hdWiZU

[NOAACF @noaacf]

@JenTaylorCousar Thank you so much @JenTaylorCousar and that means the world to me coming from an amazing trailblazer such as you!!!

[NOAACF @noaacf]

I am so honored to be featured by my Alma mater, The University of Arkansas, in this beautifully written article that uniquely highlights and pays homepage to my deep Tuskegee Roots and my quest for health equity!!!

https://t.co/RZjnq3vxt9

And the Best is still yet to come! ❤

[NOAACF @noaacf]

@SusannaMcColley @CFRI_CureCF @JenTaylorCousar @WiseWright You are ABSOLUTELY AMAZING Dr. @JenTaylorCousar. I am most grateful for you, Dr. @SusannaMcColley, @CFRI_CureCF, and all of our phenomenal CF cohorts!!!

[NOAACF @noaacf]

@JenTaylorCousar You Rock @JenTaylorCousar !

[NOAACF @noaacf]

@JenTaylorCousar @NJHealth @JenTaylorCousar, the privilege was and remains ours. We are the beyond grateful for all your invaluable contributions, energy, support, and dedication toward making a difference for NOACCF, CF, Health Equity, and beyond!!! You are Amazing!!!

[NOAACF @noaacf]

I am so honored for @TerryGeneWright and me to join this phenomenal 2024 lineup of cohorts during the American Thoracic Society’s Public Advisory Roundtable (PAR)'s 18th annual Patients & Expert Forum, which will take place on May 18, 2024, in San Diego, Calif!

Flyer is below!

[Susanna McColley MD (she/her) @SusannaMcColley]

Timely diagnosis and treatment is essential for infants with #CysticFibrosis and other disorders diagnosed by #NewbornScreening @CF_Foundation @BabysFirstTest_ @ExpectHealthOrg @SaritaEdwards @LurieChildrens @ManneResearch @CDCChronic

[NOAACF @noaacf]

@SusannaMcColley Thank you Drs. @SusannaMcColley and @DrMeghanMcGarry for all you are and do for newborns in general and underrepresented individuals!!!

[NOAACF @noaacf]

I'm so excited to feature the @ExpectHealthOrg
video from me speaking, alongside Dr. Malika Fair, MD, MPH, FACEP, as the featured speaker for "Casual Conversations, Challenging Topics: Being Black in Healthcare - Patient and Provider Views" on July 27th!!!
https://t.co/Uz4k7j8o9G

[NOAACF @noaacf]

@ExpectHealthOrg @AAMCtoday @ExpectHealthOrg , you are absolutely phenomenal and I appreciate you and Dr. Eboni Drummond for the opportunity to speak on this most important topic. I am honored to have been included! <3

[NOAACF @noaacf]

@JenTaylorCousar Oops, you did it again Dr. @JenTaylorCousar and you keep doing!!! I'm (We're) so incredibly proud of you!!!!!!

[Expecting Health @ExpectHealthOrg]

“If you were not Black, I’d say you have #CysticFibrosis,” what Dr. Michele Wright’s (@noaacf) then fiance was told by a White physician 17 years before he was diagnosed with CF. #raredisease #healthequity #genetics #DEI #healthdisparities

[Susanna McColley MD (she/her) @SusannaMcColley]

Grateful to ⁦@CDCgov⁩ ⁦@CF_Foundation⁩ and The Legacy of Angels Foundation for supporting our work to achieve equity in CF diagnosis ⁦@LurieChildrens⁩ ⁦@ManneResearch⁩ ⁦@noaacf⁩ ⁦@DrMeghanMcGarry⁩ https://t.co/nRL3XLjMYm

[NOAACF @noaacf]

@JenTaylorCousar @CF_Foundation @NJHealth Powerful!!!

[NOAACF @noaacf]

Interesting Article!

Should the medical world reconsider the use of race in medical algorithms?
https://t.co/wOtBB1hJbo

Funds were granted to five organizations to reconsider the use of race in medical algorithms as the medical industry is increasingly scrutinizing centuries...

[NOAACF @noaacf]

@SusannaMcColley @WiseWright Thank you so much for sharing and supporting as always Dr. @SusannaMcColley !!!

[Expecting Health @ExpectHealthOrg]

Join us on July 27th at 1:00 PM EST to hear Dr. Michele Wright (@noaacf) and Dr. Malika Fair (@AAMCtoday) share their experiences navigating the healthcare system from the Black patient advocate and healthcare provider perspectives. Secure your spot: https://t.co/HFLGsrUIyI

[NOAACF @noaacf]

I am so excited to join Dr. Malika Fair, MD, MPH, FACEP as a featured speaker for "Casual Conversations, Challenging Topics: Being Black in Healthcare - Patient and Provider Views" hosted by Expecting Health on Thursday, July 27, 2023, from 1-2 PM EST.

https://t.co/yh0yMxXHxQ