Sick With Optimism

Journey with #ChronicIllness #Scleroderma #SSc #TMA #AutoimmuneDisease #CKD on #TPE - sharing info, opinion & #optimism; hoping to help others along the way☺️

[Sick With Optimism @OptimismSick]

Anyone have good #employment or #jobseeker resources for Canadians with #Disability?
Any ideas appreciated!

#DisabilityIsntInability #disabilityinclusion #disabilitytwitter #inclusiveemployer #DiversityandInclusion

[March of Dimes CA @marchofdimescda]

SkillingUp is a free, accessible program that supports the growth of tech-enabled jobs for Canadians with disabilities. Learn in-demand digital skills and unlock new career paths to secure financial independence. Apply at https://t.co/46wGel7wxU @microsoftcanada @cibc

[Scleroderma Atlantic @SclerodermaATL]

We are hosting the East Coast Kitchen Party and you’re invited!
We’re excited to share that you will receive two complimentary drink tickets, refreshments, and your very own sou’wester, and music to boot. There might even be a cod to kiss. It’s a time you won’t want to miss.

[Sick With Optimism @OptimismSick]

#scleroderma #sclerodermacure

[Scleroderma News @SclerodermaNews]

To kick off Scleroderma Awareness Month, the Scleroderma Research Foundation will host a free online patient forum, Collaborating for a Cure, on June 1st: https://t.co/uSvqcHfW7Z

#sclerodermanews #scleroderma #lifewithscleroderma #livingwithscleroderma

[Sick With Optimism @OptimismSick]

Thanks @JodieSweetin!

[SRFCure @srfcure]

A BIG thank you to @JodieSweetin for playing for us on #NameThatTune—we received a gift of $10k in prize money after she won. Jodie explained her choice was in honor of 2 people: Bob Saget, for his work as a board member, & her grandmother, who had scleroderma. 💙

[Gregory Mansfield @GHMansfield]

Disabled people aren’t “special persons” with “special needs” who require “special education” and “special transportation.”

Disabled people need access and accommodation.

[Los Angeles Times @latimes]

John Mayer, Dave Chappelle, Jeff Ross and John Stamos saluted late comic Bob Saget during a second Comedy Store event benefitting scleroderma research. https://t.co/jbDWq7uOyO

[SRFCure @srfcure]

#BobSaget worked tirelessly to raise awareness and funding for us. @JohnMayer, thank you for designing a hoodie with the SRF to keep Bob's memory and his enduring fight for a #scleroderma cure alive. Proceeds benefit our work to fund research for a cure https://t.co/58uR8l13s9

[SRFCure @srfcure]

Thank you to @BobSaget and @SusanFeniger for hosting an incredible evening, all to find a cure for scleroderma. Still time to double your impact—our matching gift challenge goes to Midnight Eastern/9 PM Pacific! Donate: https://t.co/ZWHoxFreIl & watch: https://t.co/8DchOorgFq

[SRFCure @srfcure]

We are so grateful for the support of our corporate sponsors for the SRF's virtual #CoolComedyHotCuisine event, streaming live on YouTube on 𝗦𝘂𝗻𝗱𝗮𝘆, 𝗢𝗰𝘁. 𝟭𝟳𝘁𝗵 𝗮𝘁 𝟱𝗣𝗠 𝗣𝗮𝗰𝗶𝗳𝗶𝗰/𝟴𝗣𝗠 𝗘𝗮𝘀𝘁𝗲𝗿𝗻.

Join us! https://t.co/5H6uPo2lXO

[Sick With Optimism @OptimismSick]

#disabilityinclusion

[ODENetwork @odenetwork]

“Golden Rule” of disability inclusion: Always ask the person. The nuances of disability inclusion are as diverse as disability itself. This tip sheet will help you navigate. EN: https://t.co/gRtjxhtl5m
FR: https://t.co/MpAWUu6eAr
#DisabilityInclusionEvolution #AskThePerson

[SRFCure @srfcure]

𝐂𝐎𝐎𝐋 𝐂𝐎𝐌𝐄𝐃𝐘 • 𝐇𝐎𝐓 𝐂𝐔𝐈𝐒𝐈𝐍𝐄 is back and so is our online auction. Bid on a Virual Hang with @bobsagat and John Stamos, a Las Vegas Getaway, or a Virtual Chat with @SusanFeniger and Ben Feldman. Sign up for preview and auction opening https://t.co/grjSu7B9ob

[Sick With Optimism @OptimismSick]

#Raynauds webinar - check it out⤵️

#Scleroderma #Ssc #Awareness #education

[March of Dimes CA @marchofdimescda]

This sounds fantastic! A new crowdsourced app is in the works, which can advise you on whether a sidewalk or pathway is accessible so you can plan your outings accordingly. #Accessibility #AccessibleCanada

[Sick With Optimism @OptimismSick]

Did anyone else watch @GoodDoctorABC last night?!? I'll bet those of us with #scleroderma were guessing but pretty shocked by the storyline! Thanks #TheGoodDoctor great show(fan since ep.1)!! Hoping this plot twist leads to greater #sclerodermaawareness!
💙#SSc #RareAware

[SRFCure @srfcure]

Scleroderma Research Foundation Board members @BobSaget & @SusanFeniger get ready for #CoolComedyHotCuisine! All funds raised go to scleroderma research for a cure.

𝗦𝘂𝗻𝗱𝗮𝘆, 𝗢𝗰𝘁. 𝟭𝟳𝘁𝗵, 𝟮𝟬𝟮𝟭 𝗮𝘁 𝟴𝗽𝗺 𝗘𝗧/𝟱𝗽𝗺 𝗣𝗧.

Register now: https://t.co/v3kyL2QiUp

[T4D @T4Dementia]

Participants Needed For Covid-Related Research On Young Caregivers And Their Families! Are you a family with children under 25 years old? Supporting or caring for a loved one? If so, we want to hear from you! Please email [email protected] to learn more!

[Myositis Support and Understanding (MSU) @MyositisSupport]

TODAY @ 5 PM ET / 4 CT / 3 MT / 2 PT - IBM Patient Zoom support session. @AwakenKaruna Lori Wong will lead a brief meditation, Building Resilience. Open to all with #inclusionbodymyositis (IBM). Invite your care partner. Register https://t.co/kbkkpJmEV4 #myositis #myositissupport

[Amanda MacKenzie @amacinto]

I'm so proud of the work our @marchofdimescda team did during the writ & we're so excited to get back to work with our @Disability_WP community on a Canada Disability Benefit that lifts all Cdns with #Disability out of #poverty. @JustinTrudeau @CQualtro @Rob_Oliphant @cafreeland

[Sick With Optimism @OptimismSick]

@TheDisabledDiva I often ponder this: I also have tinnitus (ringing in the ears) & I draw the comparison - because it is constant it is "normalized" & also can be muffled, but when other stimuli (sounds) removed it's louder; plus as long as you don't say anything nobody else knows - like pain(?)

[Sick With Optimism @OptimismSick]

🇨🇦Contact your newly elected or returning MP (of all parties) - help end #DisabilityPoverty

#Canada #disabilitytaxcredit #DisabilityTwitter

[March of Dimes CA @marchofdimescda]

This week, Canadians returned the Liberal Party of Canada, led by Prime Minister Justin Trudeau to a minority government. Let's ensure a new Canada Disability Benefit Act is one of their first orders of business. Read our full statement on #Elxn44: https://t.co/2Uc8Hl5NKa