Public Health Palliative Care Unit

Research, practice and partnerships that promote healthy dying

[Public Health Palliative Care Unit @pallcareunit]

Changes in personnel at the PHPC Unit, La Trobe. Admin updates to Twitter account occuring. May be temporarily inactive. If handle changes will reconnect with network via new handle. Thanks!

[Public Health Palliative Care Unit @pallcareunit]

Go Shyla and PCQ!

[Palliative Care Qld @PalliativeCareQ]

Today PCQ hosted an information session at Parliament House and had many great discussions with Qld MP’s about how palliative care is everyone’s business, and #WhatMattersMost.

Pictured here @YvetteDAth, Qld Health Minister, and Shyla Mills, PCQ CEO.

[Jennifer Tieman @JenniferTieman]

Are interventions to integrate #pallcare into ambulatory care for non-cancer life limiting illnesses effective? Interesting question but limited evidence
https://t.co/6j8AiDzixK

[Julian Abel @drjulianabel]

https://t.co/M6TchCmWhW The wise words of Cormac Russell on the latest episode of Survival of the Kindest. Asset Based Community Development is widely applicable world over, as Cormac has demonstrated so inspirationally over the last 20 years.

[Public Health Palliative Care Unit @pallcareunit]

@TuffreyWijne @LD_Dietitian 3000 down, and many more to come I'm sure!

[Jennifer Tieman @JenniferTieman]

Last chance to join a great group of #pallcare #researchers. Applications close this Monday 16 Feb 2021.

[Carers Australia @CarersAustralia]

Australian governments must improve their COVID-19 public health messaging to ensure people with disability receive clear information during any future outbreaks, service providers say. https://t.co/xkMi11UJmX

[Irene Tuffrey-Wijne @TuffreyWijne]

Just released new figures show people with learning disabilities are 3.7x more likely to die of Covid. Whatever dataset we look at, it shows invariably that they are at risk. @ONS says they cannot fully explain why. So many reasons! We need to protect this population, urgently

[Abigail Vaughan @AbigailRNLD]

A great discussion to witness. The power of pictures!

[PCPLD Network @PCPLDnetwork]

Carol lived in a shared home with people with profound learning disabilities. @TuffreyWijne shares practical ideas & explains that when Carol, her friends were encouraged to visit her room to help them to accept the reality of the loss. #PCPLD

[Public Health Palliative Care Unit @pallcareunit]

@PCPLDnetwork @TuffreyWijne Still loving your work over here on the other side of the world. Terrific exploration of grief and bereavement issues for people with disability + suggestions re how to be inclusive and supportive. Fabulous collaboration with Jed/art therapy @gemma_allen1 Thanks @TuffreyWijne

[PCPLD Network @PCPLDnetwork]

“Don’t ever exclude anybody from these kind of rituals”

Take those with profound learning disabilities to funerals or to visit the persons grave. In times of #COVID19 support people to watch the funeral online. Involve people in these important rituals.

#PCPLD

[PCPLD Network @PCPLDnetwork]

Some key points from @BaronessHollins for managing & supporting someone with a learning disability with grief.

1. Listen, be there
2. Be honest, include & involve
3. Minimise change after loss
4. Avoid assessing skills until grief resolved
5. Choose non-verbal rituals

#PCPLD

[PCPLD Network @PCPLDnetwork]

If people do understand words, use the right language! Be clear and concise when talking about death and dying.

#PCPLD

[PCPLD Network @PCPLDnetwork]

Peter from GRASSroots shares his view of how people react to bereavement.

“People are different you see. People react differently to bereavement. Some people show it, some people show it very much, and some people not so much.They feel it inside, but not so much outside” #PCPLD

[Palliative Care Qld @PalliativeCareQ]

For her work with Palliative Care Queensland and Ambulance Wish Queensland, Shyla Mills has been nominated for a Pro Bono Australia Impact 25 Award.

Please show your support for our organisation by taking the time to vote ahead of tomorrow's deadline: https://t.co/DE7DlZeg35

[Carers Australia @CarersAustralia]

Urbis is inviting carers to share their views on using the Carer Gateway service.

The research will be in a form of an online or telephone interview or focus group, with multiple dates and times available between 15-26 February 2021. Register here: https://t.co/FX2dvzB5RP

[Palliative Care Qld @PalliativeCareQ]

Great to have PCQ's CEO Shyla Mills catch up with ABC Radio Brisbane’s Kat Davidson last night to talk about our “Last Aid” course.

Visit our website to find out the details of our next training courses.

Listen to the interview here: https://t.co/wOEIUv24Cq

[Palliative Care Qld @PalliativeCareQ]

Hear from Dr Julian Abel at PCQ and CPCRE's upcoming Statewide Palliative Care Sector Education Webinar on 17 February. This webinar also provides an opportunity to ask questions you may have for Julian and our other panel of experts.

Register now:
https://t.co/Sgn9OvCa0a

[Jennifer Tieman @JenniferTieman]

Interesting report of the development of a comprehensive, evidence-based model of #bereavement care for an Australian #acute #hospital. Impt given hospitals are a key site of dying.
https://t.co/BeeSQVi2pa