Maud Sac 💢

ME/CFS since 2018, now severe, almost fully bedbound.
@papillyon.bsky.social

voxEM :

[Maud Sac 💢 @papillyon]

Lancement du site web du collectif voxEM, collectif que vous pouvez suivre sur https://t.co/msWwrObLi3 !

Nous avons voulu créer un site ergonomique, accessible et régulièrement actualisé, utile aux #paEM francophones et à leurs proches.

https://t.co/Pm00h0wSB6

[mary ᥫ᭡ @msmarysopinions]

While we all watch #RolandGarros, let's remember when Zverev played with scratches on his neck, defensive marks from his girlfriend while he strangled her before the match. But hey, let's watch some tennis!

[Saoirse for President @2601Reva59892]

This is a good time to bring up this article for new tennis fans. A harrowing reminder of what victims of abuse endure and the lengths institutions go to in order to protect abusive men like Alexander Zverev.

https://t.co/FIBxFhZEfJ

[léa ✮⋆˙ @leaa_ricot]

C’est une victoire de Zverev en GC mais c’est surtout une défaite pour toutes les femmes victimes de violences ainsi qu’un énième crachat sur elles

[Adam @ABrokenBattery]

During Ean’s time in hospital, he was subjected to mistreatment, including being dropped into a swimming pool when he was paralysed, to see whether he would save himself.

Here is a clip of Ean talking about his experience.

[Adam @ABrokenBattery]

In 1988, Ean Proctor, a 13-year-old boy with ME, was removed from his parents and institutionalised for over 5 months. Wessely was one of the psychiatrists, he said Ean didn’t have ME and supported the separation from his parents. See excerpts from Malcolm Hooper.

[Wayside Scribbles @waysidescribble]

– Help!
– But have you tried just ignoring the water?

#longcovid #postcovid #ableism #satire

[pHiycrtyl @iycrtylph]

sometimes i think about the absolute hell in which whales must live, enduring endless, inescapable machine noise from boats that also wrecks their ability to communicate with one another

[plague ralph 🐀 (capo) @x3r0gx4]

The thing about perpetually fighting the BPS Brigade on the merits of their garbage arguments is that past a certain point (debunking PACE; blocking their “progress”) we’re only sinking time in a trap they’ve set. The only thing that will defeat them is funding quality science.

[Tatiana Fajardo @Tatiana19796]

John Collier, 'The Witch,' 1893 #CaturdayEve

[† @mourninglambs]

I’m literally being held hostage in my own body

[Memorial ME Victims R.I.P. @MemorialME]

🕯️#RIP Mirjam Knapp
* 08.12.1999 - † 28.04.2026

Mirjam wurde mit 14 zwangseingewiesen, auf grausamste Weise aktiviert u. misshandelt, nur durch die Hilfe von Dr. Speight durfte sie nach 20 Mon. wieder heim.
Sie starb an #VerySevereME.🖤

In Gedanken bei ihrer Familie.💔

[Neeya @Neeyaonair]

La Police était violente à Mayotte bien avant ICE.

[elle carnitine 🍉 @elle_carnitine]

Being a carer for a disabled person is incredibly hard, but there is a world of a difference between carers who think it’s hard because the disabled person is a burden and those who think it’s hard because the state has abandoned disabled people

[Christina Koch @CK65375]

What a tragedy.

I didn’t know Mirjam personally and only just learned of her story on Facebook.
https://t.co/nqcqDOrkC4

Rest in peace, Mirjam.

My deepest condolences to her family and all who knew and loved her.

#MEcfs #severeME

[Nadine Ristorcelli-Domain ✊🚩☭🐈‍⬛🐾🍒📚 @NRD1320]

- Mayotte : Dans le département le plus pauvre de France, la police aux frontières multiplie les violences contre les étrangers. Depuis le lancement de l'opération "Kingia" en avril, la situation est devenue alarmante.

[Jon Douglas @atranscendedman]

@jimcoan My smoke alarm is involved in every fire I've ever had. That doesn't mean the smoke alarm started them.

[Maud Sac 💢 @papillyon]

12 https://t.co/DxmoOdy9cA sur 24 ont vu leur état de santé s'améliorer après une hospitalisation de 3 mois dans cette unité.

[Maud Sac 💢 @papillyon]

Ce type d'unité de soins pour paEM en état (très) sévère devrait exister dans tous les pays.

[Anil van der Zee © @AnilvanderZee]

1) This video shows a unique care unit in Norway called Røysumtunet for people with #severeME & very severe ME.

It is one of the only places where the sickest patients can receive specialised care.

We need this everywhere!!

#pwme #myalgicE #millionsmissing #severeME

[Mike Doris @MikeDoris]

WIRED:

[Pop It licorne multicolore brille dans le noir @popit_licorne]

@Yg_Invest 4000€ par mois c'est 2x le salaire médian.
Tu n'es pas "la classe moyenne", t'es juste un riche qui sait pas gérer son argent.

Si vraiment ça te fait kiffer de toucher des aides, lâche ton boulot et lance toi dans une glorieuse carrière d'ouvrier au SMIC au lieu de pleurer ici