Pat H 💙

35 years of ME/CFS. Former Westcare volunteer worker. Still waiting for biomedical research and better times. 💙

[Dr. Markus Fraczek @MarekSJF]

"A lot of people that have this illness that I've spoken to have said to me 'I don't get believed, people think I'm lazy'. I've never experienced one person that doesn't believe me and that's because, why would an athlete just suddenly stop after 20 years?"

Very true.

[Lizzy H @hopefullizzy]

Please forgive me if I’m coming across a bit depressing at the moment.

I’m sending each of you love, warmth, comfort and somewhere in amongst it all a little ember of hope.

You’re not alone❤️

[Carole Bruce @CaroleBruce17]

This is trending! #ME people do keep sharing or posting or quoting if possible. We’d love to get out of the bubble.

[Pat H 💙 @pathcath]

@hazelelliss Middle necklace is darker on the right picture than the left one.

[Matthew Dalby @MatthewJDalby]

It is weird that these people built their whole careers on making sure people with ME/CFS would remain stigmatized and untreated. They have been endlessly esteemed, rewarded, and honored for it by medicine and government. The more we suffered the more they were rewarded.

[Pat H 💙 @pathcath]

@Annakwood Congratulations! Happy anniversary! Lovely photo.

[Lizzy H @hopefullizzy]

#SevereMEweek

A glimpse into some of the reality.

[Adam @ABrokenBattery]

“Patients have battled for years against doctors, psychiatrists and the public who believed ME was a psychological condition.”

ITV journalist Stacey Poole reporting on severe ME in 2005. More than 20 years later, little has changed.

#SevereMEAwarenessWeek #MECFS

[Pat H 💙 @pathcath]

Help for us old folk

[Count Binface @CountBinface]

There now follows a party election broadcast by the Count Binface Party, And if I do say so myself, it's a banger. #VoteBinface #Clacton

[Pat H 💙 @pathcath]

@KSchnickelfritz Rain in Bristol this afternoon.

[Adam @ABrokenBattery]

John Rutter’s response to Rod Liddle, in a letter in The Spectator

“Sorry to spoil a good polemic with facts that don’t fit”

ME is a physical illness. It began with chickenpox, followed by cycles of relapse, sensitivity to light and sound. I had it for seven years.

[Peter Jukes @peterjukes]

I think a lot of people have missed this. Until the police investigation in February last year, Reform UK’s financial structures were all tied up with Cottrell and his Montenegro base

https://t.co/HhfZOB7VEq

[Carole Bruce @CaroleBruce17]

Open letter to The Royal College of Psychiatrists sent by Mark Harper and others on 13 July.
#ME

[Pat H 💙 @pathcath]

@CaroleBruce17 I would go for Jennie Jacques who has ME , is articulate, well informed and is very visually attractive. She has her own ME youtube series, The Monster in ME. Here she is with Monbiot and Tuller.
https://t.co/JrWrEQLIjJ

[Adam @ABrokenBattery]

“It was horrendous, it was almost like being in a semi-coma. All my very basic bodily functions were struggling and my capacity to do anything like read or watch TV was zero.”

Dr Nina Muirhead, describing how ME affected her in 2020 #MECFS

[Pat H 💙 @pathcath]

https://t.co/43vjlB8ntc
Please help the World Food Programme if you can. Thanks.

[We 💚 Stoke Lodge 🍃💚🍃 @WlStoke_Lodge]

A beautiful view of last night’s sunset over Stoke Lodge, captured from above because Cotham School is for some reason threatened by the idea of anyone enjoying these moments at ground level…

[Pat H 💙 @pathcath]

Hi friends! I've just donated to the DEC Venezuela Earthquake Appeal to help provide lifesaving food, water, cash and medical care in Venezuela. You can donate here, and your donation will be doubled! https://t.co/yi5fncSVXs

[Pat H 💙 @pathcath]

Save Caroline Roberts’ Life now: A very severe ME/CFS patient with high mortality risk. - Sign the P

etition! https://t.co/ZIr8ewfLGN via @UKChange