Pheo Para Alliance

Investing in research and supporting #pheochromocytoma and #paraganglioma patients globally. "Stronger United" #NETCancer #RareDisease #pheo #para #PPGL

[Pheo Para Alliance @PheoPara]

Our Centers of Excellence (CoE) program continues to expand. We're working tirelessly to locate the best possible medical expertise for those affected by #pheo #paraganglioma #PPGL.
Locate your nearest CoE.
🔎 https://t.co/sAKuBiR1ec

[Pheo Para Alliance @PheoPara]

Thanks to a group effort, PPA has a strategic plan in place guide us #PHorward in support of those affected by #pheo #paraganglioma #PPGL -- a #PHearless roadmap! 🗺️
✔️ it out . . . https://t.co/CoPFo9WWpF

[Pheo Para Alliance @PheoPara]

Book now for the 2026 Circle of Hope Gala in Boston! Join us Sept 19 as we honor Jonathan Pascual--with guest author Bethel Stevens.
🌟Plus: free #PPGL #pheo #paraganglioma Scientific Forum (1–2:30 PM) with Dana‑Farber experts--in person or virtual.
🎟️https://t.co/OExvQKX3RB

[Pheo Para Alliance @PheoPara]

The more you know . . . 👏👏👏
#ThinkNENS #pheo #paraganglioma #PPGL #FreeCME

[NET Cancer Day @netcancerday]

Neuroendocrine cancer is often missed.
Learn how to recognize it—fast.
With #ThinkNENs program:
✔ Free CME
✔ 60-minute core module
✔ 7 languages
✔ Endorsed by leading NEN societies
✅Sign up today: https://t.co/X0mfICDWmx
#LetsTalkAboutNETs

[Pheo Para Alliance @PheoPara]

Thank you @ESEndocrinology for sharing this important event! 🧬🧬🧬
#pheo #paraganglioma #PPGL #genetics
@SGreenbergGC

[European Society of Endocrinology (ESE) @ESEndocrinology]

The 7th Pheo Para Awareness Week will take place from 24-28 August 2026.

A key part of the Week's events will be the @PheoPara Educational Webinar.
Register now 👉 https://t.co/kkn61x8AKP
Find out more 👉 https://t.co/ymhkqS1yoU

#BecauseHormonesMatter #PheoPara

[Pheo Para Alliance @PheoPara]

Our deepest condolences. 💙

[European Society of Endocrinology (ESE) @ESEndocrinology]

It is with profound sadness that we learnt of the death of Professor Paolo Beck-Peccoz on 31 July 2026. European endocrinology has lost an outstanding physician-scientist, an inspiring teacher and mentor. Read the full tribute to Paolo Beck-Peccoz here https://t.co/71roM2u8tk

[Pheo Para Alliance @PheoPara]

Who’s on YOUR pit crew? #pheo #paraganglioma #PPGL isn’t a race you run alone. This #AwarenessWeek, The Adrenaline Circuit honors you & the people who fuel your journey—your care team, loved ones, & the PPA.
Stay tuned for more details . . . 🏁🛤️

[Pheo Para Alliance @PheoPara]

Thank you for raising awareness about #NETs in India! It takes more than a village -- it takes the whole world! 🌍👏🫂
#pheo #paraganglioma #PPGL

[CNETSIndia @CNETSIndia]

Every NET patient deserves more than treatment- they deserve timely diagnosis, reliable information and hope.
Awareness is the first step towards better outcomes.
At CNETS India, we're working to make NETs harder to miss and easier to understand.
#LetsTalkAbohtNETs #CNETSIndia

[Pheo Para Alliance @PheoPara]

Ready to launch in your post-fellowship careers, or are you new investigator? #pheo #paraganglioma #PPGL
✔️ out this #NETRF grant in support of #NETs research. 💵🔬👏
@TheAACE @TheAAES @TheEndoSociety @Soc_Endo @HemOncFellows @ESEndocrinology @ENSAT_news @SNM_MI @RadiologyACR

[Neuroendocrine Cancer Research Foundation @CureNETs]

Attention #neuroendocrinecancer early career researchers: this NETRF-funded grant is now open for applications through August 31st. Apply now ➡️https://t.co/55rsasnAC7

#NETs #cancerresearch #researchgrants #nuclearmedicine #NETCancer

[NET Cancer Day @netcancerday]

When neuroendocrine neoplasmspresent in primary care, awareness makes all the difference.
Join #ThinkNENs for primary care physicians to learn how to detect NENs:
🔹Free
🔹Videos online
🔹CME credit
🔹7 languages
Easy to sign up: https://t.co/X0mfICDWmx
#LetsTalkAboutNETs

[NET CANCER FOUNDATION @netcancerfound]

Join us this Thursday 30th July at 6pm UK / 1pm EST for this month's NETChatter. DM for the link. @NCFCancer @PheoPara @AMENDInfoUSA @netcanceraware @carcinoid @netcanceraware @netcancerday @CureNETs #research #zebrastrong #LetsTalkAboutNets

[Pheo Para Alliance @PheoPara]

Our Founding Community Partners got us started — now we need you. 💙 Help build the global PPA Patient & Provider Registry to speed research & improve care for all facing #pheo #paraganglioma #PPGL. Every gift counts.
#RareDisease #PatientRegistry
👉https://t.co/mTvHBDcGgC

[Pheo Para Alliance @PheoPara]

Learn from the world's leading #paraganglioma experts who will assemble in Italy. 🇮🇹🔬🌟🌍
Early-bird deadline: July 30, 2026 ⏰🐦📝
Register today👉https://t.co/WpZ0xXymF1
#PPGL #pheo

[Pheo Para Alliance @PheoPara]

Considering a #ClinicalTrial? Talk with your #pheo #paraganglioma #PPGL medical team to determine whether there are treatment options that might be appropriate for you. 🔬
🔎https://t.co/moENNyME0o

[NET Cancer Day @netcancerday]

The prevalence of NENs is estimated about 30 or 30+ per 100 000 population. Approx. three-fold increase in incidence over the last 3 decades is registered (Cancer registry in Norway – 99% population).
✅Prepare to detect NENs with #NETInfo in 14 languages: https://t.co/2jumU59R9Z
#LetsTalkAboutNETs

[Moffitt Cancer Center @MoffittNews]

Moffitt Cancer Center has been named a @PheoPara Alliance Center of Clinical Excellence for pheochromocytoma and paraganglioma (PPGL), rare tumors that produce adrenaline-like hormones.

This designation recognizes institutions with exceptional expertise in diagnosing and treating these rare tumors.

At Moffitt, patients benefit from a multidisciplinary team of specialists, advanced imaging and personalized treatment plans—all working together to deliver comprehensive, patient-centered care.

[Pheo Para Alliance @PheoPara]

Meet other #pheo #paraganglioma #PPGL #PHriends
🗓️July 30th, 2026 (Thur)
⏰9:00AM PST/12:00PM ET
Register👉 https://t.co/RG4NpLV9NQ

[Pheo Para Alliance @PheoPara]

Join us @DanaFarber September 19, 2026, for a #pheo #paraganglioma #PPGL scientific forum. Then, help support PPA's mission by attending Circle of Hope gala that same evening.
Details 👉 https://t.co/p762VSFsvT

[Pheo Para Alliance @PheoPara]

You've got #pheo #paraganglioma #PPGL #PHriends out there. 🫂❤️
👉https://t.co/osTq8U7cuc

@RareDiseases @NCFCancer @HealingNET1 @RonnyAllan1 @raredisorders @NANETS1 @CureNETs @CNETSCanada @netcancerday @VHLAlliance @AMENDInfoUSA @amensupport @APheipas @netcancerfound @n_nets

[Pheo Para Alliance @PheoPara]

Show your support for PPA!⁠
⁠
Check out our shop to purchase PPA merch:
👉https://t.co/FLmBTs74Sc!
All proceeds go towards the PPA's mission to support patients with #pheo #paraganglioma #PPGL.
⁠
Together, we are #PHearless!⁠