On 12/08/2020 my 7 year old daughter Lilly was
diagnosed with a rare and highly aggressive tumour in her brain stem (Diffuse Midline Glioma / DIPG).
With a limited life expectancy, our aim is to raise funds so we can make lovely memories with Lilly. ๐๐
https://t.co/HysMxE9vj2
๐ตCompete to win up to ยฃ1,000 credit here!๐ฐSee how much you could win!Click and accept my invitation on Temu to get started ๐
https://t.co/Ns2b8qVh77
@JustEatUK your company is terrible! Made an order with you yesterday evening(mcd's) it arrived and was such poor quality, cold, fries half full and coke had spilt everywhere. I requested a refund, To be told no! Quite happy to take my money! Won't be using you again!!!
@sophdoeslife Another person lost to brain cancer so young ๐ brain tumours are the biggest killers of under 40s yet gets minimal goverment funding. Its so unfair ๐
@sajidjavid@braintumourrsch So I assume you will be correctly allocating and spending the remaining ยฃ31mil in the next year?? There are people ready to do the research and trials available but they haven't had the funding to actually make it happen. Why after 4 years has only ยฃ9mil been spent??
Itโs yr 4 of that ยฃ40m pledge & only ยฃ9m has been spent! UK is nowhere near being a world leader in cancer care / research. 2 clinical trials could be supported to launch THIS YEAR in the UK - both for #DIPG, one of the rarest and deadliest types of brain cancer, both need funds
@alisoncaplan@BorisJohnson Boris is an absolute disgrace! Our children and others shouldnt have had to miss out on treatment.
While they all might as well be laughing in our faces. All these revelations haveade me so angry and disappointed ๐
@NickCannonShow@NickCannon I'm so sorry to hear about your son. My 8yr old daughter passed away March 2021 from #dipg 6 months after her diagnosis. Life is cruel ๐ ๐๐
@LisaWardspeakup@2StefanMoore@JaceWard3 Thank you! It was very short but unfortunately we experienced it all ๐ข I followed Jace's journey, he sounded amazing!!! ๐๐๐