PiNSA - Primary Immunodeficiency Network SA

PiNSA is a NPO, patient driven association dealing with Primary Immunodeficiencies (PID) to ensure that PID people in SA receive optimal treatment and support

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

🌍❤️ Join Us in Celebrating World Blood Donor Day - 14 June! ❤️🌍 Did you know that your blood donation can be a lifeline for individuals with a primary immunodeficiency (PID) or an inborn error of immunity (IEI). https://t.co/Jo0GhrIkCL #WorldBloodDonorDay #DonateBlood #PiNSA

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

Your donation matters. 
#WorldBloodDonorDay #DonateBlood #GiveLife #PiNSA #PrimaryImmunodeficiency #LifeSaver

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

🌍❤️ Join Us in Celebrating World Blood Donor Day - 14 June! ❤️🌍 Did you know that your blood donation can be a lifeline for individuals with a primary immunodeficiency (PID) or an inborn error of immunity (IEI). https://t.co/Jo0GhrIkCL #WorldBloodDonorDay #DonateBlood #PiNSA

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

Today we celebrate International Nurse Day
Thank you to all the nurses for all your love and care, we all appreciate you

Our Nurses. Our Future.
International Council of Nurses
The economic power of care

#IND2024
#OurNursesOurFuture

https://t.co/aqsfdcRUwR

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

World PI Week 2024 - Our Stories
Access to care for all PID patients, everywhere
Let’s make early diagnosis & timely access to quality treatment a reality worldwide

💚 Calleigh's Story 💚

Read more : https://t.co/WKKk5vjyxQ

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

World PI Week 2024 - Our Stories
Access to care for all PID patients, everywhere
Let’s make early diagnosis & timely access to quality treatment a reality worldwide

💙 Renita's Story 💙
Equal access to PID care should be a priority worldwide.

Read more: https://t.co/NttQ8V7dJx

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

World PI Week 2024 - Our Stories
Access to care for all PID patients, everywhere
Let’s make early diagnosis & timely access to quality treatment a reality worldwide

💖 Zoe's Story 💖

6 KEY MESSAGES ON IMMUNOGLOBULIN THERAPIES

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

World PI Week 2024 - Our Stories
Access to care for all PID patients, everywhere
Let’s make early diagnosis & timely access to quality treatment a reality worldwide

Anle's Story 💜

Early diagnosis contributes greatly to improved quality of life and care for people with Pl

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

World PI Week 2024 - Our Stories
Access to care for all PID patients, everywhere. Let’s make early diagnosis & timely access to quality treatment a reality worldwide. Remember the warning signs for infections thats:
Serious Persistent Unusual Recurrent

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

World PI Week-Our Stories
Access to care for all PID patients, everywhere. Let’s make early diagnosis & timely access to quality treatment a reality. We pay tribute and remembering Vicki Modell, global patient advocate, and co-founder of World Primary Immunodeficiency Week

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

At PiNSA, we are excited to participate in World PI Week 2024

Together, bringing about change for primary immunodeficiency patients in South Africa. Together, We Make a Difference
#WorldPIWeek #PINSA #rarediseasesa

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

We are joining hands across the globe to help raise awareness about World PI Week. To improve diagnosis, treatment access and support for patients and their families. South Africa has challenges and these have an impact on conditions-majority of people with PID are not diagnosed

[Jeffrey Modell Foundation (JMF) @Info4PI]

We translated our 10 Warning Signs of #PrimaryImmunodeficiency into 60+ languages! Visit our website to see our educational resources separated by region of the world for #WorldPIWeek at https://t.co/yqoDGhBkgJ 🌍
⁠

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

As part of celebrating World PI Week 2023, here is some information About Primary Immunodeficiency

https://t.co/P98s0spcoI
https://t.co/7zYz1pkyTq

#WorldPIWeek #primaryimmunodeficiency #PiNSA #iPopi

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

Please join us to create awareness for #WorldPIWeek 22-29 April
#primaryimmunodeficiency affects 442 people in SA that we are AWARE of! Many are still undiagnosed. Thanks to plasma derived treatments many of our members are able to live life as normal as possible

[Jeffrey Modell Foundation (JMF) @Info4PI]

The Jeffrey Modell Foundation is saddened to hear that Dr. Shereen Reda has passed away. She was a brilliant physician, professor, researcher, and mentor. She will be missed in Cairo, in Egypt, and throughout the global Primary Immunodeficiency community ❤️

[IPOPI @ipopi_info]

In search of a free and easy way to monitor your immunodeficiency? 4ID is here for you.

👩‍⚕️ Immunodeficiency parameters
🤒 Symptoms
💊 Prescription and treatments
🗓️ Appointments and absences
🔔 Reminders

Sign up now https://t.co/57ImKZiPBt

#4IDHealthAgenda

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

PiNSA Celebrating World RARE Disease Day today 💙💚💜 28 February 2023 💙💚💜

PiNSA is joining hands across the globe to help raise awareness about World Rare Disease Day

Primary Immunodeficiency (PID) is one such illness

#RareDiseaseDay #rarediseaseday2023

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

Calling all PINSA members for a mass infusion. We want to set a world record of the most infusions administered over World PI Week 22-29 April 2023, in creating awareness for people living with Primary Immune deficiencies ⁦@ipopi_info⁩ ⁦⁦⁦⁦@rarediseasessa⁩

[PiNSA - Primary Immunodeficiency Network SA @PiNSA_ZA]

South African hospital thinks outside the box to boost COVID-19 testing https://t.co/jHO9msv595 @JanGrabSA @RARE_X_ @RarediseasesSA @WorldPIWeek

[The SANBS @theSANBS]

We need 4500 units of #NewBlood - help us save the lives of South Africans by becoming a new blood donor today. #YourBloodSavesLives