PKUnity

Co-founded by @haggarty_claire & @katebucklandPT PKUnity supports patients w/ #phenylketonuria RTs & recipe shares are not endorsements All views our own

[Rare Disease Day @rarediseaseday]

Be part of the change in February!
Change your Facebook cover photo to the attached banner in order to create awareness of rare diseases!

[Rare Disease Day @rarediseaseday]

February is here! As well as the cover photo, change your profile photo and become a part of the international campaign! #RareDiseaseDay

[Rare Disease Day @rarediseaseday]

THE OFFICIAL RARE DISEASE DAY 2017 VIDEO IS OUT NOW!
Share the video to become part of the international #RareDiseaseDay campaign!

[Rare Disease Day @rarediseaseday]

'With research, possibilities are limitless'.
What does this year's theme mean to you?
https://t.co/72YxCtU4FM

[PKUnity @PKUnity]

I said we'd do these more often! Interested to know ur opinions on this:
Should #PKU diet be "Diet-for-life"?

[PKUnity @PKUnity]

@Paul_van_Berkel personally as Claire I agree&will b diet4life.But I have met many people who disagree. As @PKUnity I have to be open to all

[PKUnity @PKUnity]

@slneedleman you can get it online but I really wouldn't know about US shipping/customs laws. Canada wouldn't let me bring PKU milk in

[Gene People @GenePeopleUK]

During #UKCharityWeek we'd like to thank all those that support us, @JeansforGenes and children with #GenetcDisorders

[BCH Metabolics @MetabolicsBCH]

Fate leek and sweet potato low protein soup - not just a soup for Xmas. Delcious and substantial!

[BCH Metabolics @MetabolicsBCH]

Another classic and easy low protein recipe- Fate low protein truffles.

[PKUnity @PKUnity]

Not everyone shares that opinion @Paul_van_Berkel

[Med Student Genomics @MedStudent100k]

If left untreated in pregnancy #phenylketonuria may lead to #microcephaly in babies #PKU #genomics #100kGENOMES

[Nat Boyson @NatBoysonPKU]

mevalia_lp rice with #slowcooker #veggies #curry #lowprotein and #phenylketonuria friendly https://t.co/vZSB4PNF53

[Nat Boyson @NatBoysonPKU]

Festive cakes from mr Kipling only 0.7g protein per cake #phenylketonuria #treat https://t.co/Qizo476iGN

[Nat Boyson @NatBoysonPKU]

Mmm that #lowprotein soup & bread combo hit the spot #phenylketonuria #timelapse https://t.co/R2eVYFeiwC

[PKUnity @PKUnity]

Looks very healthy https://t.co/gLrTRKS1qP

[MAPKUF @MDAllianceofPKU]

Tonight's dinner 🍴. #dietforlife #pkustrong #pkuproud #phenylketonuria #phenylalanine… https://t.co/4UhU0LQFq5

[Nat Boyson @NatBoysonPKU]

#30minutemeals style #lowprotein pizza with violife_foods #vegan cheese #phenylketonuria #pku https://t.co/WfibBEdIrW

[PKUnity @PKUnity]

Well done reading all that @luke_nutrition1 I hope you had a cup of ☕️ to get you through all that! https://t.co/ABEc0jAQ6j

[PKUhub @PKUhub]

The most amazing thing about #PKU is the people who live with it and their stories... Who's got one they want to share?