Lymphoma patient (NHL 2001-02 and 2024-). Former cancer researcher (1992-2019), now a volunteer in patient and public involvement in research (PPIres 2007-).
'Structured patient & public involvement programme development in low & middle-income country health research: a scoping review'. New paper in BMC Research Involvement & Engagement
https://t.co/duX07IghiO open access!!
'What is the added value of patient & public involvement in lab-based research? Reflections from researcher & public contributor perspectives'. New commentary in BMC Research Involvement & Engagement
https://t.co/5V8ZW9sivN open access!!
every mushroom foraging guidebook: This is Woodland Pot Roast, a tasty little mushroom that adds a delightful flavour to soups and stews. Note that it is often mistaken for Satan’s Fistula, a mushroom that erases the last 9 generations of your family from God’s ledgers.
I'm a big advocate for the Oxford comma. I'm, also an advocate for, the, Shatner comma. You should, try it sometime. It really, makes your, sentences more, exciting!
'Engaging people with a chronic condition and various health literacy levels as citizen researchers'. New paper in BMC Research Involvement & Engagement
https://t.co/oLoMkdtvyI open access!!
Very proud of our group today and especially Andrew Challenger's work looking at excess mortality in DLBCL patients- which persists even beyond 10 years from diagnosis. Needs to be considered in our trial designs! @DavidJCutter@graham74GC
https://t.co/r5i1b0gEY1
'Engaging adults with severe mental illness in research: practical recommendations for meaningful patient & public involvement'. New commentary in BMC Research Involvement & Engagement
https://t.co/nU9dO9SCy1 open access!!
Looking for #Lymphoma information?
Although artificial intelligence (AI) can be useful, concerns have been raised about inaccurate and misleading health information included in search engine AI overviews.
Find out more 👉 https://t.co/2u08u26DAv
'Solar System' quilt by Ellen Harding Baker of Cedar County, Iowa, US, 1876, used as a teaching aid for her lectures on astronomy in the small towns of her state. The applique quilt is embellished with wool-fabric applique, wool braid & silk embroidery #womensart#QuiltArtWeek
Today we’re celebrating Helen and Viran.
Viran has pioneered offering Own My Life to female officers & staff. This is SUCH a good news story!
Women are staying in the force, being promoted & advocating for better outcomes for other women.
Listen here: https://t.co/xVs12UJ4ZZ
If human communication is composed of 55% body language, 33% voice tone, and 7% spoken words - where do we stand in a world where medical consultations shift to virtual?
Read our recent paper @jmirpub! https://t.co/LJAkGbOfR2 @Imperial_GDHU@Imperial_PCPH@Imperial_IGHI
'Patient & public involvement & engagement within a UK blood cancer cohort: a case study'. New commentary in BMC Research Involvement & Engagement
https://t.co/KAulXlsEmp open access!!
Hi @CheckOrphan I’m working with researchers developing a clinical trial for people with T-Cell lymphoma. We’re keen to hear experiences of patients, carers & those who have lost loved ones. Pls can you share & encourage people to get in touch [email protected]
“My body doesn't feel the same, and I still have moments of anger, sadness, and tears. But I constantly remind myself that I was given a second chance at life, a chance not everyone receives." Holly
Read about Holly's experience of Hodgkin #Lymphoma 👉 https://t.co/aIyu825fya
'What approaches are used to facilitate people from under-served communities getting involved with health research? A public contributor-led review'. New paper in BMC Research Involvement & Engagement
https://t.co/q2ttAsGqH5 open access!!