Progranulin Information Navigator

[Progranulin Information Navigator @progranulin_nav]

What's the difference between an observational study and a clinical trial? Our latest blog breaks down both, and how they're shaping progranulin-related FTD trials.
There's no wrong choice. Just informed ones.
https://t.co/nx8K2Bt9G4
#FTD #GRNFTD #ProgranulinFTD #FTDResearch

[Progranulin Information Navigator @progranulin_nav]

Did you know FTD is frequently misdiagnosed — sometimes for years? Knowing your genetic status could open doors to clinical trials & next steps. We offer FREE genetic testing & counseling for those who qualify.

Check your eligibility today 🧬
🔗 https://t.co/uRnwuSx6PP

[Progranulin Information Navigator @progranulin_nav]

Finding people who already understand — that's what the AFTD Conference means for FTD families. Erynn Gordon reflects on community, connection, and hope. 💜 Read the blog: https://t.co/O8WgTOv50H

#FTD #GRN #RareDisease #MentalHealthMonth #AFTD #AFTDConference #AFTD2026

[Progranulin Information Navigator @progranulin_nav]

Last week, we wrapped up the #AFTD2026 Education Conference in Seattle — what an incredible few days connecting with the #FTDcommunity and meeting people discovering #genetictesting for the first time. This is why we do what we do. 💙
#FTDAwareness #GeneticCounseling #Progranulin

[Progranulin Information Navigator @progranulin_nav]

We're excited to announce that we'll be sponsoring + exhibiting at the #AFTD2026 Education Conference!
📆 April 30 – May 1, 2026
📍 Seattle, WA & Online
This is an incredible opportunity to connect with the #FTD community. Come visit us at our booth!
#FTDAwareness #ProudSponsor

[Progranulin Information Navigator @progranulin_nav]

In her testimonial, Wanda shares why clinical trials and genetic counseling matter so much for families impacted by #FTD and the #𝘎𝘙𝘕 (##progranulin) mutation. 🧠Progress starts with participation.
#ClinicalTrials# GeneticTesting #RareDisease
https://t.co/lA6o6661Sg

[Progranulin Information Navigator @progranulin_nav]

🧠 We're proud to be a sponsor and exhibitor at the #AAN2026 Annual Meeting in Chicago this week!

Events like this bring the neurology community together — driving awareness, advancing research, and improving lives. We're honored to be part of it.
#AANAM #Neurology #BrainHealth

[Progranulin Information Navigator @progranulin_nav]

Getting your genetic test results can leave you with more questions than answers.

Whatever the results, our latest blog walks you through what comes next. 💙

🔗https://t.co/NMgSQeOLun

#FTD #GeneticTesting #Progranulin #GRN #RareDisease #YouAreNotAlone

[Progranulin Information Navigator @progranulin_nav]

𝐎𝐧𝐞 𝐠𝐞𝐧𝐞. 𝐎𝐧𝐞 𝐩𝐫𝐨𝐭𝐞𝐢𝐧. B𝐢𝐠 𝐢𝐦𝐩𝐚𝐜𝐭 𝐨𝐧 𝐛𝐫𝐚𝐢𝐧 𝐡𝐞𝐚𝐥𝐭𝐡. 🧠

Learn how the 𝘎𝘙𝘕 gene affects progranulin and what clinical trials are doing about it.
𝐅𝐮𝐥𝐥 𝐁𝐥𝐨𝐠: 𝐡𝐭𝐭𝐩𝐬://𝐭𝐢𝐧𝐲𝐮𝐫𝐥.𝐜𝐨𝐦/𝟒𝐩𝟗𝟔𝐫𝐰𝐟𝐚
#FTD #Progranulin #GRN

[Progranulin Information Navigator @progranulin_nav]

We’re proud to sponsor the 𝐏𝐞𝐧𝐧 𝐅𝐚𝐦𝐢𝐥𝐢𝐚𝐥 𝐅𝐓𝐃 𝐂𝐨𝐧𝐟𝐞𝐫𝐞𝐧𝐜𝐞. This virtual conference brings together leading clinicians and researchers to share updates on genetics + research for FTD.

Register here: https://t.co/Q2OEVDYCav

[Progranulin Information Navigator @progranulin_nav]

🧬 Genetic counseling isn’t just about test results.
It’s about understanding, support, and space to ask questions without pressure.
Learn about our no-cost genetic counseling & testing program: https://t.co/vnSsKs9uFq
#FTD #GeneticCounseling #FrontotemporalDementia

[Progranulin Information Navigator @progranulin_nav]

After an #FTD diagnosis, many families ask: Why? About 15–20% of FTD cases are genetic, yet many families are never offered testing. Free genetic counseling can help families understand options + next steps. 🔗 https://t.co/0gOC6YaGca
#FTD #GeneticCounseling #FTDResearch

[Progranulin Information Navigator @progranulin_nav]

𝐒𝐭𝐚𝐲 𝐜𝐨𝐧𝐧𝐞𝐜𝐭𝐞𝐝 𝐰𝐢𝐭𝐡 𝐭𝐡𝐞 #𝐏𝐫𝐨𝐠𝐫𝐚𝐧𝐮𝐥𝐢𝐧𝐈𝐧𝐟𝐨𝐫𝐦𝐚𝐭𝐢𝐨𝐧𝐍𝐚𝐯𝐢𝐠𝐚𝐭𝐨𝐫 💙
Get updates on trusted #FTD #FTD resources, free #genetictesting, research opportunities, and upcoming events.
🔗 Sign up: https://t.co/b39U3cmB6s
#FTDCommunity

[Progranulin Information Navigator @progranulin_nav]

FTD care is changing. 🧠🧬
@AFTDHope now recommends #genetictesting and counseling for all individuals diagnosed with #FTD, regardless of family history. No-cost genetic counseling + testing available through the Progranulin Information Navigator.🔬

#Neurology #ClinicalResearch

[Progranulin Information Navigator @progranulin_nav]

𝐇𝐚𝐩𝐩𝐲 𝐍𝐞𝐰 𝐘𝐞𝐚𝐫 💙As we enter 2026, Progranulin Information Navigator remains committed to supporting individuals and families affected by #FTD—offering clarity, connection, and trusted guidance every step of the way.

[Progranulin Information Navigator @progranulin_nav]

📚🔬 2025 Research Spotlight: Q4 Bluefield-supported Q4 publications advanced #FTDResearch across biomarkers, brain structure, and functional networks—strengthening diagnosis and disease tracking. This post wraps up our 2025 Year-End Research series. 💙

[Progranulin Information Navigator @progranulin_nav]

Grateful this season for the FTD community—families, clinicians, researchers, and advocates moving the field forward together.
Thank you for your trust and commitment to progress. 💙
#FTD #FTDResearch #Progranulin #EndFTD

[Progranulin Information Navigator @progranulin_nav]

Did you know 15–20% of people with FTD have a genetic cause? Understanding genetics may open the door to research studies and clarify family risk. Learn about our genetic counseling & testing program for eligible individuals — plus our podcast with @RememberMePodcast.
#FTD

[Progranulin Information Navigator @progranulin_nav]

Living with #FTD and considering research participation?
Clinical studies help determine whether new treatments are safe, effective, and able to improve care for future patients.
Explore currently enrolling symptomatic FTD studies:
🔗 https://t.co/hhuBkxHyFg #ClinicalTrials

[Progranulin Information Navigator @progranulin_nav]

🧠 Investigator Spotlight: Therapeutic Optimization
Dr. Roberson is revealing how modifying #progranulin impacts the efficacy of gene therapy in mouse models — insights to drive therapies for progranulin-related disease.

Grateful to all our featured investigators this month. 💙