PSC Mami

PSC Mami is a podcast that shares stories at the intersection of PSC and parenthood.

[PSC Mami @PSCMami]

If you didn't get to attend the PSC Partners Conference, you're in luck! All sessions are posted on their website. The research is exciting and progress toward better treatment and a cure is being made!

[PSC Mami @PSCMami]

As part of GLI’s A3 Spring Advocacy Day, I am sharing my story alongside other liver advocates to ensure that liver health is rightfully part of the US public health agenda. https://t.co/4NKqi6EpWd

[PSC Mami @PSCMami]

@sjhatch_joanne found community and mission after her son was diagnosed with pediatric PSC over 15 years ago. New Episode at https://t.co/lQ9OjaWGaS

[Janet Handal @Janet_Handal]

Thank you for highlighting that the lack of funding of COVID bill "means that millions of vulnerable citizens will be left to fend for themselves. ..But it seems lawmakers are willing to relegate [IC}to continued fear & prolonged isolation." @Dorry_Segev @benryanwriter @SherylNYT

[PSC Mami @PSCMami]

@reveal @AIRmedia @prx @KQED @jimbriggs3 @NandoArruda_ This workshop was fantastic! Thank you.

[PSC Mami @PSCMami]

@shepodcasts Stories at the intersection of parenting and primary sclerosing cholangitis

[PSC Mami @PSCMami]

New Episode! Stuart makes life changes after PSC diagnosis to spend more time with his family #pscaware #psc #aild #liverdisease #parenthood
https://t.co/GwRKY1u4td

[PSC Mami @PSCMami]

New Episode with @Author_LB! Laura shares about her journey to transplant, healing with her family, and how writing grounded her. https://t.co/EjVwVhWtGr

[PSC Mami @PSCMami]

Jennifer shares her experiences as the donor and receiver of organ transplantation #pscaware #donatelife #liver #donorfamily #AILD https://t.co/UYlKZxBW2C

[Álvaro Díaz-González @adiazgonzalezMD]

🚨Don't miss this important date!
🔎PSC is an infrequent disease that may severely impair patients' lives!
🔬There are so many things still to do! Let's work & fight together!

@PSCPartners @PSCSupportUK @EuropeLiver #LiverCancerAwarenessMonth #aeeh4LC

[PSC Mami @PSCMami]

Primary Sclerosing Awareness Day is Oct 29. In this episode, Nicola finds meaning in advocacy after her transplant, post-transplant pregnancy, and surrogacy journey. #pscaware #liver #livertransplant #podcast #surrogacy #patientadvocacy PC: Michelle Kirkby
https://t.co/8SIzD7Bysm

[Dorry Segev @Dorry_Segev]

Had a great conversation with @NPR @TonyaMosley this afternoon. 5 full minutes of radio time talking about immunosuppression, organ transplantation, vaccines, and the immune system!

https://t.co/ksl6yMRWWx

[Dorry Segev @Dorry_Segev]

The new CDC vaccinated people guidelines do NOT apply to immunosuppressed/transplant patients. The fact that the CDC does not clearly say that is irresponsible. Seems it's our job to spread the word. Please do.

[PSC Mami @PSCMami]

Jessica you were a light in our community. Through your advocacy you continue to be a light to others.

[PSC Mami @PSCMami]

Thank you @aboutIBD for sharing!

[About IBD (Amber): Writer, Advocate, Podcast Host @aboutIBD]

@PSCMami brings you stories at the intersection of primary sclerosing cholangitis (#PSC) and #parenthood. Hosted by Monika Aldarondo, PSC Mami gives perspectives on life with IBD and PSC from parents and caregivers. Find PSC Mami in any podcast app. https://t.co/y0mUiHeTdY

[PSC Mami @PSCMami]

@Author_LB Such a powerful day. So emotional!

[PSC Mami @PSCMami]

It is such an honor to hear, hold and share each story. Alicia Meyers shared about her experience with PSC and I am so grateful. I hope you are able to find something (or many things) that resonate with your own journey, as I did.

https://t.co/nomStj3XTl

[PSC Mami @PSCMami]

What a powerful day. If you want to hear more about how PSC affects us and why we need a cure, watch these testimonies.

[PSC Mami @PSCMami]

I have loved "moving" across the USA with my team of PSCers and liver transplantees. 200 miles to go so we need 200 donors to finish our Race to the Cure fundraiser! https://t.co/VPt4pTL9pJ