RainbowAcrossBorders

Rainbow Across Borders (RAB) is Asia’s first regional patient support group alliance promoting empowerment, advocacy and awareness through collaboration.

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ASEAN+ Rare Disease Network

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#RareDisease patient groups learning key skills to deliver a persuasive narrative

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Headlines of the day featuring Rare Disease Patient Advocates from the region

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Advocacy-focused strategies for patient groups to create a strategic policy plan @PolicyWisdom

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@PolicyWisdom Day 2: Developing a Strategic Plan is essential for success.

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Cynthia from Philippines Society for Orphan Disorders on the new bill for Rare Diseases. Congratulations

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@Durhane from @rarediseasesint : #RareDisease should be a international public health priority

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Day 2 - Making Rare Diseases a Global Health Priority

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@Durhane from @rarediseasesint : No one country, no one continent, can solve alone the problems posed by rare diseases.

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#RareDisease APAC patient groups learning key policy-shaping skills @PolicyWisdom

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@PolicyWisdom Advocacy - positioning policies, elevating patient issues & communication

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Mr Hyun Min Shin, Chairman - Korean Organization for Rare Diseases: Advocacy efforts in Korea

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Taiwan: Patients' needs heard and evidence based data needed to revise Rare Disease prevention & Orphan Drugs Act

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Policy shaping for advocacy workshop by @PolicyWisdom #raredisease

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Taiwan Foundation for Rare Disorders sharing on #patientadvocacy

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#RareDisease groups from 11 countries in APAC discuss #PatientAdvocacy

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ASEAN+ Rare Disease Network discussion on Rare Disease Day 2018 and regional data collection.