๐ Living with ME/CFS. ๐ Tweeting from bed. ๐ฆ Brisbane, Australia. ๐ Inspired by great people making a great impact. #pwME, #MECFS. #pwLC, #LONGCOVID, #PASC.
NDIS EXPOSED: Massive 52 minute investigation with @PeteZogoulas into Australia's immense disability fraud crisis.
This is Minnesota on a national scale. The NDIS budget - now approaching $50 billion a year - is closing in on Australia's entire military budget, and there is so much fraud in the system that the official government regulator told the Australian Senate there are not enough judges in Australia to try all known cases of fraud. The entire Australian legal system would collapse if they tried.
Up to 99% of alleged NDIS fraud goes unprosecuted. Out of over 7,000 tip-offs alleging fraud in the March quarter of 2025, just 16 cases (0.22%) were prosecuted.
So alleged scammers don't even bother to hide abuse.
To give you just one example: we visited a West Sydney NDIS provider operating out of the exact same address as a previous NDIS business the Australian government shut down for fraud four months ago. They were using the same accountant and THE EXACT SAME PHONE NUMBERS!
When we confronted them on camera, the owners physically assaulted us, smashed $800 worth of @PeteZogoulas's equipment, and staff screamed "RETARD" at us.
These people work in disability care.
Very legitimate and professional disability service business.
Watch the whole thing now. This is just the tip of the iceberg.
Hey @SawyerBlatz ๐! I empathise with you and your friend as I'm also living with severe #LongCOVID and #ME. I wish I had more insight into the terrible symptoms your friend is experiencing. Yet, together with my neurologist, we've been able to alleviate my insomnia with a bedtime combination of #Aripiprazole (#Abilify) 1 mg and either #Suvorexant (#Belsomra) 20 mg or #Lemborexant (#Dayvigo) 10 mg ๐. I'm here for you if you need help or have any questions ๐ค. #MillionsMissing
My #LongCovid billboard is now up & running!!๐ So proud of myself! Itโs located in Santa Clara, CA on highway 101 & is on east bound traffic (left side of road) for anyone whoโs nearby & wants to see it. So far it has over 17k impressions๐ 1/
Hey Trevor. I'm with you, 100%. @Shopify store owner here. With customer recovery, you make customers more loyal by effectively handling chargebacks. But this story is rough. Chargebacks happen; it's how you handle them that counts.
We assume 100% of these customers will never return after harmful (or hateful!!!) treatment.
This manager could've saved the day with empathy, a full or partial refund or a gift card with an invitation to return. #customerloyalty #chargebacks #stripe
I don't know any friend who isn't currently suspended by @Wise or has been in the last year
Say what you want about @Revolut, they're much better at communicating when they need info from you and won't just instantly suspend you without reason
๐คฏ๐คฏ๐คฏ
@K9Jadie_AZ @chasexdrew23 I second this! Those three pills are my breakfast ๐ฅ, lol! For dessert, it's low-dose Aripiprazole (Abilifyยฎ); it eases the intensity of my brain SM๐จG by 10-15%. So minimal, but I'm grateful for the discovery.
@IpLongCovid Your pain! I can feel it. I'm afflicted with #MECFS#LongCOVID too. I'm totally bed-bound by the disease, regularly unable to think, talk and type. We use stimulants to help me shower. I've heard about #Ativan/#Lorazepam. It must be a unique benzo. How long does it help you?
@DDEbert Well, I'm at the two-week mark now. Nothing has happened yet. Zero side effectsโthankfully. Intriguingly, after taking the combo, I feel pressure and tension across the front of my brain ๐ง , which lasts until I sleep. It's doing something in there. Lol. Thanks for checking in โบ๏ธ.
Today, with my docโs backing, I start a 60-day ๐ trial for debilitating โbrain fogโ (neurocognitive deficits, colloquially). A synergistic combo of #Guanfacine ER (#Intuniv) 1 mg & #NAC (N-Acetyl Cysteine) 600 mgโgood or bad, my progress I shall share ๐. #MECFS, #LC/#PASC.
@cstroeckw Yes! ๐ Severe #MECFS here. #Guanfacine MR (#Intuniv) 1>4 mg over two years. Benefits? ๐ซ. Drawbacks? โ . Per @Yale, now ๐ #Intuniv 1 mg + #NAC 600 mg. A week so farโtoo early to tell. I'll share my progress (good or bad) ๐. Are you jumping on the bandwagon, too? #LC/#PASC
@elleW902 @MindOverColor Yes, please! ๐ #Guanfacine slow release is indicated for executive functioning in ADHD. Per Yale, combine with #NAC for novel synergistic effect on cognition & brain fog ๐ง . Iโm on #Intuniv (modified release) tooโ1 mg + NAC 600 mg at bedtime. First week. ๐ Best luck to us both!