The Praxis team is so pleased to support the SCN2A community and help to bring more awareness to this disease. We commend the great work by FamiliesSCN2A
Epilepsy impacts the brain in various ways, causing seizures and other confusing symptoms. At Ionis, we’re working hard to make sense of this condition and bring some relief to those living with it. #EpilepsyAwarenessMonth
“Talent is insignificant. I know a lot of talented ruins. Beyond talent lie all the usual words: discipline, love, luck, but most of all, endurance.”
Baldwin's advice on writing https://t.co/xOjaSTnNHT
There’s no link between #smoking and #dementia, a new study suggests. But that’s because many smokers die before dementia sets in. https://t.co/0z4NG24ikt
Today @GreenJournal published the positive Phase 2 #trofinetide results for #rettsyndrome, which showed "statistically significant" and "clinically relevant" improvements. We are grateful to everyone who helped move this compound forward. https://t.co/MIPPrs4ExQ #clinicaltrials
How many schools have a pitch competition exclusively for women entrepreneurs? @Georgetown has that (going on now)-but get this: we also have a pitch comp open to all alumni -coming up at #jcw2019 -and ALL THE FINALISTS ARE WOMEN 😀 Proud of all our #hoyapreneurs#guwf19
This is something we all struggle with when your child has a rare disorder. Sure, I want treatments. I want my daughter to have what all girls her age do. But she’s also perfect just as she is. You can hold both truths.
Over 3,000 genetic conditions affect the neurological system. 75% of these conditions affect babies and children.CNF & @GlobalGenes along w/ their partners have teamed up to better understand this community. YOU ARE NOT ALONE Rare Child Neurology Workgroup https://t.co/QrefQFrYLY
There has been lots of criticism of $BIIB and I won't refute it BUT it is important to highlight their boldness and dedication to work on difficult CNS diseases that most other companies have run away from. We must not be discouraged.
“This disappointing news confirms the complexity of treating Alzheimer’s disease and the need to further advance knowledge in neuroscience,” said Biogen CEO Michel Vounatsos in a prepared statement - by @BentheFidler https://t.co/oAujL5aZKe $BIIB
According to Tom Stanton of @DannyDidOrg, 90-95% of parents whose children have epilepsy want to know about the risk of SUDEP. Share this episode of Seizing Life to spread #SUDEPawareness: https://t.co/UsX50ZiqsF #PutPatientsFirst
FDA approves first new drug, as a breakthrough therapy, specifically for the treatment of postpartum depression (#PPD), pending DEA scheduling. See full announcement: https://t.co/ZFCpDT2tuS $SAGE
For people with a rare condition known as misophonia, certain sounds like slurping, chewing, tapping and clicking can elicit intense feelings of rage or panic. https://t.co/pFSchcjem2