Royal Free 1955

ME/CFS vault. Research @CiaranJ_Farrell/@Needles_Toosay, curator @Needles_Toosay. Our research, if not it's credited. Reposts not necessarily endorsements etc.

[Royal Free 1955 @RFH1955]

May I remind new followers that there's now approximately three years' worth of tweets in this account. Many of the tweets feature rarely seen or forgotten bits of 'M.E.' history for you to study so do go through the archive if you have the time.

[Royal Free 1955 @RFH1955]

@resfoundation @Tesco You tell us what happened in early 2020, Ashwin. Go on.

https://t.co/0xoEvA3UI4

[Long Covid Advocacy 💙 @LongCovidAdvoc]

Dr Diane O'Leary has made an excellent comment on Emily Mendenhall's Substack, revealing she had a similar experience with Wessely.

We agree that the world would be a better place if the silenced material could be published.

[Bert @HenryRunamucker]

Cluster of mysterious neurodegenerative disorders in New Brunswick is due to various misdiagnoses + FND (AKA mystery neurological symptoms) according to very aged UK neuro/psych MDs. No need for further investigation!

[Lucibee 🌻 @_Lucibee]

@LongCovidAdvoc Emily Mendenhall explains what happened here: https://t.co/7Z4JSJIaDo

[Long Covid Advocacy 💙 @LongCovidAdvoc]

@emmiskyten It's seems to have been a junior editor but yes, it's not how publishing or academia should be working.

[Long Covid Advocacy 💙 @LongCovidAdvoc]

Source:

[Long Covid Advocacy 💙 @LongCovidAdvoc]

“Wessely read a version of the writing & threatened to sue me if it didn’t include the other side.” - Mendenhall

This raises serious questions about academic pressure, power, and whose voices shape the narrative around ME and Long Covid.

[Royal Free 1955 @RFH1955]

The Central New Jersey Home News, US. 7th January 1985. Doesn’t actually say either #chronicfatiguesyndrome or #myalgicencephalomyelitis but does refer to #chronicfatigue and #ebv.

[Royal Free 1955 @RFH1955]

The Sydney Morning Herald. 7th January 1988. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

[Royal Free 1955 @RFH1955]

From Bristol's Evening Post (England) on this day thirty-eight years ago - 7th January 1987.

#mecfs #cfsme #myalgicencephalomyelitis #myalgice

[Royal Free 1955 @RFH1955]

The Palladium-Item, Indiana, US. 6th January 1995. #mecfs #myalgice #cfsme #myalgicencephalomyelitis

[Royal Free 1955 @RFH1955]

The Poughkeepsie Journal, US. 6th January 2009. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

[Royal Free 1955 @RFH1955]

The Kingston Whig-Standard, Canada. 6th January 1990. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

[Royal Free 1955 @RFH1955]

The Standard-Star, New York, US. 6th January 1987. #ebv.

[Royal Free 1955 @RFH1955]

The Guardian, UK. 6th January 2023. #longcovid #myalgicencephalomyelitis #myalgice #cfsme #mecfs

[Royal Free 1955 @RFH1955]

About #gulfwarsyndrome #gws but mentions #myalgicencephalomyelitis #myalgice #cfsme #mecfs.

The Daily Telegraph, UK. 6th January 2001.

[Royal Free 1955 @RFH1955]

The Independent, UK. 6th January 2010. #xmrv #myalgicencephalomyelitis #cfsme #myalgice #mecfs

[Royal Free 1955 @RFH1955]

Slightly off-topic but perhaps relevant nonetheless. From the Evening Standard, London. Dated 6th January 1988.

The article is about Caroline Richmond. As early followers of this account may remember, that name has been mentioned here before and I am assuming it's the same one.

[Royal Free 1955 @RFH1955]

Reply to the Dr. Sarah David letter. GP Magazine, 6th January 1989.

[Royal Free 1955 @RFH1955]

Another letter to GP Magazine about the Richmond article in December 88 from a name that you'll recognise. 6th January 1989.