Rida Viljoen

Parent Coach. CF Warrior. Mum of twins.

[Rida Viljoen @Rida_ZA]

This photograph reminds me of pure power. Let's stand together and make sure all CF warriors have equal access to Trikafta. #nooneleftbehind

[Rida Viljoen @Rida_ZA]

@SpotlightNSP And still @VertexPharma has this exhorbitant price tag for my country. It's really hard to see how my fellow CF warriors are suffering and dying. Adults battle with employment, and children battle to complete school, because we are in hospital or at a clinic so often.

[Rida Viljoen @Rida_ZA]

@SpotlightNSP Approximately 5-7% of South African citizens are contributing to the personal income tax base. This relatively small percentage reflects several factors, including high levels of unemployment and widespread poverty. The South African Revenue Service (SARS)

[Rida Viljoen @Rida_ZA]

@VertexSaveUs @CompComSA @VertexPharma @Heinchen_Aili Dear Heinchen, your beautiful daughter deserves access as much as any other. Please give her hug. I'll never stop until all of us have access.

[Rida Viljoen @Rida_ZA]

Saturday | Thriving conversations |

Let's hear what our beautiful families have to say about headless chickening...

Could it be a superpower?
Could it make the world a better place?

Please remember to share! Have fun

#thrivingdinners #myfamilyiscool

[Rida Viljoen @Rida_ZA]

You are AWESOME!

Acknowledge someone in this post because they are awesome - tag them, give them a call, heck - organise a coffee with them!

! ! ! Let's celebrate each other ! ! !

And don't forget to celebrate yourself...

[Rida Viljoen @Rida_ZA]

People living with cystic fibrosis in South Africa to band together against big pharma greed https://t.co/30EMnHEEHU

[Vertex Save Us @VertexSaveUs]

🌍A historic legal battle is underway in South Africa.

#CysticFibrosis patients are challenging @VertexPharma's monopoly in court, to access to the lifesaving drug Trikafta - currently priced at $326k.

Read our blog to find out more:
https://t.co/HnL4lxGrem #RightToBreathe

[Vertex Save Us @VertexSaveUs]

💥💥URGENT CALL to South African #CysticFibrosis patients 💥💥

Join the landmark case to gain access to life-saving CF medication #Trikafta.

Together we can win!

Sign up to our webinar to find out more: https://t.co/JcRRFdb6Y1

🗓️ 29th February
🕖 7pm (SAST)

#RightToBreathe

[Rida Viljoen @Rida_ZA]

I stand with #CysticFibrosis patients worldwide in calling out @VertexPharma for their unacceptable profit-driven behaviour.

Their lack of compassion & failure to make lifesaving treatments accessible is costing lives.

Read more ⬇️
https://t.co/j8DRYXdZem #RightToBreathe

[Rida Viljoen @Rida_ZA]

@SenSanders Thank you. As a patient dying because of pharma greed, it is encouraging to see that someone willing to take on the system. Please help to save thousands of children and adults! Vertex is a terrible company!

[Rida Viljoen @Rida_ZA]

Congratulations! Well deserved indeed!

[Tenacious Awards @TenaciousAwards]

We’re delighted to announce the first of our six winners of this year’s Tenacious Awards is DIARMAID MCDONALD! 
#TenaciousAwards 🏆🧵

[Vertex Save Us @VertexSaveUs]

We are advocating for #CysticFibrosis patients EVERYWHERE, including the UK, where @VertexPharma’s prices are causing anxiety for many CF families.

Our petition has surged and we will ensure that Vertex hears ALL your voices, loud & clear.
Please sign:

https://t.co/PGx7P7uZYQ

[Just Treatment 💊 @JustTreatment]

Huge support in the room at #NACFC - the tide is turning against @VertexPharma.

It's time for them to listen to patients & clinicians around the world, drop their outrageous $326k price tag, and ensure global access for all!

Get involved 👇

https://t.co/gVHcpjlnn6

[Just Treatment 💊 @JustTreatment]

"We won't stop until everybody has access." ✊

Our Senior Organiser & @VertexSaveUs member @gayle_pledger making it clear that we will not stop speaking out and challenging @VertexPharma until every patient, everywhere has access to lifesaving treatment.

#NACFC #RightToBreathe

[Just Treatment 💊 @JustTreatment]

A vital presentation by Jonathan Guo on the challenges to access for patients worldwide.

"Elephant in the room is that cost remains the barrier to treatment. While inequalities in access are stark @VertexPharma is enjoying record profits."

$326k a year is unjustifiable! #NACFC

[Just Treatment 💊 @JustTreatment]

Hello from Phoenix, Arizona! 👋🇺🇸

We & @VertexSaveUs are here at #NACFC to speak about the #RightToBreathe campaign for global access to lifesaving #cysticfibrosis medicines! 🌍

Here's some highlights from day 1 so far...⬇

[Dr Meghan McGarry @DrMeghanMcGarry]

Heartbreaking stories from Moms of child with CF without access to modulators @VertexSaveUs please listen

[Just Treatment 💊 @JustTreatment]

BREAKING: #CysticFibrosis families from @VertexSaveUs & advocates confront @VertexPharma at their head office in Boston.

"How many billions is enough?"

They are here to challenge the exorbitant $326k/year charge for life-saving CF meds, leaving only 25% of patients with access.

[SECTION27 @SECTION27news]

Let's raise awareness about #CysticFibrosis and access to life-changing medicines like Trikafta.

Learn about Compulsory Licensing and Cheri Nel's court application. SECTION27 is making a difference with amicus intervention for better medicine access.
#AccessToMeds