Nate

stuck at home with long covid
community organizer, educator, video artist
🌈♿✡️🤒
(they/she)

[Nate @riffraffnath]

This is such a warm and thoughtful community. Consider popping in!

[Ravi Veriah Jacques @RaviHVJ]

I help run a discord group for young adults (18-33) with #LongCovid and #MECFS, and we're looking for new members. It's a really lovely little community - we've been going since late 2021. DM me to get a link to join. Please retweet and share widely!

[Nate @riffraffnath]

@x3r0gx4 yup MCAS docs say you can take up to 4 2nd/3rd gen antihistamine doses per day

[IfNotNow🔥✡️ @IfNotNowOrg]

"The most important [thing] for me, and I think for my brother, is that his death won't be used to kill innocent people" - Noi Katsman after having to bury his brother, Chaim.

More mass murder will not make anyone safer. U.S. and Israeli politicians, stop weaponizing our grief.

[Nate @riffraffnath]

@SickPatato https://t.co/ITDb6vHcy1

[Nate @riffraffnath]

@SickPatato check out rccx theory. whether the mechanism is correct or not, there is a clear association between neurodivergence, connective tissue disorders, and postviral illness

[Nate @riffraffnath]

@SPRH_2020 also the ACT UP historical archive has some cool primary sources: https://t.co/1EQ4Ocv0Ck

NYT article by David France, about the impact on american organizing: https://t.co/HKb7uUdt5H

[Nate @riffraffnath]

i've been immersing myself in a lot of ACT UP material recently, and I have a few basic observations relevant to #LongCovid and other complex chronic illnesses.

0. We need to organize. In the broadest coalition possible (#MECFS, #Lyme, #EDS, #POTS, #MCAS, etc).

[Nate @riffraffnath]

@SPRH_2020 How To Survive a Plague was my first exposure to ACT UP when it came out, and it moved me, but I'd start with Schulman's film and approach How To Survive a Plague with a critical eye towards how it highlights individuals over the collective.

[Nate @riffraffnath]

@mileswgriffis @CDCgov also this whole 'persistent symptoms' thing is such bullshit. makes people think long covid is just like, continuing to be congested or tired.

[Nate @riffraffnath]

9. We can win. We must win.

Lots more thoughts but time for bed. If anybody reads this, please let me know what you're thinking.

[Nate @riffraffnath]

8. We need to learn from people who are doing / did the work. #MEaction, #ACTUP, Peoples Health Movement, 19th century socialist sanitary reformers, and other less health-related movements.