Rachel Colson

chronic napper. writer. rare disease patient, turned advocate. #NOD2/#NLRP3/#NLRP12

[Rachel Colson @rlcolson]

dedicated to everyone who thinks i’m writing about them— i am.

[Rachel Colson @rlcolson]

mr. miracle 🤍

[Rachel Colson @rlcolson]

#RareDiseaseDay 🧬
#NOD2 #NLRP3 #NLRP12 #CryopyrinAssociatedPeriodicSyndromes #CAPS #YaoSyndrome #YAOS #FamilialColdAutoinflammatorySyndrome #Type2 #FCAS2 #MixedNLRAssociated #AutoinflammatorySyndromes #SchnitzlerSyndrome #AutoinflammatoryDiseases
(photo credit: Nicole Morelli)

[Rachel Colson @rlcolson]

hometown love ❤️

[Rachel Colson @rlcolson]

the equivalent of doctors saying “fax your records”

[Jett 🜲 @iky_fwjett]

STOP SENDING PEOPLE UNDER 35 THINGS TO PRINT AT HOME. WE DO NOT HAVE PRINTERS.

[Rachel Colson @rlcolson]

not a coincidence

[Iran Observer @IranObserver0]

⚡️BREAKING

The producer of the Israeli spy series "Tehran" has been found dead in her room at a hotel in Greece

[Rachel Colson @rlcolson]

@hailey_dlynn & @tumbling_josh casually blowing minds (again) 🤯

[ION GameDay @IONGameDay]

Miami Metal find the win in Big Trick Coed to take home their 2nd straight match trophy 🏆🔥

[Kelly @broadwaybabyto]

Begging you not to let Wael’s story get lost amidst all the horrors.

He was a 30 year old disabled man. His dad was his full time caregiver.

ICE took him away.

Wael said it would kill him. He said the fear was “real & immediate”.

He died last week. ICE killed Wael.

[The Tennessee Holler @TheTNHoller]

💔 “The goalkeeper told me I’m an illegal immigrant even though I was born in America, and he said Trump was gonna get me and send me back. It makes me really sad.”

Our kids are watching. (H/T Hot Lou)

[Rachel Colson @rlcolson]

can’t stop watching this.

@hailey_dlynn & @tumbling_josh are INSANE 🔥

[FloCheer @FloCheer]

𝙈𝙖𝙠𝙞𝙣𝙜 𝙃𝙞𝙨𝙩𝙤𝙧𝙮 🏆

Hailey & Josh are officially your 2026 UCA Partner Stunt Champions after throwing a skill NEVER done before on the UCA mat 🥳

Drop a congrats below ⬇️

[ #UCAnationals | LIVE on #VarsityTV | Jan. 16–18 ]

[💗 @ma1ybe]

Turns out women get more autoimmune diseases from suppressed anger and trauma...so basically every time you don't flip a table, your immune system takes a hit. Moral of the story? Throw the fucking chair, girl. It's preventative medicine

[Rachel Colson @rlcolson]

got to witness my lifelong best friend walk down the aisle and get married tonight without my disease-ridden body ruining it for me. it truly is the little things that make life beautiful and worth living.

cheers to Jess & Wes and a lifetime of love and happiness 🎉

[Netflix @netflix]

IT'S STRANGER THINGS WEEK

[Rachel Colson @rlcolson]

Wi$h Li$t

[Rachel Colson @rlcolson]

35 🎉

[Rachel Colson @rlcolson]

lmfao couldn’t love you more if i tried @natalierstewart ❤️

[🪴 @TheTunmike]

You’re laughing, rapture is tomorrow and you’re laughing

[National Organization for Rare Disorders (NORD) @RareDiseases]

We're in our #OrangeEra because August is #Autoinflammatory Awareness Month🧡 a time when landmarks like Niagara Falls are lit in dark orange to reflect the recurrent #fever and systemic inflammation caused by these rare disorders.

It's also the 10th anniversary of the @AAlliance_SAID, an organization advancing research, advocacy, and awareness with programs that engage patients and medical professionals worldwide.

Learn more: https://t.co/ulaBhev6qp
@AutoinflamMonth

[Dr. Angela Migowa- PhD, Paed Rheum.,MMed, MBChB @angela_migowa]

🔥 Not every fever is an infection.

Some children have Periodic Fever Syndromes — uncontrollable fevers + joint pain, rash, or red eyes, without infection.
💡 Treatment: Biologics that target the fever pathway.

📄 Read info sheets (EN/SWA/FR) + more
🌍 https://t.co/Gn5svK4IUA

[Autoinflammatory All @AAlliance_SAID]

The @EmpireStateBldg Building's lit up orange for Taylor Swift’s #OrangeEra, & we’re here for it! August is #Autoinflammatory Awareness Month. @AutoinflamMonth. Orange shades bring us joy. Let’s make this a month for change, hope, & awareness. @taylorswift13 want to help?🧡

[Rachel Colson @rlcolson]

find out who you are and do it on purpose

[Lily Blanco @Cocos1999]

In 4 days July 25, it will be Julius Jones 26th birthday incarcerated, for a crime he clearly did not commit.. Where is justice Oklahoma?? The hopelessness & loss this man has endured , is devastating #freejuliusjones #anotherbirthdayalone
#justiceforjuliusjones
#freedom🙏🏽