Thank you @NPR for letting me speak my caregiver truth - that when I didn't have external caregiving support it was "imprisonment" and "hellish" and when we finally got external help, it racked up to $300k plus/yr, no coverage. #CaregiversCryForHelp
https://t.co/BS2DGzQNCm
Cigna is placing profits above the lives of people living with ALS by creating barriers to access Relyvrio, a treatment is safe and beneficial. ALS is a physically, emotionally, and financially devastating disease and Cigna is placing cruel burdens on families by limiting access to an FDA-approved medication. We know fighting a multi-billion-dollar insurance company is a David-and-Goliath fight, but our community is willing to do whatever it takes to ensure people living with ALS get the care they need and deserve.
Read more: https://t.co/xRevcikzG8
Six years ago I was told to prepare to die.
This is the improbable, inspiring, love-filled, hope-filled, true story about the extraordinary campaign that happened next.
This is where you come in: please share this trailer with everyone so that we can bring hope to everyone.
It's Friday and I am so excited to share with you the new trailer for No Ordinary Campaign, @noc_film, which includes a cameo from @BarackObama.
This is a story about ALS but it is also a love story, as well as a story about doing the impossible.
I hope you like it.
#ALS patients and caregivers are not alone in the fight against this disease. Together, alongside healthcare professionals and advocacy organizations, the ALS community strives to meet every challenge. #TogetherWeFight
@jimmyfallon My bf convinced me to hide a clock in the science teachers room with the alarm set to go off during the next class. All the kids knew & yelled “warmer” & “colder” as the teacher looked for it. He quit shortly there after….
A little Saturday morning therapy session. I may feel like I’m going to die every time I’m here🤣 but in reality it has been a life saver over the past year! #grindhard https://t.co/vnJD2nazSe
Dawn Medi - Getting early every day...
What can accept? Everything. Everything that is out of our control.. Today - fully accept the past. It's unchanging.
MISSING TEENS ALERT: Have you seen these two? Spring Hill Police say they went missing Monday after leaving the campus of Spring Station Middle School. https://t.co/A99Ue1BDTr