Mgnt Science PhD graduate.
Head of Ops @ CFRI, Hon Research Fellow @ Strath Business.
Adopted Weegie in Dublin ๐๐ฎ๐ช๐
Otherwise, running, hiking, & eating
Despite having sadly moved on from @MHFScot, I am so pleased to see our paper reporting on our experiences of applying a theory of change approach to place-based #SystemsChange in #MentalHealth published in @SAGEPublishers#Evaluation.
https://t.co/lrwbNrNO2U
It's been a privilege supporting the collation of this report celebrating over 20 years of @CFRegistryIE data collection.
The report is testament to the hard-work of registry and partners as well as to the engagement from people with CF & their families in participating.
CFRI are delighted to launch our report celebrating 20+yrs of collecting data on people with CF in Ireland.
It covers key longitudinal data trends, the journey of CFRI and reflections on the future.
Please do have a read & share amongst colleagues! https://t.co/0l2e3kM6FG
HRCI was delighted to host an Irish Health Research Forum focusing on the research ethics system in Ireland in May 2023. We're pleased to now launch the event report which includes 7 constructive recommendations. Find the full report & event snapshot here https://t.co/52xMf0BYM1
WORLD RECORD
๐ช๐น's Tigst Assefa obliterates the women's marathon world record* in Berlin ๐คฏ
2:11:53 ๐
*Subject to the usual ratification procedures
We're delighted to see such interest in our newly launched ๐๐ฎ๐ข๐๐ ๐ญ๐จ ๐๐๐ญ๐ข๐๐ง๐ญ ๐๐๐ ๐ข๐ฌ๐ญ๐ซ๐ข๐๐ฌ. We hope this leads to the establishment of more high-quality registries, ultimately improving the lives of people living with health challenges. https://t.co/BV2SrDG0Aq
๐ Delighted to launch these guidelines today alongside our colleagues @HRCIreland and @SkinRegs.
'Unlocking the Potential of Patient Registries: A Guide for Success' lays out practical advice on developing & sustaining a patient registry.
Today, HRCI & our collaborators NISR & CFRI publish ๐๐ง๐ฅ๐จ๐๐ค๐ข๐ง๐ ๐ญ๐ก๐ ๐๐จ๐ญ๐๐ง๐ญ๐ข๐๐ฅ ๐จ๐ ๐๐๐ญ๐ข๐๐ง๐ญ ๐๐๐ ๐ข๐ฌ๐ญ๐ซ๐ข๐๐ฌ: ๐ ๐๐ฎ๐ข๐๐ ๐๐จ๐ซ ๐๐ฎ๐๐๐๐ฌ๐ฌ. It lays out practical advice on developing & sustaining a patient registry. https://t.co/BV2SrDG0Aq
It's been brilliant working with @HRCIreland on updating the guidelines on 'Unlocking the Potential of Patient Registries: A Guide for Success' - launching next week ๐
My colleague @LauraEKirwan & I are doing the @cf_ireland Head2Head walk this weekend in aid of the brilliant work done by our friends & colleagues @cf_ireland - any donations are greatly appreciated!
https://t.co/h1mNDR7ehg
Did touristy bits y'day in #Dublin. @street_tours were incredible. Our guide Shane informed us about the history of Smithfield whilst also highlighting the social issues which have & still greatly impact the city today. Thanks Shane for sharing your story!
https://t.co/y0CqC3XPhK
Hello #Glasgow pals ๐. We are (sadly) selling our wee MoFlo flat. If anyone is interested, viewings are next week. It's a great spot, I promise ๐. https://t.co/XzC2Uvjtc3
๐ขOUT NOW: the @CFRegistryIE 2021 annual report!
Check it out on our website & share via: https://t.co/MFjahlOKKi.
We will be positing some key stats over the next few weeks so keep an eye out for that ๐
#CysticFibrosis#CF#Registry#HealthData
Big thanks to @robynj44 & Godfrey Fletcher from @CFRegistryIE for collaborating with @HRCIreland on the Future of Patient Registries event today - we're looking forward to seeing what comes from the conversations started! #FutureRegistries
Total pleasure to work on organising this important event with @HRCIreland. Blown away by the support & engagement today about all things registries & health information - thanks to all the contributors.
Let's see what's next ๐!
#FutureRegistries
When work takes you to lovely places. A short visit to Brussels for @ECFSConference & @ECFSRegistry Winter Meeting. Now, on to Amsterdam for the weekend ๐ง๐ช โก๏ธ ๐ณ๐ฑ
"I hope I leave New Zealanders with a belief that you can be kind but strong, empathetic but decisive, optimistic but focused...that you can be your own kind of leader" - @jacindaardern
What a leader, what a legacy, and what a remarkable woman ๐ช๐