@HorizonNews@DTFA We are not at all surprised to see Horizon honored for its caring, heartwarming culture. Horizon has always displayed that same type of thoughtful, caring culture in its relationship with our patient community and our org -- the Friedreich's Ataxia Research Alliance (FARA).
@i_lousada Dear Isabelle, So sorry to hear you have lost your mother & best friend, tho she obviously had a wonderful, long life & clearly raised a wonderful daughter. I was overwhelmed by several of Balanchine's NYC Ballet in '64/'65 but your mom was probably doing other things by then.
@KyleABryant@PublishersWkly@HCI_Books Congrats on great review, Kyle. Pre-ordered the audio book version just now. Looking forward to listening. Well done, my friend.
@Lockwood_MD@USFHealth@CureFA_org And you, Dr. Lockwood, were a big part of the evening, getting us off to such a good start. We are deeply grateful for your commitment and that of all your USF colleagues.
Thank you, Richie, for your passionate commitment to helping your daughter and all FA families. The clinical trials are going very well and getting better and better. W/ all of us working together to support the exciting research, we WILL treat, cure and eliminate FA.
@KyleABryant@heartandsoulct Amazing family in the effort to treat & cure FA. Mary is a founding member of FARA Board, did her first FARA fundraiser in FARA's first year and never stops. I can't make it to the Friday event but just donated to it at https://t.co/Y6mWvpyVpi. Please consider doing the same.
@i_lousada I, too, am truly pleased to be a member of this exceptional group of dedicated people. This is yet another demonstration of the full-bodied commitment of our dear colleagues in the FDA to hearing the patient's voice & making patients essential partners in therapy development.
@CureFA_org@TheUSCAP@AlbanyMed Congratulations, Arnie, for this richly deserved award. All of us in the FA community deeply appreciate all your tremendous contributions to our understanding of FA and to our relentless drive to treat and cure this disease.