TT

Suffer from the rarest, most severe leading cause of blindness in the world-Retinitis Pigmentosa. No treatment/cure. PLS HLP w AWARENESS!🧬DHDDS(RP59)Terrifying

[TT @RPneedsHELP]

@rptora @yaireinhorn No sorry! His @ is @pknoepfler !!

[TT @RPneedsHELP]

My god, yes. This goes to you, David Weiss and “Dr.” Levy in Boca raton, Florida!You guys should have your licenses revoked and be so ashamed of yourselves. Disgraceful

[ISSCR @ISSCR]

#ISSCR Policy Chair Sean Morrison (@SJMorrison_) stressed the need for regulatory oversight of unproven #stemcell therapies at an #FDA Roundtable. ISSCR values the opportunity & thanks CBER Director Dr. Prasad for affirming the need to control bad actors.
https://t.co/Xj5wCzl82s

[TT @RPneedsHELP]

@rptora Right? Not to mention incredibly immoral! I’ve seen people spreading awareness a while back who had been to them. @yaireinhorn knew all about this and had provided me a link to send a formal complaint but it was so long ago, I don’t remember it 🤦🏼‍♀️

[TT @RPneedsHELP]

@rptora @bythesea49

[UC Davis Stem Cell @UCDavisStemCell]

Hundreds of NIH grant terminations are ‘void and illegal,’ federal judge rules https://t.co/KvgMeADKPf via @statnews

[TT @RPneedsHELP]

@rptora Lizzy! It’s terrible… the fact that Dr. levy and David Weiss are allowed to be on https://t.co/8qAIPLPl1V is just disgraceful. They tried getting us to pay 50k to do stem cell w my own defective bone marrow years ago! To see so many people STILL getting scammed breaks my ❤️

[Ocugen @Ocugen]

Ocugen licenses OCU400 gene therapy to a well-established Korean pharma partner up to $11M in upfront/near-term payments and $150M in sales milestones.

With 15K RP patients in Korea, we’re expanding our global impact.

More: https://t.co/xItR9ELihe.

#GeneTherapy #RP #OCU400

[TT @RPneedsHELP]

@bythesea49

[Ocugen @Ocugen]

Ocugen licenses OCU400 gene therapy to a well-established Korean pharma partner up to $11M in upfront/near-term payments and $150M in sales milestones.

With 15K RP patients in Korea, we’re expanding our global impact.

More: https://t.co/xItR9ELihe.

#GeneTherapy #RP #OCU400

[TT @RPneedsHELP]

@bythesea49

[Ocugen @Ocugen]

Ocugen licenses OCU400 gene therapy to a well-established Korean pharma partner up to $11M in upfront/near-term payments and $150M in sales milestones.

With 15K RP patients in Korea, we’re expanding our global impact.

More: https://t.co/xItR9ELihe.

#GeneTherapy #RP #OCU400

[Foundation Fighting Blindness @FightBlindness]

The Foundation Fighting Blindness urges @HHSGov Secretary Robert F. Kennedy, Jr. to prioritize vision research as part of the administration’s “Make America Healthy Again” agenda. Recent actions inadvertently put the future of sight-saving vision science, and treatments for millions of American children and adults losing their sight, at risk.

Read the full statement at: https://t.co/BbbZ6aLrLb

[TT @RPneedsHELP]

@RPB_org @NEI @NAEVRAdvocacy @bythesea49

[TT @RPneedsHELP]

@bythesea49

[Ophthalmology Times @OphthTimes]

National Institutes of Health (NIH) researchers have developed a custom artificial intelligence (AI) system that digitally enhances images in order to better show tissues in the back of the eye to the point of being able to make out individual cells.

https://t.co/ugbRW6krEj

[TT @RPneedsHELP]

@bythesea49

[Modern Retina @ModernRetina]

New research raises questions about the current clinical approach to inherited retinal diseases: https://t.co/z7c01Vlcxi

[TT @RPneedsHELP]

@eyetubenet @JosephAllen PFAS is the major culprit i swear! The other major issue is the lack of regulation re both skincare & makeup. They don’t even have to list these ingredients. Unlike the EU

[TT @RPneedsHELP]

@shedntcare_ G3

[Yair Einhorn @yaireinhorn]

This WSJ 📊 shows exactly what is wrong with healthcare in America! While the U.S. is ~ 25% of the entire global economy, it generates 70% (!) of big Pharma profits hence Pharma huge R&D investments are paid by Americans which in fact are subsidising the rest of the world. $XBI

[TT @RPneedsHELP]

@StemCellTracker 🙆🏼‍♀️😎

[TT @RPneedsHELP]

@TucumcariChase @9to5mac @iryantldr 😂😆

[TT @RPneedsHELP]

@bythesea49

[StemCellReports @stemcellreports]

New #organoid research: Transplantation of genome-edited retinal organoids restores some fundamental physiological functions coordinated with severely degenerated host retinas

@riken_en @ISSCR @CellPressNews @GairdnerAwards @SickKidsNews

https://t.co/yKcHjiYh6x

[TT @RPneedsHELP]

@bythesea49

[Invincible Vision @Invisionbcd]

“I guess even retinal specialists can get confused between retinitis pigmentosa and Bietti’s ”, says Dr. Stephen Tsang, a renowned professor and doctor at Columbia University
#Biettis #BiettisCrystallineDystrophy #opthalmology #opthamologist #optometry #rp #retinitspigmentosa

[TT @RPneedsHELP]

@bythesea49

[Ophthalmology Times @OphthTimes]

Nacuity Pharmaceuticals announced that the US FDA has granted Fast Track designation for its NPI-001 tablets, a proprietary investigational therapy for the treatment of patients with retinitis pigmentosa (RP), according to a news release.

https://t.co/HQS0ZMZ7Rs