Sally Russell

Looking to find new ways to support people.... Co-founder of Netmums, then carer, always a fan of health visitors, and humble OBE awardee.

[Sally Russell @sallyrssll]

So important to develop our understanding by listening …we hope this work will fuel academic research which seeks to answer genuine questions on the PDA profile of autism

[PDA Society @PDASociety]

Over the last year we've been conducting new research in partnership with PDA people and their families. Today we have released some of our initial findings alongside what this means for our community: https://t.co/1wJma0GR3v

#PDADay2024 #PDA

[Anna Freud @annafreuduk]

One of the key takeaways from our National Autism Trainer Programme conference yesterday was that when working with autistic people, we must see fellow humans instead of problem behaviours. It's about learning, being curious and collaborating on that deep level. #NATPMentalHealth

[Sally Russell @sallyrssll]

Looking forward to speaking at Autism Show about approaches to help with PDA this morning! @PDASociety

[PDA Society @PDASociety]

Welcome to #PDADay & #PDAActionWeek 2023! Today we’ve launched our new ‘Being Understood’ survey which is open to #PDA people (age 17 years or over) and parents, carers & partners of PDA people: https://t.co/v1V1eh8eUY

#TeamPDA 1/2

[Sally Russell @sallyrssll]

Very many congratulations to Paula ⁦@PDASociety⁩ on the award of her OBE for support to SEN families. She works tirelessly, running the Society’s Enquiry Line and working as a Trustee, and it is wonderful that she was nominated by those she has helped. Thank you Paula

[Sally Russell @sallyrssll]

Congratulations to Paula on her OBE award for providing amazing support, providing untold help to so many people - truly a life dedicated to service. The PDA Society is what it is today because of you Paula. https://t.co/40xc7nmz4j

[PDA Society @PDASociety]

Thanks all for marking #PDAday: from hosting live Q&As to donating fudge sales; from discounts on training & webinars to platform takeovers; from having custard pies in the face to creating new groups and meeting politicians; and for sharing so many resources! 🐼 #PDA

[Sally Russell @sallyrssll]

Today is #PDAday and I want to give a shout-out to all those who have helped our family over the years - listened, supported and shared expertise. Thank you - we wouldn’t be here without you. @PDASociety Newsletter has new videos and info https://t.co/6mSq8QkM6s

[Sally Russell @sallyrssll]

@GeorgeMonbiot I echo so many others; dreadfully misunderstood and under researched. My son has been in bed for 10 years and said ‘someone might listen now there is long-COVID’. But not just post-viral, hypermobility has a clear link with CFS, IBS, POTS, anxiety... also read Dan Neuffer’s book

[Sally Russell @sallyrssll]

Setting off on the last stage of 50km trek to raise money for the PDA Society - thanks to all our sponsors. Yesterday was a challenge through fog and mud on the John Bunyan Trail, but I am confident it will be easier as I get near home! https://t.co/jq8mlhojdG

[Sally Russell @sallyrssll]

A mum just wrote to me, 7yo in crisis, doctors agree with her views on needs but won’t put in writing... !? On #PDAday I pay tribute to those professionals who listen, engage and find right support for needs. Thx ACAMH for helping move us all forwards @acamh @PDASociety

[Association for Child & Adolescent Mental Health @acamh]

NEW CAMH Editorial: Demand avoidance — pathological, extreme or oppositional?
In this special edition of CAMH, data from two studies are presented which begin to look for underlying factors contributing to an anxious need for control.
By Ann Ozsivadjian
https://t.co/Ux9klDZv0Y

[Sally Russell @sallyrssll]

@Dominiclangan No sirens at all here in Watford and explosion heard for miles, so don’t think there’s a connection....

[Sally Russell @sallyrssll]

@GeneReynoldsUK @PFoy @BBCBreaking NATO are meeting in North Watford but there are no sirens here.... expect the security services are all wide awake though

[Sue Fletcher-Watson @SueReviews]

Autism and Empathy - what are the real links?

New myth-busting editorial in @journalautism from me and @DrGeoffBird

“flawed terminology, measurement and theory have all contributed to the mis-characterisation of autistic people as lacking empathy”

https://t.co/ssF8VglXJF

[Bethany's dad @JeremyH09406697]

Matt Hancock & Co finally speak out about their failed system.

It doesnt go far enough but its a really good start.

Just promises again tho?

https://t.co/kMIo4jCDjM

[Resolution Foundation @resfoundation]

While the benefit freeze has ended, the fact that they're rising less than half as much as wages and the state pension means that the erosion of the social security net for working-age families will continue

[Rightful Lives @RightfulLives]

“We know what the problems are, we know what the solutions are.” @RightfulLives co-founder, @TwittleyJules, talk to @JayneMcCubbinTV about what needs to happen to uphold the human rights of autistic and learning disabled people stuck in abusive ATUs.

https://t.co/awfvu1naKS

[Sally Russell @sallyrssll]

Social Workers do not have the medical expertise to make judgements so report from school alone should not trigger a safeguarding investigation - need medical professionals who know what they are doing and properly listen to families.

[Sally Russell @sallyrssll]

Clear account of the impact on families due to improper way in which FII is being investigated- new guidance from @RCPCHtweets @RCPCHPresident needs to address current failures in practice seen on programme and by @fiightback @PDASociety

[WWF UK @wwf_uk]

We've sent @BorisJohnson some essential reading - an @ourplanet book with annotations on why we need urgent action to fight the nature and #ClimateCrisis! #FightForYourWorld