Sally Neely Nix

We The Patients Co-Founder •The Slow Lane • Broken Brain • Accidental Advocate • Life with service dog, Jon Snow🐕‍🦺

[Sally Neely Nix @salnix]

Three denials. One approval. Two days too late.

We don’t have a healthcare system problem; we have an insurance industry accountability problem.

Watch this and ask yourself how this is still acceptable.@WeThePatientsUS #healthcare #healthinsurance #wethepatients

[Sally Neely Nix @salnix]

Requiring payment based on an estimate before care is delivered turns patients into financiers of a system that hasn't even done its job yet. https://t.co/8b4iIEdTOK

[Dutch Rojas @DutchRojas]

Cost Plus sells drugs at cost plus 15%.

Transparent.
Honest.
Admirable.

It also covers roughly 12% of total drug spending.
The other 88% has no transparent pricing mechanism at all.

Building an honest calculator inside a rigged casino is noble.
It is not a solution.
It is a proof of concept.

[Sally Neely Nix @salnix]

@DutchRojas @LighthouseDPC Ready and waiting fo this one!

[Sally Neely Nix @salnix]

As @mcuban said -“Anyone in Congress that doesn’t support this, doesn’t want lower cost healthcare for Americans.”

It is past time this happened. Patients like me are watching. And we are done waiting - get this done!

[Darrel Rowland @darreldrowland]

Sens Josh Hawley and Elizabeth Warren Introduce “Break Up Big Medicine Act” to Force Separation of Insurers, PBMs and Providers
https://t.co/WrLWgbQLvi

[Real Doc Speaks @realdocspeaks]

Genentech replaced a major pharmacy benefit manager with a transparent alternative, reducing drug costs and saving millions. The move highlights how cutting out middlemen can lower expenses.

This video is for educational purposes only and is NOT medical advice. Like and follow to learn more!

#DrugPricing #HealthcareReform #PharmacyBenefits

[Matt Toresco @matttoresco52]

Join the fight to protect the sanctity of the doctor – patient relationship. No element in healthcare should ever come between the doctor and the patient join us in the fight for consumer protections in healthcare!

No one’s should ever face the choice of going broke or dying, simply because they faced a healthcare challenge. #WETHEPATIENTS

https://t.co/Izd91KHKNZ

https://t.co/fPxdcgRtBh

[Sally Neely Nix @salnix]

To my co-founders @MatthewZachary & @matttoresco52: the success of our first We The Patients LIVE event, & sharing the stage together w/ truth, courage, & heart, reminded me why this work matters. You inspire me, teach me, & make me better. Grateful to build this w/ you.

[Sally Neely Nix @salnix]

Thrilled to welcome @TimBoyumTV to We The Patients LIVE for a powerful Fireside Chat, plus NC Representative @timreedernc, an emergency physician and healthcare reform leader, joining our panel. Big conversations ahead TOMORROW. #wethepatients

[Sally Neely Nix @salnix]

My rant today:
#servicesdogs are medical equipment, not pets, & are protected under the ADA. Hotels do a lousy job educating management & staff about this. I just spent quite a bit of time educating a @Marriott property on ADA law & that it’s illegal to charge extra for my stay.

[Sally Neely Nix @salnix]

NC Congressman @RepGregMurphy’s testimony struck a nerve across the country. This article explains why it matters and why patients cannot afford for this moment to pass without action.
https://t.co/0APZ7ZLJh8

[Sally Neely Nix @salnix]

The fact that neurosurgeons are fed up with insurance companies should end the debate. When medical experts can’t practice medicine without corporate permission, the system has failed. #brainsurgerypatient @RepGregMurphy @matttoresco52 @MatthewZachary

[Neurosurgery @neurosurgery]

@RepGregMurphy, the spirit of every practicing neurosurgeon, every physician, was felt in your remarks.

Thank you for being one of our leading advocates against industry Goliaths.

[Sally Neely Nix @salnix]

@matttoresco52 @RepGregMurphy @MatthewZachary He made NC patients proud! Congressman Murphy’s voice carries uncommon credibility. When physicians, patients, and policymakers are willing to confront insurance barriers directly, meaningful progress becomes possible. #wethepatients

[Sally Neely Nix @salnix]

@RepGregMurphy When physicians, patients, & policymakers are willing to confront insurance barriers directly - meaningful progress becomes possible, & that willingness is on display here. As both a physician & a policymaker, your voice carries uncommon credibility - thank you!

[Congressman Greg Murphy, M.D. @RepGregMurphy]

The @WaysandMeansGOP held a hearing on the impact of rising health care costs on patients and families. 

We have to have serious reform of health insurers, pharmacy benefit managers, and their subsidiaries to reduce the cost of healthcare.

[Sally Neely Nix @salnix]

No policy, no procedure, and no insurer should hold a patient’s life hostage. Access to care shouldn’t be a test of endurance - yet it always is. https://t.co/2C5hrxq3ob

[Sally Neely Nix @salnix]

Registration is almost full! You don’t want to miss this conversation -
We The Patients LIVE, Chapel Hill. January, 29th - 7pm - UNC’s Friday Center.
https://t.co/vvO6LlPEoi

[Sally Neely Nix @salnix]

@matttoresco52 @MatthewZachary I’m determined to teach other patients how to fight! The first rule is to actually fight - don’t walk away from a delay or denial. Hold these companies accountable! We are pulling back the curtain and exposing their tactics. #wethepatients

[Sally Neely Nix @salnix]

MZ wrote a book!!! @wendellpotter calls it - "A clarion call for how we can all work together to rig the system to better serve patients, not corporate interests."
#wethepatients

[Sally Neely Nix @salnix]

Welcome to 2026, where my ONLY treatment option, IVIG, is under review yet again. Today was supposed to be my infusion day. Instead, I learned 48 hours ago that @BlueCrossNC had other plans, delaying the care that keeps me stable and functioning.

Patients deserve better!