Sandra Price

[nikki 💂‍♀️ @LivingwithLen5]

My girls keep me going 💖👑 #grief #bereavement #childloss #LennonsLegacy

[Disabled Children's Partnership @DCPcampaign]

"Just because I have a disability, it doesn’t mean I can’t have a fulfilling life with exciting opportunities and wonderful friends and family, it just means that I need support in doing this."

#SecretLifeOfUs

https://t.co/NukGbsvBZG

[Disabled Children's Partnership @DCPcampaign]

"Things that are routine for other families – like using public transport, shopping, or eating out – are an absolute luxury for us. Loud, unexpected noises can cause sensory overload & worst of all, judgmental looks from people around us"

https://t.co/R08URmZYQS

#SecretLifeOfUs

[Disabled Children's Partnership @DCPcampaign]

Five Steps to address the crisis in health and social care services for disabled children.

#SecreLifeOfUs

https://t.co/zwwgiRhXVx

[nikki 💂‍♀️ @LivingwithLen5]

Beach day ☀️ Missing our boy 💔 he would of love the sea today 🌈🦋 #Torquay #Torbay #beachlife #EnglishRiviera #bereavement #grief

[nikki 💂‍♀️ @LivingwithLen5]

On Friday it will be whole year since Lennon died 💔

In some ways it only feels like yesterday. The shock has finally worn off, but the pain is still so unbearable.

There will never be the words to describe how much we... https://t.co/5j5Ln2EiYm

[Nascot Lawn Campaign @NascotCampaign]

HCC voted to fail in their statutory duties + also cost HCC tax payers more money to do so. #ToryIrony parents/carers have NO say in negotiations between @hertscc & @HVCCG. HCC will NOT necessarily use the £ for health. Parents/carers are NOT all happy w/ their options!!

[Disabled Children's Partnership @DCPcampaign]

As well as reporting our funding gap research, #BBCPanorama 'Fighting for My Child' also gave the results of the BBC's own FOI on cuts to short break services.

Nearly half (46 %) of local authorities who responded said they had cut funding for short breaks since 2014.

[Angelina Murphy @Angelina_SMurph]

So just today I’ve been told: my Saturday care is cancelled making it 2 nights not covered this week -again-, no 20ml syringes bc of a blip in Abbott’s system, & no travel concentrator bc it’s out of stock. I cannot progress w/ my life - why does that do to my mental health? 🤬🤯

[satnam kaur @sat_k_j]

Ooohhh! Or the £650k for #NascotLawn !!!

[Angelina Murphy @Angelina_SMurph]

The funniest part of tonight’s meeting with @hertscc is that officers didn’t know that they owned the land of which West Hyde is on. They didn’t even know THEY owned the land!🤦‍♀️ they have to ask themselves for planning permission!! And they didn’t know!! it’s like they ...

[satnam kaur @sat_k_j]

At @hertscc meeting. Discussing #NascotLawn transitions and there is no convo about any medical supervision till negotiations complete. Apprx 1 yr!

[Nascot Lawn Campaign @NascotCampaign]

Herts County Council officials and officers accept that specialist schools need NHS nursing staff but they don’t accept that the same children need nursing staff at their overnight short break centres 🤔 do children have health needs only from 9-3:30? 🤔 @hertscc #SaveNascot

[satnam kaur @sat_k_j]

How can parents have any confidence in social care overnight settings?? Overnight respite for us is in one sense over now! #SecretLifeOfUs

[satnam kaur @sat_k_j]

Hoping to be on #Youandyours with @wrobinson101 at 12.15pm talking about all I've had to give up to care. A choice I'd make again in a heartbeat for Gurpreet. @CarersUK @DCPcampaign @contactfamilies

[Angelina Murphy @Angelina_SMurph]

@alexrook1 Nascot Lawn families can be proud of each other. Many families have fought to #SaveNascot in their own ways. We’ve all done an amazing job! @LivingwithLen5 @JULESJ67 @dmgj @MarleneMRhodes @EmmaVictoriaTu2 @sandramprice @flo_warriors @LauraGr09748228 @Playskillorg

[nikki 💂‍♀️ @LivingwithLen5]

You’ll never understand what it is like to care 24/7 for a severely disabled child if you’ve never had one, but get a short insight into the lives of the #NascotLawn families. A must watch if you live in Herts - this is what the people in power have done.
https://t.co/RmEyB9ioYl

[satnam kaur @sat_k_j]

So far this academic year, missed parents evening, missed open evening, missed sports day for both my younger children #youngcarers as G was so poorly. #specialneedsparent #SecretLifeOfUs #StateOfCaring #ThursdayThoughts #caringmorethanmost #itshouldntbelikethis

[nikki 💂‍♀️ @LivingwithLen5]

Please watch the daily struggles of a @SaveNHSNascot family and the effects of not receiving respite has had on them. Nurse led respite is a NEED for some children @OliverHealdUK @SMcPartland @Richard4Watford @HVCCG @charleswalker @hertscc https://t.co/z2sfiCar5A

[Disabled Children's Partnership @DCPcampaign]

As, sadly, you won't now be wanting to watch re-runs of the World Cup final on repeat next week, can we suggest you tune in to #BBCPanorama at 8.30pm on Monday #SecretLifeOfUs https://t.co/DDHCF0wvad