Sarah Jaques

FND advocate.
Previous Research Technician
Division of Psychological Medicine and Clinical Neuroscience
Cardiff University.

[Sarah Jaques @sarah_jaques]

Today is FND Awareness Day. I thought I would share my story, to show how things can get better with the right help
This is my story: https://t.co/ZpI8kMDpz9
Please share to raise awareness #VOICES4FND
@FNDHopeUK @FNDAction @ncmh_wales @GGCardiffVale @DrBurness

[Johannes Jungilligens @jungjoha]

How are subtypes of adverse life experiences related to symptom severity and brain structure in patients with functional seizures – and which genetic pathways might influence this association? New paper with @IbaiDiezPalacio, @PerezMGHLab & @popkirov - https://t.co/hbjUeL3H0Y

[Neil Ramsay @NjRamsay]

📢📢New Publication📢📢in @ACNRjournal we discuss functional tics, how to differentiate from Tourette's and present a more nuanced approach to the relationship with social media. Thanks to @jonstoneneuro and Vicky Marshall for their collaboration on this!

https://t.co/GhNh8dm8Ho

[FNDHopeUK @FNDHopeUK]

Our voices are being heard in Parliament on the 21st September & we need your help to write / email your MP to ask them to join us.

Click the link for more details 👇

https://t.co/W84ZWN3Tix

#FND #functionalneurologicaldisorder

[The Neurological Alliance @NeuroAlliance]

Thank you to everyone who has signed our petition to #BackThe1in6 people living with a neurological condition and improve neuro services across the UK so far. Can we get to 10,000 signatures today? please sign, share and RT https://t.co/YL4BYWIkLI #DisabilityTwitter

[Sarah Jaques @sarah_jaques]

@CAV_RWC @cavamh

[The Mentor Ring @TheMentorRing]

SAVE THE DATE! Free health checks and workshops at our Health Fair on Wednesday 29th June. Everyone is welcome so come along!

@cardiff_council @thementorringwales @c3sc.org.uk @hindustudentcounciluic @sightcymru @cavcinsta @women_cf @cardiffandvalehealthcharity @ccaws_uk

[FNDHopeUK @FNDHopeUK]

Our Patron @reallorraine kicks off World FND Month with a message on how you can get involved in raising awareness of #FunctionalNeurologicalDisorder and help celebrate 10 years of Hope!

For more info:https://t.co/9NuqHYX0nP

#FNDAware #LetsTalkFND #FND2022 #FND

[WalesNeuroAlliance @NeuroWales]

The @NTCentre offer a range of therapies, provided by qualified health professionals to support people with neurological conditions. Follow the link to find out how they could help you.
https://t.co/rcB1rnbCXP

#LlaisNiwro #NeuroWales #NiwroCymru #NeurologicalConditions

[FND Portal - is no longer on X @FndPortal]

When someone “dismisses” a person’s symptoms as “psychological”, that’s an admission that mental illness isn’t really considered legit illness.

If a doctor misdiagnosed someone w epilepsy, you wouldn’t say they “dismissed the symptoms as epilepsy”, just that they’d got it wrong.

[Matt Burke @MattBurkeMD]

Excited to share our new Seminars in Neurology on the Neuropsychiatric Treatment of mTBI/Concussion @ThiemeNY. Led by @MollicaAdriano and w/ @silverberg_lab @DrCairncross - an up-to-date review on this complex and evolving topic @Sunnybrook @uoftmedicine

https://t.co/63olcrKhKv

[FNDHopeUK @FNDHopeUK]

🧡Do you have FND & live in WALES?🧡
You can find support, share experiences and learn how to live well with FND.
Wales Peer Support Group 🏴 WEDNESDAY 2ND FEB @1PM ~ Via Zoom
Register here: https://t.co/bfNIDIe4bq @ARCHProg @NeuroWales #FND #FNDHOPEUK

[David L. Perez MD, MMSc, FAAN, FANPA @DavidLewisPerez]

Sharing our @bmj_latest State of the Art review on the diagnosis & management of functional neurological disorder - across motor and seizure subtypes. "Rule in" signs, treatment strategies & educational videos included. (1/9) @SelmaAybek @FNDHope @MGH_RI
https://t.co/lgk8sNkLqu

[WalesNeuroAlliance @NeuroWales]

Today is the day!
My Neuro Survey launches today and this link will take you to the Wales specific survey so that we can gain insight into the state of neurology services across Wales! #myneurosurvey https://t.co/AXNoyQoTRU

[BeatED_Wales @BeatED_Wales]

We've launched a new helpline for Wales. If you have an #eatingdisorder or are caring for someone with one & need support, give us a call on 0808 801 0433 / email [email protected]. We're open 9am-midnight during the week & 4pm-midnight on weekends/bank hols!

[FND Action @FNDAction]

https://t.co/eLQpibxRIl #FND research opportunity. All in UK welcomed to get involved.

[National Centre for Mental Health (NCMH) @ncmh_wales]

#NCMH Deputy Director Prof. Jon Bisson & NHS colleagues have launched the Traumatic Stress Wales website, which aims to improve the health & wellbeing of people of all ages living in Wales at risk of or with #PTSD and complex PTSD:

🖱️ https://t.co/lvagYkl3Jp

#PTSDAwarenessDay

[FND Action @FNDAction]

Join us tomorrow for Functional Neurological Disorder Awareness Day UK!

Follow FND Action, @FNDDimensions and @fndfriends for updates, keep checking the website and follow/post using #Voices4FND

https://t.co/b51ZYlOpOi

[Jon Stone @jonstoneneuro]

This is a great FND cause - training the next generation of allied health professionals about FND

[Paul Garner @PaulGarnerWoof]

"I got completely frightened that I’d be ill the next day. If you expect things to happen then they do. People with long COVID sometimes ....think it is simply a biomedical illness, but it’s more complicated than that."
https://t.co/usdvd1TcMm

[Sarah Jaques @sarah_jaques]

@chris_sym @FndPortal stigma surrounding psychological struggles, is a driver of FND symptoms. It is ok to not be ok.