Sarah P

mum, SEND teacher, watching my daughter battle long covid & fighting for better awareness & understanding of Long Covid. Home educator.

All views are my own.

[Sarah P @sarahpriest77]

Published on Long Covid Awareness Day, 15th March 2024, Long Covid Kingdom: Small Voices, Big Creations is a collection of stories, poems & illustrations created by young people living with #longcovid some are about health battles, others are animal adventures, space adventures

[Sarah P @sarahpriest77]

@bowditch71 Yep, we've just stopped seeing them for this very reason (among others).

[Sarah P @sarahpriest77]

@bowditch71 The "volunteer run charity" makes me laugh!

[Sarah P @sarahpriest77]

@solodoc @bowditch71 Do I dare ask?! I probably already know

[Sarah P @sarahpriest77]

@bowditch71 Yep, hero worship, self promotion, self reward... not actually caring about the patents they supposedly represent.

[Sarah P @sarahpriest77]

@LongCovidAdvoc Thank you for reaching out, hopefully she will take it on board.

[Long Covid Advocacy 💙 @LongCovidAdvoc]

Anita is attempting to walk 140 miles by the end of December with Long Covid, despite needing mobility aids.

Whilst the motivation is admirable we are seriously concerned about the impact on her health, as she is describing symptoms of PEM.
https://t.co/KEGWEfFo3t

[Sarah P @sarahpriest77]

@LongCovidAdvoc Its so worrying that this is being supported and encouraged by people purporting to support patients with Long Covid. I really hope it doesn't cause any detrimental effects for Anita.

[Sarah P @sarahpriest77]

@SafeAirSchoolUK Amazing! Well done all 3 of you! Thank you for taking a copy of our book to gift to Violet Affleck as well 😊

[Sarah P @sarahpriest77]

Please sign and share. Play is so important in the EYS curriculum, even up to the end of KS1. Making young children sit still & learn is switing them off education.

Play based learning engages everyone & fosters the love of learning. Please sign & share

https://t.co/a9pdiDjp0y

[Long Covid Advocacy 💙 @LongCovidAdvoc]

We have serious concerns about the appointment of Dr Terry Segal as paediatric expert in the @covidinquiryuk
This is due to her problematic history with ME, association with BACME & present framing of #LC
🧐What does the evidence say? /1

[Sarah P @sarahpriest77]

@LeahBra_numbers @surf4children @LongCovidKids Yes, exactly. All he goes on about is how do we know they hadn't tested without actually explaining what mitigations they had in place.

[Sarah P @sarahpriest77]

@bowditch71 @surf4children @LongCovidKids @SammieFMc Definitely shouldn't be sharing outside of it. Whether LCK will actually stand up for you and those they support is a different matter....

[Sarah P @sarahpriest77]

@LeahBra_numbers @surf4children @LongCovidKids Exactly. I doubt he will be removed from the group either. Others who have been found to be sharing outside of the group have been removed from it, but it has been made clear that LCK prefer his "advocacy" over those they are supposed to be advocating for and aupporting.

[Sarah P @sarahpriest77]

@LeahBra_numbers @surf4children @LongCovidKids Exactly, if he's done in once, has he done it before?! I know he hasn't got the posters permission to share...

So much for patient/poster confidentiality!

[Sarah P @sarahpriest77]

@surf4children @bowditch71, have you seen this?

So much for confidentially in a PRIVATE Facebook group!

[Sarah P @sarahpriest77]

@surf4children So you share a post from a PRIVATE Facebook group to have a rant. Not good at all. Worse than being maskless IMO

@LongCovidKids

[Sarah P @sarahpriest77]

Following the exodus from here, it's turned into a hateful place. Feel free to follow me over on 💙 🏙 or give recommendations on who to follow 😊

https://t.co/XQZdH9CPTf

[Sarah P @sarahpriest77]

@DrJoGreer @BBCBreakfast @BinitaKane 🫂🫂

[Sarah P @sarahpriest77]

last weekend! Spaces available for girls in all units and leaders old and new.

Come join us on this exciting journey, make friends, earn badges and have fun!

[Sarah P @sarahpriest77]

@Girlguiding Connect District is a virtual unit for girls unable to attend in person meetings for whatever reason. Fully inclusive and follows the Girlguiding programme allowing all girls the opportunity to earn badges (who doesn't love a badge?!). We even had a virtual sleepover