@stefan_arce i had been severe so as the sound of my own breathing or masticating was unbearable. even a fly in a another room would trigger/renforce the rolling pem. i sincerely wish you softer times.
These past few weeks, when I felt better, I kept wondering how I had survived those months in bed.
Then I crashed again.
I’ve spent the last two days back in that state, I remember: I simply didn’t exist. Now I have enough strength to pick up my phone, it’s already evening.
#ME
Turning 25 today!🎉
I hoped I’d be spending this birthday differently.
As I begin this new chapter, all I wish for is to slowly find my way back to the life I’ve been missing.
#MECFS
People with #MECFS or #LongCOVID, how have you learned to accept this illness?
How do you cope with the grief of losing your old life, the constant suffering, and the feeling that every day is just a repeat of the last?
I’m overwhelmed by a sadness I can’t even put into words.
One of the cruelest parts of ME/CFS & LC is we’re stuck trying to cure ourselves, and when it gets too much and you just want to cry for a second, you can’t, because crying triggers MCAS or PEM.
We don’t even get to be sad without consequences.
@surf4children A volte è davvero difficile dottore. L’idea che così giovani, si possa non avere un futuro è devastante 💔 ma leggere parole come le sue aiuta a non perdere la speranza
Tonight I saw a friend I hadn’t seen in months. Even though I was happy, I felt something strange as she talked about her life and simple feelings. Will I ever feel that again? That carefree happiness? Will I ever live without pain? My heart is broken. #MECFS
TW assisted suicide / #MEcfs
Text from the Instagram Post:
hannahst_98: Heute, am 11. Juli 2026 ist Luigi De Re von uns gegangen.
Er bat mich folgende Nachricht zu übermitteln:
„ME/CFS kills, so it did with me.
I opted for this solution cause symptoms were unbearable and treatments did not work. My quality of life was far away from my normal. It deteriorated in a way I could not stand it anymore. My life was not like it used to be anymore. The message has to spread and more awareness and research has to be done to stop this disease from taking more lives or making them unbearable.
Let’s spread the word and let people know why I made this choice. Remind people that ME/CFS kills! May there be a cure for this disorder in the future. May people with this condition heal in the near future. May those who had to die because of ME/CFS rest in peace. May my death be a voice for the unheard.
Luigi, 24 years old“
Sein Tod soll nicht umsonst gewesen sein!
Unsere Krankheit braucht mehr Forschung, Hilfe und Anerkennung, so war auch Luigis Wunsch!
Ruhe in Frieden lieber Luigi
https://t.co/ih4rjVXBMF